Participation of family members and quality of patient care – the perspective of adult surgical patients

Leino‐Kilpi, Helena; Gröndahl, Weronica; Katajisto, Jouko; Nurminen, Matti; Suhonen, Riitta

doi:10.1111/jocn.13262

Cited by 9 publications

(12 citation statements)

References 33 publications

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“…Engaging in a trialogue focuses on cooperation between these three groups and provides a new way to involve all stakeholders who are focused on important individual issues, relevant information, guidance, and care. Our findings complement other research findings that health care workers should share the right information and use open communicative tools to uncover the uniqueness of each patient and family . Using a trialogue, health care workers could meet the needs of both patients and relatives while helping them make the right choices and become aware of possibilities and demands along the care pathway, thereby appearing much more accommodating, trustful, and caring.…”

Section: Discussionsupporting

confidence: 81%

“…At the same time, they occasionally felt pressure to include their relatives in their care to meet health care system demands. A Finnish study reported similar findings—the authors describe patients’ and their families’ need to be together, but also that family involvement is beneficial to patients’ outcomes and in reducing health care costs . Based on this knowledge, other researchers have developed various models to inspire health care workers to focus on communication, the environment of care, and involving patients and their relatives…”

Section: Discussionmentioning

confidence: 68%

“…The patient perspective has become important to health care workers. Today, patients’ involvement in their own care and treatment has reached a new level in which care also may include the patients’ relatives …”

Section: Literature Reviewmentioning

confidence: 99%

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Patients' Perspectives on Relatives in the Perioperative Setting: A Danish Study

Nors¹,

Sestoft²,

Dreyer³

2020

AORN Journal

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Surgical patients may have doubts about bringing relatives into the perioperative setting because they are unfamiliar with the environment and rules. This study aims to investigate patients' experiences with relatives' participation in this context. We conducted 15 semistructured interviews with surgical patients and analyzed data according to Kvale and Brinkmann's meaning condensation. We found that patients believe they do not have tailored information to prepare themselves and their relatives for surgery. They believe that their individual information is not transferred between health care workers, making them feel unsafe and confused; that control reduces anxiety; and that cooperation among everyone involved in their care creates coherence. We concluded that a collaborative trialogue involving the patient, relatives, and health care workers may benefit all involved. In cooperation, patients can make individual choices about their care, relatives can understand their role and opportunities, and health care workers can tailor the care they provide.

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Section: Discussionsupporting

confidence: 81%

Section: Discussionmentioning

confidence: 68%

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Patients' Perspectives on Relatives in the Perioperative Setting: A Danish Study

Nors¹,

Sestoft²,

Dreyer³

2020

AORN Journal

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“…30 In studies utilizing the instruments separately, EKhp has been used for heart failure patients scheduled for cardiac resynchronization therapy implantation in Iceland 57 and for patients with cancer, 58 knee osteoarthritis, 59 and prostate cancer in Finland. 60 RKhp has been used in Finland for patients in ambulatory surgical nursing, 31 total joint arthroplasty, 32 surgical nursing, 55,61,62 medical wards, 63 and for family members and nurses in surgical nursing. 61 Two parallel instruments to EKhp and RKhp have been used to discover expected knowledge (EKso) and received knowledge of significant others (RKso) ( Table 1).…”

Section: Dovepressmentioning

confidence: 99%

“…[64][65][66][67][68] The respondents in the national studies (n=53-480, Table 2) were adult surgical patients, representing both genders, with a mean age of 44-72 years (SD 9-17), mostly employed (12-77%) or retired (17-85%). 16,[28][29][30][31][32][57][58][59][60]62,63 In all of the studies, validity and reliability of EKhp and RKhp have been evaluated, content validity has been confirmed by experts, and internal consistency of the instruments has been sufficient. Internal consistency of the EKhp instrument has been reported in several studies with Cronbach's alpha ranging from 0.80 to 0.98 and subscales between 0.77 and 0.96, [28][29][30][58][59][60] while that of the RKhp instrument has been reported to range from 0.80 to 0.99, and subscales between 0.76 and 0.98 (Table 1).…”

Section: Dovepressmentioning

confidence: 99%

<p>Instruments for Patient Education: Psychometric Evaluation of the Expected Knowledge (EKhp) and the Received Knowledge of Hospital Patients (RKhp)</p>

Leino‐Kilpi¹,

Inkeroinen²,

Cabrera³

et al. 2020

JMDH

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Purpose In patient education, there is a need for valid and reliable instruments to assess and tailor empowering educational activities. In this study, we summarize the process of producing two parallel instruments for analyzing hospital patients’ expectations (Expected Knowledge of Hospital Patients, EKhp) and received knowledge (Received Knowledge of Hospital Patients, RKhp) and evaluate the psychometrics of the instruments based on international data. In the instruments, six elements of empowering knowledge are included (bio-physiological, functional, experiential, ethical, social, and financial). Patients and Methods The original Finnish versions of EKhp and RKhp were tested for the first time in 2003, after which they have been used in several national studies. For international purposes, the instruments were first translated into English, then to languages of the seven participating European countries, using double-checking procedure in each one, and subsequently evaluated and confirmed by local researchers and language experts. International data collection was performed in 2009–2012 with a total sample of 1,595 orthopedic patients. Orthopedic patients were selected due to the increase in their numbers, and need for educational activities. Here we report the psychometrics of the instruments for potential international use and future development. Results Content validities were confirmed by each participating country. Confirmatory factor analyses supported the original theoretical, six-dimensional structure of the instruments. For some subscales, however, there is a need for further clarification. The summative factors, based on the dimensions, have a satisfactory internal consistency. The results support the use of the instruments in patient education in orthopedic nursing, and preferably also in other fields of surgical nursing care. Conclusion EKhp and RKhp have potential for international use in the evaluation of empowering patient education. In the future, testing of the structure is needed, and validation in other fields of clinical care besides surgical nursing is especially warranted.

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Measuring Quality of Care

Stolt

Katajisto

Kottorp

et al. 2019

Journal of Nursing Care Quality

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Background: Patient-centeredness is emphasized in both health policies and practice, calling for reliable instruments for the evaluation of the quality of nursing care. Purpose: The purpose was to analyze the psychometric properties of the Good Nursing Care Scale (GNCS) in a sample of surgical patients and nurses. Methods: An explorative cross-sectional study design was used. Data were collected with the 40-item GNCS from surgical patients (n = 476) and nurses (n = 167) in Finland. The data were analyzed with Rasch analysis. Results: The GNCS provided evidence of unidimensionality with acceptable goodness-of-fit to the Rasch model in both samples. Person-separation validity was acceptable. Person misfit was reasonable. The Rasch-equivalent Cronbach α was 0.81 (patient data) and 0.88 (nurse data). Conclusions: The findings support that the GNCS is a psychometrically sound instrument that can be used in measuring the quality of nursing care, from the perspective of both patients and nurses.

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Participation of family members and quality of patient care – the perspective of adult surgical patients

Abstract: The results emphasised the importance of family members for the patients in surgical care. Family members' participation is connected with the quality of patient care.

Cited by 9 publications

References 33 publications

Patients' Perspectives on Relatives in the Perioperative Setting: A Danish Study

Patients' Perspectives on Relatives in the Perioperative Setting: A Danish Study

<p>Instruments for Patient Education: Psychometric Evaluation of the Expected Knowledge (EKhp) and the Received Knowledge of Hospital Patients (RKhp)</p>

Measuring Quality of Care

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