Participation of the family in hospital-based palliative cancer care: perspective of nurses

Abstract

The objective was to understand the perspective of nurses about the participation of the family in palliative cancer care and to analyze the nursing care strategies to meet their needs. Descriptive and qualitative research, conducted at the National Cancer Institute between January and March 2013, with 17 nurses. Elements of the Roy Adaptation Model were used for the interpretation of the data. Two categoriesemergedfrom the thematic analysis: perspective of nurses about the presence and valuation of family in the hospital; and appointing strategies to encourage family participation in care and meet their needs. This participation is essentialand represents a training opportunity for the purpose of homecare. Nurses create strategies to encourage it and seek to meet the needs. The results contribute to promote the family adaptation and integrity, in order to balance the dependent and independent behaviors, aimingfor quality of life and comfort. Further studies are neededdue to the challenges of the specialty. Descriptors:Oncologic nursing. Palliative care. Hospitalization. RESUMOObjetivou-se compreender a perspectiva de enfermeiros acerca da participação do familiar na hospitalização em cuidados paliativos oncológicos e analisar as estratégias de cuidado de enfermagem para atendimento das necessidades daquele. Pesquisa descritiva, qualitativa, realizada no Instituto Nacional de Câncer, entre janeiro e março de 2013, com 17 enfermeiros. Utilizaram-se elementos do Modelo de Adaptação de Roy para interpretação dos resultados. Da análise temática emergiram duas categorias: perspectiva de enfermeiros sobre a presença e valorização do familiar na hospitalização; e apontando estratégias para incentivar a participação do familiar no cuidado e atender a suas necessidades. A participação do familiar é essencial, sendo oportunidade para treinamento visando à assistência domiciliar. Os enfermeiros estabelecem estratégias para incentivá-la e buscar atender às necessidades. Os resultados contribuem para promoção da adaptação e integridade do familiar para equilibrar as condutas dependentes e independentes, visando à qualidade de vida e ao conforto. Novos estudos são necessários pelos desafi os da especialidade. Descritores: Enfermagem oncológica. Cuidados paliativos. Hospitalização. RESUMENTuvo como objetivo comprender la perspectiva de enfermeros sobre la participación de la familia en la hospitalización en cuidados paliativos oncológicos, y analizar las estrategias de enfermería para satisfacer sus necesidades. Investigación descriptiva, cualitativa, realizada en el Instituto Nacional del Cáncer, de enero a marzo de 2013, con 17 enfermeros, que usó elementos del Modelo de Adaptación de Roy. Por el análisis temático surgieron dos categorías: la perspectiva de las enfermeras acerca de la presencia y valoración del familiar; y las estrategias para fomentar la participación de la familia en el cuidado y satisfacer sus necesidades. Esta participación es esencial, con la oportunidad para el cuidado en casa. Los resultados c...

Participation of relatives in the care of cancer patients in hospital-A scoping review

“…The healthcare professionals considered relatives as an asset for the healthcare system and a support for them (Da Silva & da Silva Lima, ; Ekstedt et al., ). Relatives were seen as a help for the healthcare professionals by recognising the daily needs of the patients (Effendy, Vernooij‐Dassen et al., ; Effendy, Vissers et al., ) and attending to daily care (Da Silva & da Silva Lima, ). Thus, relatives also learned about basic care (Da Silva & da Silva Lima, ).…”

“…The critical appraisal demonstrated that some of the studies using quantitative methods did not have a representative sample of participants (Effendy, Vernooij‐Dassen et al., ; Eriksson & Lauri, ), the patients were not at similar point in the stage of their illness (Effendy, Vernooij‐Dassen et al., ; Effendy, Vissers et al., ), the confounding factors were not identified in the study (Kuuppelomäki, ; Zhang et al., ), and the outcomes of the study were not assessed using objective criteria (Effendy, Vernooij‐Dassen et al., ; Effendy, Vissers et al., ; Kuuppelomäki, ; Pardon et al., ; Zhang et al., ). In most of the qualitative studies evaluated, the philosophical perspective was not stated (Andershed & Ternestedt, ; Da Silva & da Silva Lima, ) and the influence of the researcher on the research was not addressed (Andershed & Ternestedt, ; Da Silva & da Silva Lima, ; Ekstedt et al., ).…”

“…It is extremely important to increase and support the active participation of relatives if it is something that both parties wish (Da Silva & da Silva Lima, ; Ekstedt et al., ). This participation can be considered essential as a training opportunity for the purpose of homecare and for the trust of managing at home (Da Silva & da Silva Lima, ; Ekstedt et al., ). Nurses are obliged to promote an environment in which the participation of the patient and relatives is respected and encouraged (ICN, ).…”

Comfort level of caregivers of cancer patients receiving palliative care

“…Family members are often the main caregivers, who experience situations of pain, anxiety and the potential loss of a loved one. This group is essential to support the patient, but it is also impacted by the disease, and their suffering must also be addressed and relieved 6 . …”

Palliative Cares To Older Person Under The Nurse's Optics

“…In the hospital environment, it is relevant for the elderly to have them nearby for comfort and safety. A plan of directed nursing interventions and guiding can corroborate the family member's balance and ways of adapting to the reality that he or she experiences [12][13].…”