Participatory design of biomusic with users on the autism spectrum

Grond, Florian; Cascio, M. Ariel; Motta-Ochoa, Rossio; Tembeck, Tamar; Veen, Dan Ten; Blain-Moraes, Stefanie

doi:10.1109/acii.2019.8925484

Cited by 9 publications

(3 citation statements)

References 35 publications

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“…For example, Kapuire et al [72] describe a seven-year project with a rural community in Namibia from the perspective of a researcher "native" to the community, to understand "community gains" from the project. Others included members of the partner community team as co-authors on research articles produced from the project [13,28,52,84].…”

Section: Establishing a Partnershipmentioning

confidence: 99%

“…Some articles emphasized the importance of researchers providing assurances to participants that their community knowledge is of equal value to the collaboration as the knowledge of researchers [43,48,74,84,88,114,116,137]. In projects involving people with a disability, researchers noted the considerable effort required to adapt methods to enable and support participation [52,84,93]. Neto et al [93], for example, created a multi-sensory toolkit to enable the participation of visually impaired children in prototyping tasks simultaneously with their classroom peers.…”

Section: Sharing Controlmentioning

confidence: 99%

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A Systematic Review and Thematic Analysis of Community-Collaborative Approaches to Computing Research

Cooper

Horne

Hayes

et al. 2022

CHI Conference on Human Factors in Computing Systems

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HCI researchers have been gradually shifting attention from individual users to communities when engaging in research, design, and system development. However, our field has yet to establish a cohesive, systematic understanding of the challenges, benefits, and commitments of community-collaborative approaches to research. We conducted a systematic review and thematic analysis of 47 computing research papers discussing participatory research with communities for the development of technological artifacts and systems, published over the last two decades. From this review, we identified seven themes associated with the evolution of a project: from establishing community partnerships to sustaining results. Our findings suggest that several tensions characterize these projects, many of which relate to the power and position of researchers, and the computing research environment, relative to community partners. We discuss the implications of our findings and offer methodological proposals to guide HCI, and computing research more broadly, towards practices that center communities.

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Section: Establishing a Partnershipmentioning

confidence: 99%

Section: Sharing Controlmentioning

confidence: 99%

A Systematic Review and Thematic Analysis of Community-Collaborative Approaches to Computing Research

Cooper

Horne

Hayes

et al. 2022

CHI Conference on Human Factors in Computing Systems

View full text Add to dashboard Cite

show abstract

“…Several studies reported success with the PD approach for children with autism using a variety of approaches. Focus groups (Boyle & Arnedillo-Sánchez, 2016;Grond et al, 2019), brainstorming (Soysa et al, 2018), feedback on design choices (Frauenberger et al, 2012) (Kim et al, 2014), scenario creation (Millen, Cobb & Patel, 2011), questionnaire (Boyle & Arnedillo-Sánchez, 2016), narrative structure and personalized storage box (Malinverni et al, 2014), observation (Madsen et al, 2009), and question and answer game (Porcino et al, 2014) are some of the methods used. Unexpected situations can arise related to ethical considerations, such as attracting and retaining participants, supporting their engagement, extracting design information from PD activities, ending PD projects, and managing resources (Constantin et al, 2019).…”

Section: Introductionmentioning

confidence: 99%

Game-Based Learning Application for Children with Autism Spectrum Disorder using Participatory Design

Dehkordi¹,

Ismail²,

Diah³

2022

IJARPED

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This paper aimed to devise a means to design game-based learning and develop an application game for children with autism spectrum disorder (ASD) using the participatory design (PD) method. A total of 15 participants from Khaneye Mehre Autism School in Tehran, Iran, were involved in this study. The engagement participatory sessions supplied the necessary information to facilitate the design process and understand the children's preference between the different design stimuli in individuals as informants by allowing them to be part of design activities. In addition, some value practices and design methods informed by relevant PD projects in the healthcare and public sectors were discussed such as an effective role of designers require adequate communication skills from participants. Based on the findings, this study maintains that PD increases the chance that the result of a design process represents the values for future works.

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Participatory Methods to Engage Autistic People in the Design of Digital Technology: A Systematic Literature Review

Maun

Fabri

Trevorrow

2023

J Autism Dev Disord

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Purpose Many technology designers strive to involve end users in the design process, aiming to produce better outcomes. However, designers may struggle to engage autistic users effectively due to a lack of understanding of autistic characteristics and preferences. This systematic literature review aimed to identify how autistic adolescents and adults can best be engaged in effective participatory design activities. Methods Seven databases were searched for articles reporting technology design involving autistic people, returning 276 results. Using the PRISMA approach, 258 were excluded due to not meeting the inclusion criteria. The remaining 18 articles were then quality assessed. Results A thematic analysis revealed five core themes: (1) Engagement: the importance of investment in, and ownership of, the design process to create engagement, (2) Relationships: building relationships through collaboration and careful facilitation, (3) Skills development: the development of personal skills such as teamwork, design and self-advocacy in order to grow confidence, (4) Structure: providing context and structure to make the design experience feel safe and predictable, and (5) Support: the importance of support and consideration of individual needs as well as discouraging negative behaviours. Conclusion Valuing participants as equal partners in design emerged as an, arguably, universal principle. The specific needs and preferences of autistic people must be understood and respected by designers. This goes beyond obvious accommodations such as providing a quiet and safe environment, and requires a deeper, more personal engagement with the individuals and their interests. We provide tangible recommendations for increasing engagement and aiding the design process.

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Participatory design of biomusic with users on the autism spectrum

Cited by 9 publications

References 35 publications

A Systematic Review and Thematic Analysis of Community-Collaborative Approaches to Computing Research

A Systematic Review and Thematic Analysis of Community-Collaborative Approaches to Computing Research

Game-Based Learning Application for Children with Autism Spectrum Disorder using Participatory Design

Participatory Methods to Engage Autistic People in the Design of Digital Technology: A Systematic Literature Review

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