Participatory Research Methods – Choice Points in the Research Process

Vaughn, Lisa M.; Jacquez, Farrah

doi:10.35844/001c.13244

Cited by 339 publications

(245 citation statements)

References 92 publications

Supporting

Mentioning

236

Contrasting

Unclassified

Order By: Relevance

“…It uses systematic inquiry in direct collaboration, which allows research to benefit from the collective wisdom of both. In turn, it creates more meaningful findings translated to action or for the purpose of social change [24].…”

mentioning

confidence: 99%

Participatory research for the development of information, education and communication tools to promote intermittent preventive treatment of malaria in pregnancy in the Democratic Republic of the Congo, Nigeria and Mozambique

Faye

Lugand

2021

Malar J

View full text Add to dashboard Cite

Background To improve the coverage of intermittent preventive treatment of malaria in pregnancy (IPTp) in Africa, Medicines for Malaria Venture (MMV) developed, tested and validated a new packaging of sulfadoxine–pyrimethamine (SP), as well as specific communications tools designed to improve knowledge of IPTp and the motivation of women to adhere to it, particularly if it is distributed by community health workers (CHW). Methods This article describes and analyses the results of an empirical research carried out in the Democratic Republic of the Congo (DRC), Nigeria and Mozambique, to evaluate the perception and social acceptability of SP for healthcare providers, CHW and pregnant women, and to assess the ability of the new SP packaging and the communications tools to change their perception of SP and improve their attitudes towards IPTp. Results The results indicate that SP’s new individual packaging was perceived by pregnant women and healthcare providers as a “hygienic” and “safe”, with a specific identity. The graphics used in IPTp communications tools were modified according to the respondents’ feedback to make them more culturally and socially sensitive, and then validated. However, although the new blister packaging and IPTp communications tools generated greater confidence and motivation, SP side effects as well as preconceived ideas, particularly regarding its efficacy, remain a challenge that must be addressed to improve IPTp acceptance and compliance by healthcare providers and pregnant women. Conclusion This participatory approach to social research based on ongoing feedback to the graphic designer provided more empirical evidence to improve and adapt the textual and visual content of communication tools (SP blister packaging, leaflet, user guide) to local contexts and user preferences. Tested and validated in different socio-cultural and socio-political contexts, these tools provide a good basis for the promotion of IPTp in Africa.

show abstract

mentioning

confidence: 99%

Participatory research for the development of information, education and communication tools to promote intermittent preventive treatment of malaria in pregnancy in the Democratic Republic of the Congo, Nigeria and Mozambique

Faye

Lugand

2021

Malar J

View full text Add to dashboard Cite

show abstract

“…Table 1: a sampling of participatory research approaches with a brief characterization and indication of the field(s) in which they are typical. This table draws from the much more comprehensive Table 1 in (Vaughn & Jacquez 2020).…”

Section: Introductionmentioning

confidence: 99%

“…See(Vaughn and Jacquez 2020) for a fuller discussion of the terminological variation and associated differences in approach. Their Table 1 also provides a more comprehensive index of participatory research approaches than our table does.…”

mentioning

confidence: 99%

Divergence of values and goals in participatory research

Dunlap

Corris

Jacquart

et al. 2021

Studies in History and Philosophy of Science

View full text Add to dashboard Cite

Public participation in scientific research has gained prominence in many scientific fields, but the theory of participatory research is still limited. In this paper, we suggest that the divergence of values and goals between academic researchers and public participants in research is key to analyzing the different forms this research takes. We examine two existing characterizations of participatory research: one in terms of public participants' role in the research, the other in terms of the virtues of the research. In our view, each of these captures an important feature of participatory research but is, on its own, limited in what features it takes into account. We introduce an expanded conception of norms of collaboration that extends to both academic researchers and public participants. We suggest that satisfying these norms requires consideration of the two groups' possibly divergent values and goals, and that a broad characterization of participatory research that starts from participants' values and goals can motivate both public participants' role in the research and the virtues of the research. The resulting framework clarifies the similarities and differences among participatory projects and can help guide the responsible design of such projects.

show abstract

mentioning

confidence: 99%

“…Participatory approaches involve meaningful engagement of community stakeholders in the research process (Nnawulezi et al, 2018;Vaughn & Jacquez, 2020). Researchers must determine what methods to employ to arrive at the intended level of participation from community stakeholders (Chung & Lounsbury, 2006;Vaughn & Jacquez, 2020). Participatory approaches centralize sharing power and collaborative decision-making between community partners and academic partners throughout the research process, from conceptualization to analysis to dissemination of study findings (Israel et al, 2008;Ragavan et al, 2020).…”

mentioning

confidence: 99%

Participatory Research Engagement of Vulnerable Populations: Employing Survivor-Centered, Trauma-Informed Approaches

Jumarali

Nnawulezi

Royson

et al. 2021

Journal of Participatory Research Methods

View full text Add to dashboard Cite

Participatory research methods increase the quality and relevance of a study and are a key element of community practice. However, participatory methods can be difficult to employ at the outset of a research study with vulnerable, hard-to-reach populations. Intimate partner violence survivors are a particularly vulnerable population who are at increased risk of experiencing abuse-related trauma and have distinct safety-related needs. In order to engage survivor populations, researchers can employ survivor-centered, trauma-informed approaches to build trust and develop relationships that facilitate increased engagement in the research process over time. This paper outlines the methods and strategies that academic partners used to establish, increase, and maintain participatory engagement with women who experienced harm by intimate partners. The process began with a community-based, qualitative needs assessment study for survivors whose partners were in a relationship violence intervention program. In addition to responding to specific aims, this study simultaneously helped to create a pool of potential collaborators. Academic partners used member checking to establish trustworthiness of the study findings and introduce the participants to the concepts of participatory engagement. Next, researchers established an advisory group to develop practice recommendations, which ultimately led to academic and community partners co-designing a community-based dissemination project. We discuss successes and tensions inherent in the engagement process, important lessons learned, and provide recommendations for future community practice.

show abstract

Participatory Research Methods – Choice Points in the Research Process

Cited by 339 publications

References 92 publications

Participatory research for the development of information, education and communication tools to promote intermittent preventive treatment of malaria in pregnancy in the Democratic Republic of the Congo, Nigeria and Mozambique

Participatory research for the development of information, education and communication tools to promote intermittent preventive treatment of malaria in pregnancy in the Democratic Republic of the Congo, Nigeria and Mozambique

Divergence of values and goals in participatory research

Participatory Research Engagement of Vulnerable Populations: Employing Survivor-Centered, Trauma-Informed Approaches

Contact Info

Product

Resources

About