Particular Qualities of Organizing Teaching Parents to Care a Child With Oncological and Oncomematological Pathology: Recommendations for Oncologists and Family Physicians

Abstract

Introduction. All children who have an oncological or hematologic diagnosis during the period of diagnosis of treatment are in specialized departments, but failing of effective training of the patient, parents and family members in child care skills, with an oncological diagnosis negatively affects the results of treatment and the quality of life of the family. The process of training parents and family members allows the medical team to correct incorrect and false information that family members can get from different sources, as well as strengthen the skills of caring for a child with an oncological diagnosis in the conditions familiar to the family. The research objective is to develop an algorithm that can be used in practice to control the learning process of parents and family members of children with an oncological or oncological and hematological diagnosis. Materials and methods. As a basis for the development of the algorithm, we took the recommendations of experts from the 2016 Children's Cancer Group. Results and its discussion. An algorithm has been developed and adapted that is based on five basic principles: the perception and awareness that in pediatric oncology the education of parents and family members should be family oriented; Awareness of the child’s oncological diagnosis is emotionally difficult and takes some time to develop a plan to address current life needs; training of cancer patients, his parents and family members should be an interprofessional event, which is based on diagnosis and treatment, as well as discussion of psychosocial support and the organization of basic child care; training should be continuous and continuous; It is necessary to create an enabling environment for learning. Conclusions. Implementation in practice and the implementation of the training algorithm for caring for a child with an oncological diagnosis, the use of an integrative direction of training for family doctors will provide the opportunity to work with the main educational content, establish and strengthen feedback between doctors in specialized hospitals and family outpatient clinics, and increase the effectiveness of the prevention of complications that arise upon receipt of special treatment (polychemotherapy, radiation therapy, etc.), which in turn will lead to an improvement the quality of family life while receiving therapy with a child diagnosed with cancer.