Partnership With Patient Advocacy Organizations Improves Research Recruitment
Lori Wiener,
Kimberly Buff,
Kimberly Canter
et al.
Abstract:Incorporating and elevating the voices of patients and families is of utmost importance in pediatric psychosocial research. While recognized as a priority, this practice is not commonplace, and specific guidance regarding best practices and procedures is largely absent. This paper describes partnering equitably with pediatric oncology patient advocacy groups to conduct the Implementing the Standards Together: Engaging Parents and Providers in Psychosocial Care (iSTEPPP) study. The partnership was critical for … Show more
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