Partnerships Between Pediatric Palliative Care and Psychiatry

Knapp, Caprice; Madden, Vanessa; Button, Daniel; Brown, Rachel; Hastie, B.

doi:10.1016/j.pcl.2011.06.003

Cited by 4 publications

(3 citation statements)

References 46 publications

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“…Parents clearly want to be involved in making medical decisions for their children, especially decision-making related to withdrawing from life support tools. As revealed by Knapp et al (2011), some studies show that family members frequently want to have meetings with health care staff and want to be involved in decision making. This is because parents of children at the end of life need to make difficult decisions about end-of-life care, therefore parents need information, resources and support to make this difficult decision (Villanueva, Murphy, Vickers, Harrop, & Dworzynski, 2016).…”

Section: Discussionmentioning

confidence: 99%

“…Terminal illness is a medical condition faced by an individual who will end up dead within a limited period of time (Rosdahl & Kowalski, 2012). Children and their families may encounter physical, emotional, psychosocial, and spiritual challenges throughout the children's course of illness (Knapp, Madden, Button, Brown, & Hastie, 2011). The response of each child to terminal illness is highly individualized, depending on the conditions experienced in terms of biological, psychological, social and spiritual areas.…”

Section: Introductionmentioning

confidence: 99%

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The Needs of Children with Terminal Illness: A Qualitative Study

Adistie

Lumbantobing

Maryam

2019

Child Care in Practice

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Purpose: The response of each child to terminal illness treatment is highly individual. This will certainly affect the level and type of perceived needs. This study is conducted to examine the needs of children with terminal illness from the perspective of nurses and parents. Method: A qualitative descriptive study was conducted in this research. The data collection process included in-depth interviews with eight nurses and eleven parents and focus group discussion with seven nurses. The sampling technique used purposive sampling. Data were analyzed using content analysis. Results: Based on the perspective of nurses and parents the needs of children with terminal illness in the biological aspect require the fulfilment of basic biological needs, a therapy programme with minimal side effects, intervention to improve comfort, optimal infection prevention, and on-going care. While in the psychological aspects, the children and parents need information, motivation, tools to overcome the anxiety of parents, parental involvement and education for children and families. In the social aspect there are the children's need to play, need for school, and need for social support. In the spiritual aspect, the children need to be able to pray, receive spiritual guidance, and also to have spiritual guidance to prepare for death, and die with dignity. Conclusion: The needs of a child with terminal illness are complex and require special attention from the nurse. Therefore, nurses have a very important role to be able to comprehensively assess the needs of children with terminal illness in an effort to improve the quality of life of children.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

The Needs of Children with Terminal Illness: A Qualitative Study

Adistie

Lumbantobing

Maryam

2019

Child Care in Practice

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“…To date, no published data are available on the Colorado or California programs. 15 Florida has published its experience with the demonstration program developed in 2005 and titled Partners in Care: Together for Kids (PIC:TFK). 16 In April 2006, the state of Massachusetts signed into law ''An Act Providing Access to Affordable, Quality, and Accountable Care.''…”

Section: Formation Of the Ppcnmentioning

confidence: 99%

Massachusetts' Pediatric Palliative Care Network: Successful Implementation of a Novel State-Funded Pediatric Palliative Care Program

Bona

Bates²,

Wolfe³

2011

Journal of Palliative Medicine

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Pediatric Palliative Care and Child Psychiatry: A Model for Enhancing Practice and Collaboration

Muriel

Wolfe

Block

2016

Journal of Palliative Medicine

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As the field of Pediatric Palliative Care continues to develop, it is important to consider the scope of practice and the utility of collaboration with other specialties, including child and adolescent psychiatry. The integration of psychiatry and palliative medicine has been explored in adult practice, but has not yet been elaborated in pediatrics. This article proposes a clinical model of care that highlights the overlapping and unique expertise that each discipline brings, in a continuum of collaboration, and proposes an integrated care model for the most complex patients and families. Case examples are used to define specific professional skills and roles, and to describe shared and distinct clinical approaches used by pediatric palliative care and child psychiatry. Effective collaboration provides opportunities for cross-disciplinary educational exchange and enhanced care of children and families with comorbid mental health issues and serious illness.

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Partnerships Between Pediatric Palliative Care and Psychiatry

Cited by 4 publications

References 46 publications

The Needs of Children with Terminal Illness: A Qualitative Study

The Needs of Children with Terminal Illness: A Qualitative Study

Massachusetts' Pediatric Palliative Care Network: Successful Implementation of a Novel State-Funded Pediatric Palliative Care Program

Pediatric Palliative Care and Child Psychiatry: A Model for Enhancing Practice and Collaboration

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