Paternity in men with cystic fibrosis: a retrospective survey in France

Duguépéroux, I.; Hubert, D.; Dominique, S.; Bellis, Gil; Braekeleer, Marc De; Durieu, I.

doi:10.1016/j.jcf.2006.03.004

Cited by 14 publications

(28 citation statements)

References 21 publications

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“…A total of 2335 resources were screened with 31 resources meeting our eligibility criteria. Using the inclusion criteria presented in Figure 1, 10 articles (Barker et al, 2017; Bianco et al, 2019; Cammidge et al, 2016; Duguépéroux et al, 2006; Hailey et al, 2019; Jessup et al, 2018; Schechter et al, 2013; Ullrich et al, 2015a, 2015b, 2015c) and three abstracts were retained (Downey et al, 2015; Frankl and Hjelte, 2004; Lauritsen and Pressler, 2008).…”

Section: Resultsmentioning

confidence: 99%

How do cystic fibrosis patients experience parenthood? A systematic review

et al. 2020

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Improved treatments for cystic fibrosis allow more patients to become parents. This article presents a systematic review of literature on cystic fibrosis patients’ experience of parenthood. Five databases (Cairn, Cochrane Library, PsycINFO, PubMed and ScienceDirect) produced 2335 documents that were screened. In total, 13 documents were retained and assessed with validated criteria. Five themes related to cystic fibrosis parenthood were discovered: population presentation, health and treatment adherence, adjustments, role of professionals and pressured temporality. Parenthood requires an important reorganisation of daily life in order to remain capable of childcare. Regardless of negative health impacts, cystic fibrosis parents have a positive outlook on parenthood.

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Section: Resultsmentioning

confidence: 99%

How do cystic fibrosis patients experience parenthood? A systematic review

et al. 2020

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“…On the other hand, the phenomenon of paternity in CF, related much more than maternity to fertility issues, has begun to emerge in the last few years. Five registry studies [46][47][48][49][50] have been published on this topic between 2002 and 2006 (Table 4). …”

Section: Pregnancy and Paternitymentioning

confidence: 99%

“…In a French study [50] patients who became fathers were compared with a group of CF patients who did not. 48 men had 69 children, a fourth of whom "reportedly" by natural conception, whereas 69% resorted to assisted reproduction techniques.…”

Section: Paternitymentioning

confidence: 99%

An overview of international literature from cystic fibrosis registries. Part 3. Disease incidence, genotype/phenotype correlation, microbiology, pregnancy, clinical complications, lung transplantation, and miscellanea

Salvatore

Buzzetti

Baldo

et al. 2011

Journal of Cystic Fibrosis

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This is the third article related to a review of the literature based on data from national cystic fibrosis (CF) patient registries up to June 2008 and covering a total of 115 published studies. It focuses on several topics: CF incidence, genotype/phenotype correlation, microbiology, pregnancy/paternity, clinical complications, lung transplantation, and others. Seventy seven papers meeting the inclusion criteria were found to be related to the topics listed above. Another seven studies, already evaluated in previous papers of this series, were recalled for specific topics. Incidence is described by several studies, results being quite different from one country to another and quite inhomogeneous among regions within the same country. Studies on genetics address the genotype/phenotype correlation and look for a predictive value of CFTR mutations in terms of clinical outcome, with controversial results. Papers on microbiology describe the clinical relevance of different pathogens and their role in the progress of CF lung disease. A few articles give information on the features of CF women undergoing a pregnancy and try to identify the ones associated with a better outcome. Studies on clinical complications discuss prevalence and the role of haemoptysis, pneumothorax, CF related diabetes, ABPA and cancer. Papers on lung transplantation focus on models able to improve the selection criteria for transplantation candidates and the factors linked to post transplantation survival. Finally, several studies deal with a number of interesting topics related to CF epidemiology: clinical trial methodology, quality of care comparison among countries and centers, relationship between diagnosis and age/gender, and evaluation of pharmacological therapy. On the whole, CF Registries have already contributed to important advances in the knowledge of the natural history of CF, establishing the foundations for future improvement in CF research and care.

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“…Young women desire discussion around sexual and reproductive health within their CF care setting, where it reportedly is not commonly addressed (Kazmerski et al., ). People with CF prefer such conversations starting early in adolescence (Fair et al., ), around 14 years being favoured (Duguépéroux et al., ). Such recommendations could alleviate shock and disappointment at untimely discovery reported by some participants in this study, who required information not punctuated by embarrassment but predicated by “initiate” and “offer” (Tuchman, Kalogiros, Forke, Schwarz, & Kinsman, ).…”

Section: Discussionmentioning

confidence: 99%

“…Parents with CF may display a lack of willingness or inability to find time for treatment (Edenbrough & Morton, ), acknowledged by several in this study. However, participants had generally “counted the cost” and were aware of potential outcomes (Duguépéroux et al., ) in spite of which their procreative desires remained high (Burden et al., ).…”

Section: Discussionmentioning

confidence: 99%