Pathway model of parental help seeking for adolescents experiencing first‐episode psychosis

Chen, Fang‐pei; Gearing, Robin E.; DeVylder, Jordan; Oh, Hans

doi:10.1111/eip.12159

Cited by 13 publications

(34 citation statements)

References 41 publications

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“…Linear regression analyses revealed that general mental‐health related stigma, and its sub‐factor of discrimination were significant predictors of DUP, even after adjusting for possible confounders. This is in line with the previous literature that has explored stigma and mental illness more broadly (Clement et al, ; Thornicroft, ) and qualitative papers that have observed this relationship in FEP (Anderson et al, ; Chen et al, ; Ferrari et al, ; Stewart, ). Discrimination in this study refers to the participant's perception of experiencing stigma, and may relate to lack of employment opportunities and negative reactions from others, including health professionals, family members and the criminal justice system.…”

Section: Discussionsupporting

confidence: 90%

“…A small number of studies have assessed this relationship specifically in first-episode psychosis (FEP), with a substantial proportion of literature being qualitative (Anderson, Fuhrer, & Malla, 2013;Chen, Gearing, DeVylder, & Oh, 2014;Connor et al, 2016;Ferrari et al, 2015;Stewart, 2013;Welsh & Tiffin, 2012). A recent systematic review of mental-health stigma and pathways to care in FEP or at-risk populations revealed only nine quantitative articles with no study exploring the relationship between stigma and help-seeking from a patient perspective in FEP (Gronholm, Thornicroft, Laurens, & Evans-Lacko, 2017).…”

Section: Introductionmentioning

confidence: 99%

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Stigma and access to care in first‐episode psychosis

Kular

Perry

Brown

et al. 2018

Early Intervention Psych

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Aim: Mental health-related stigma is considered a significant barrier to help-seeking and accessing care in those experiencing mental illness. Long duration of untreated psychosis is associated with poorer outcomes. The impact of stigma on the duration of untreated psychosis, in firstepisode psychosis remains unexplored. To examine the association between mental healthrelated stigma and access to care in people experiencing first-episode psychosis in Birmingham, UK. Methods:We collected data on a prospective cohort of first-episode psychosis. The StigmaScale was used as a measure of mental health-related stigma, and duration of untreated psychosis as a measure of delay in accessing care. We performed logistic and linear regression analyses to explore the relationship between mental health-related stigma and duration of untreated psychosis, adjusting for sex, age, educational level, religion and ethnicity.Results: On the 89 participants included in this study, linear regression analysis revealed that overall stigma and the discrimination sub-factor were significant predictors of longer duration of untreated psychosis, whereas logistic regression identified the disclosure sub-factor to be a significant predictor of longer duration of untreated psychosis.Conclusions: These findings demonstrate that stigmatizing views of mental illness from the patient's perspectives can result in delayed access to care. This emphasizes the importance of tackling mental health-related stigma to ensure early treatment and improved outcomes for people experiencing first-episode psychosis. K E Y W O R D Searly intervention, first-episode psychosis, help-seeking, psychosis, stigma

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Section: Discussionsupporting

confidence: 90%

Section: Introductionmentioning

confidence: 99%

Stigma and access to care in first‐episode psychosis

Kular

Perry

Brown

et al. 2018

Early Intervention Psych

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“…The final sample of CHR/FEP engagement studies consisted of 13 studies published between 2006 and 2015, all of which relied on qualitative methodology. Table provides more information about the methods of each study …”

Section: Methodsmentioning

confidence: 99%

“…Table 1 provides more information about the methods of each study. 12,13,[27][28][29][30][31][32][33][34][35][36][37][38] The second literature search targeted RCTs (i.e. 'CHR/FEP RCTs') evaluating psychosocial interventions, with or without pharmacotherapy, for CHR youth/young adults or youth/young adults with FEP.…”

Section: Literature Searchmentioning

confidence: 99%

The Common Elements of treatment engagement for clinically high‐risk youth and youth with first‐episode psychosis

Becker

Buckingham

Rith-Najarian

et al. 2015

Early Intervention Psych

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Aim: Without treatment, clinically high-risk (CHR) youth or youth with first-episode psychosis (FEP) have increased risk for significant complications from their illness; yet, treatment engagement among these youth is critically low. The purpose of this study was to examine engagement efforts with CHR/FEP youth to stimulate new ideas that might facilitate participation in services for this population.Methods: A literature review using distillation methods identified engagement practices reported in two bodies of literature. The first body of literature (i.e. 'CHR/FEP engagement') included 13 studies employing qualitative designs to explore consumer perspectives about treatment engagement practices in samples of CHR/FEP youth and their families. The second body of research (i.e. 'CHR/FEP RCTs') included 18 randomized controlled trials (RCTs) testing treatments for CHR/FEP youth and their families. Engagement practice frequencies were compared with the frequency of these practices within effective engagement interventions, as tested in 40 RCTs within the broader child and adolescent mental health literature (i.e. 'CAMH engagement').Results: Treatment attrition and attendance were the most frequent engagement outcomes measured in the CHR/FEP RCTs. There were notable efforts described in the CHR/ FEP RCTs towards engaging youth and families, yet CHR/FEP RCTs reportedly included only a small proportion of engagement practices described in either the CHR/FEP or CAMH engagement literatures. Conclusion:Results suggest there might be practices available to complement current efforts at engaging CHR/FEP youth in treatment, and that increased attention to the measurement of engagement outcomes could provide important information regarding engagement in a population with low treatment engagement rates.

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“…Diese Auffälligkeit verdeutlicht, dass eine Psychoedukation helfen könnte, sich mit dieser Problematik zu beschäftigen, diesbezüglich Sorgen zu objektivieren und damit zu relativieren. Die Notwendigkeit einer Psychoedukation gerade bei erstmaligem Kontakt mit der Gesundheitsfürsorge betonten auch Chen et al [24]. Dass ein Mangel an Psychoedukation im stationären klinischen Alltag besteht, stellten Franz et al [9] heraus.…”

Section: Diskussionunclassified

Erfassung des familienmedizinischen Interventionsbedarfs durch eine direkte Befragung von Patienten mit einer psychischen Störung

2020

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Zusammenfassung Hintergrund Die Belastung von Familien psychisch Kranker, besonders von deren Kindern, wird in der Literatur wenig beleuchtet. Gerade die Versorgungssituation Minderjähriger während eines stationären Aufenthalts eines Elternteils und die damit verbundenen Sorgen der Eltern sind wenig erforscht. Anliegen Erfassung der Versorgungssituation von Kindern und des familiären Interventionsbedarfs stationär behandelter Eltern mit psychischer Erkrankung. Methodik Im Rahmen einer prospektiven Studie wurden 100 Patienten mit den Hauptdiagnosen affektive Störung, psychische und Verhaltensstörung durch psychotrope Substanzen und Persönlichkeitsstörung mittels eines standardisierten Interviews und Fragebogens näher untersucht. Ergebnisse In der Mehrheit der Fälle haben die behandelnden Psychiater kein Wissen über die Versorgungssituation der Kinder ihrer Patienten. Der Großteil der Patienten gibt Sorgen um die Versorgung der Kinder während ihres stationären Aufenthalts an und wünscht sich eine Verbesserung der Hilfsmaßnahmen seitens der Klinik. Schlussfolgerung Die Arzt-Patienten-Interaktion und Kommunikation sollte optimiert werden, damit Interventionsbedarfe gezielt erfasst und individuelle Hilfsmaßnahmen angeleitet werden können.

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Pathway model of parental help seeking for adolescents experiencing first‐episode psychosis

Cited by 13 publications

References 41 publications

Stigma and access to care in first‐episode psychosis

Stigma and access to care in first‐episode psychosis

The Common Elements of treatment engagement for clinically high‐risk youth and youth with first‐episode psychosis

Erfassung des familienmedizinischen Interventionsbedarfs durch eine direkte Befragung von Patienten mit einer psychischen Störung

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