Pathways to Mental Well-Being in Young Carers: The Role of Benefit Finding, Coping, Helplessness, and Caring Tasks

Wepf, Hannah; Joseph, Stephen; Leu, Agnès

doi:10.1007/s10964-021-01478-0

Cited by 15 publications

(17 citation statements)

References 37 publications

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“…Subjective well-being, including good mental health, also considerably improved in the intervention group as earlier studies suggested [ 35 , 36 ]. Subjective well-being may gradually grow through the experience of benefit finding since benefit finding is closely related to better adaptation and sense making.…”

Section: Discussionsupporting

confidence: 75%

The Preliminary Efficacy of a Program to Facilitate Benefit Finding for People with Mental Illness: A Pilot Randomized Controlled Trial in Japan

2022

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Benefit finding is a concept that refers to finding positive changes or benefits through negative experiences from stressful life events. The present study aimed to develop a new intervention program to facilitate benefit finding for people with mental illness and examine its feasibility and preliminary efficacy from pilot data. We hypothesized that participants who joined the group-based intervention program would show progress in benefit finding, personal recovery, and well-being, as well as alleviated psychiatric symptoms and functional impairment, compared to participants in the control group. The participants in the intervention group joined in a new program which focuses on (1) cognitive–behavioral stress management and (2) own experiences, including what was found or realized through their lives since the onset of mental illness. The program used a workbook comprised of eight 90-min sessions, with one held every week. Twenty-four were found eligible and provided informed consent to participate in the study. About 46% were males, and the average age was 42.5 years. Around 63% were diagnosed with schizophrenia. We did not find significant differences over time by groups. However, medium to large effects in each scale or at least one subscale (i.e., benefit finding, personal recovery, subjective well-being, and psychiatric symptoms and functional impairment) were observed. Future studies with more participants from various settings would be necessary to exactingly examine the effectiveness of the intervention program.

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Section: Discussionsupporting

confidence: 75%

The Preliminary Efficacy of a Program to Facilitate Benefit Finding for People with Mental Illness: A Pilot Randomized Controlled Trial in Japan

2022

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“…Numerous studies have investigated the consequences of being a YC. They showed that assuming such a role can have positive and negative consequences on a physical, psychological, social or educational level [ 3 , 4 , 5 , 6 , 7 , 8 ]. Specifically, regarding education, some youths experience academic difficulties, including problems concentrating in class, failure to complete homework, absenteeism, discrimination, and school dropout [ 2 , 3 ].…”

Section: Introductionmentioning

confidence: 99%

Professionals’ Awareness of Young Carers in Schools: Results from a French Survey

Untas

Justin

Leu

et al. 2022

IJERPH

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Few studies have investigated professionals’ awareness of young carers (YCs). Therefore, the main aim of this study was to explore school professionals’ awareness of YCs. The secondary aim was to compare professionals’ responses according to their occupation. A total of 2658 professionals took part in this study by completing an online questionnaire. The results indicated that the mean for the perceived age for care beginning was 10.3 years old, with parents being perceived as the most frequent care recipient. The main caring activities reported were domestic chores, emotional support and sibling care, while care provided directly to the care recipient was perceived as less frequent. Many suggestions for improving the identification, referral and support of YCs were seen as relevant, but professionals were less supportive of suggestions for adjustments within schools. The key training needs centered around better identifying YCs and developing better knowledge of their difficulties. Differences were observed according to occupation, with administrative staff and teachers having less accurate perceptions than school counsellors as well as social and health professionals. This study shows that it can be difficult for school professionals to imagine a child providing care. Specific training, therefore, needs to be proposed according to school professionals’ occupations.

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“…The results of this study showed that the benefit finding of caregivers was a mediating variable of caregiver burden and caregiver mental health. Family caregivers of multiple cancer patients reported ( 49 , 50 ) changes in individual cognitive behaviors in response to negative events while accompanying cancer patients during treatment: appreciation and acceptance of life, improved interpersonal relationships, spiritual growth, and improved health behaviors. Benefit finding as a cognitive-behavioral process for individuals to cope with stress and negative events can help individuals to re-build positive coping mechanisms ( 14 , 51 , 52 ).…”

Section: Discussionmentioning

confidence: 99%

Impact of caregiver burden on caregiver mental health in patients with esophageal cancer: chain mediating effects of benefit finding and rumination, a cross-sectional study

Wen¹,

Liang²,

Ni³

et al. 2022

J Gastrointest Oncol

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Background: Cancer caregivers are the main supporter for the tumor patients, they not only need to provide daily nursing to the patients, but also suffering the pressure from economy, emotion and even family members. The mental health of tumor patient is mostly noticed, while not caregivers. The mental health of caregiver greatly affected the nursing quality and even the treatment outcomes. In the current study, the mechanisms underlying the links between caregiver burden, benefit finding, mental health, and rumination in those caring for people with esophageal cancer were examined. Methods:The study was using a convenience sampling, 166 esophageal cancer patients in 2 general hospitals in Jiangsu Province, China, and caregivers of patients were included after excluded the nonconforming patients. Data were collected using investigator-developed questionnaires, the Benefit Finding Scale (BFS), the Event-Related Rumination Inventory (ERRI), the Zarit Burden Interview (ZBI), and the Hospital Anxiety and Depression Scale (HADS) during May 2020 to December 2020. The results were analyzed by SPSS, and the chain mediating effect was analyzed by the the SPSS PROCESS Macro Model. Results:The study comprised 166 caregivers with an average age of (59.96±11.48) years, most of them were female (85.5%). The ZBI was positive correlated with HADS (r=0.882, P<0.01), and negative correlated with BFS (r=−0.873, P<0.01). Intrusive rumination and deliberate rumination in caregivers were negatively correlated (r=−0.901, P<0.01) and positive correlated (r=0.904, P<0.01) with BFS scores, respectively. Furthermore, research have discovered a chain mediation impact of benefit finding and rumination between caregiver burden and psychological well-being among carers of esophageal cancer patients. Conclusions:The findings of this study imply that benefit finding and rumination are crucial components of the coping strategy used to buffer against negative emotion (such as anxiety and depression). Therefore, the mental health of caregivers should also be noticed, and health care professionals should provide targeted interventions to increase the caregiver's level of benefit finding and promote deliberate ruminative thinking.

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Pathways to Mental Well-Being in Young Carers: The Role of Benefit Finding, Coping, Helplessness, and Caring Tasks

Cited by 15 publications

References 37 publications

The Preliminary Efficacy of a Program to Facilitate Benefit Finding for People with Mental Illness: A Pilot Randomized Controlled Trial in Japan

The Preliminary Efficacy of a Program to Facilitate Benefit Finding for People with Mental Illness: A Pilot Randomized Controlled Trial in Japan

Professionals’ Awareness of Young Carers in Schools: Results from a French Survey

Impact of caregiver burden on caregiver mental health in patients with esophageal cancer: chain mediating effects of benefit finding and rumination, a cross-sectional study

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