PATI: Patient accessed tailored information: A pilot study to evaluate the effect on preoperative breast cancer patients of information delivered via a mobile application

Foley, Niamh; OʼConnell, Emer; Lehane, Elaine; Livingstone, Vicki; Maher, Bridget; Kaimkhani, S.; Cil, Tulin; Relihan, N.; Bennett, Michael; Redmond, H. P.; Corrigan, Mark

doi:10.1016/j.breast.2016.08.012

Cited by 65 publications

(137 citation statements)

References 35 publications

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“…Similar perceptions were reported by patients in a smaller pilot RCT, where patients felt the mobile phone intervention allowed them to relax [38]. In contrast, a feasibility study of a mobile symptom monitoring intervention reported no change in anxiety levels [39] and one study suggested that information interventions may increase patients' anxiety [32]. A pilot RCT study of a tablet-based information provision intervention found that there was a significant increase in pre-operative fatalism in the intervention group and anxiety was significantly lower in the control group at seven days post operation [32].…”

Section: Reassurance and Reduced Anxietymentioning

confidence: 75%

“…The majority of studies reported that patients perceived clinicians' surveillance of, and response to, their symptoms as reassuring, however there were some mixed findings for the effects of information on levels of anxiety [32,33,36,38,39,40,41,46,47,48]. Qualitative interviews with 12 patients from a process evaluation of an RCT of a mobile phone, symptom-monitoring intervention reported that patients felt secure in the knowledge that clinicians were being alerted about their symptoms [41].…”

Section: Reassurance and Reduced Anxietymentioning

confidence: 99%

“…In contrast, a feasibility study of a mobile symptom monitoring intervention reported no change in anxiety levels [39] and one study suggested that information interventions may increase patients' anxiety [32]. A pilot RCT study of a tablet-based information provision intervention found that there was a significant increase in pre-operative fatalism in the intervention group and anxiety was significantly lower in the control group at seven days post operation [32]. This study suggests that increasing patients' knowledge of treatment could potentially increase rather than reduce their anxiety.…”

Section: Reassurance and Reduced Anxietymentioning

confidence: 99%

“…This study suggests that increasing patients' knowledge of treatment could potentially increase rather than reduce their anxiety. However, authors reported that some women were anxious about using a tablet computer with which they were unfamiliar and this may have increased their anxiety [32]. Additionally, the follow up period was short at seven days post-surgery.…”

Section: Reassurance and Reduced Anxietymentioning

confidence: 99%

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Use of Mobile Devices to Help Cancer Patients Meet Their Information Needs in Non-Inpatient Settings: Systematic Review (Preprint)

Richards¹,

Kinnersley²,

Brain³

et al. 2018

Preprint

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The use of mobile devices to help patients with cancer to meet their information needs in non-inpatient settings: A systematic review IntroductionIt is estimated that one in two people in Great Britain will develop some form of cancer during their lifetime [1]. In 2014, 357,000 new cases of cancer were diagnosed in the UK and the rate of incidence is increasing [2]. However, survival rates have doubled in the UK in the last 40 years and so, for many, cancer is a chronic condition with which they live for many years. Subsequently, there has been a shift from inpatient to outpatient and community cancer care, where patients are required to manage their condition at home, away from regular supervision by clinicians. This change in care requires patients to take a more active role in their treatment and survivorship. Patients are often faced with an uncertain future, unfamiliar tests and procedures, complex decisions about treatment options, treatment-related side-effects and lifestyle changes. In order to take a more active role in their care, and to cope with and manage these changes to daily life, patients require relevant information [3,4]. Research has established that patients have a wide range of information needs throughout their illness. Reviews of these studies suggest that patients generally want information on the extent of the disease, likelihood of cure and prognosis, available treatments, side-effects of treatment, self-care and return to normal life [5][6][7]. Other, less urgent, information needs include the impact of cancer and/or treatment on social activities, family and friends, mental wellbeing and sexual activity, and the risk of family and friends getting cancer [5,6]. There is evidence to suggest that information may help to reduce uncertainty, provide patients with a sense of control over their lives and support informed decision-making about treatment options [8,9]. While many people with cancer want as much information as possible about their condition [10], up to 93% of cancer patients across the US, Europe and the UK report having unmet information needs [11][12][13][14].The introduction of Smart technology has provided a new platform for delivering information-based interventions to patients. Approximately 93% of adults in the UK now personally own or use a mobile phone, of whom 71% specify that they own a Smartphone [15]. Similarly, over two thirds of adults in the UK now own or have access to a tablet computer [15]. Similar statistics of Smart device ownership and use have been reported in cancer patient populations [16,17]. Mobile devices therefore offer the potential for wide reach at the point of need for patients with cancer. Several existing systematic and scoping reviews have explored the general use of mobile devices for patients with cancer [18][19][20][21][22][23]. Findings from these reviews show that mobile interventions have been developed for a range of purposes, including the prevention, detection, and management of cancer; however, most interventions have been designed...

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Section: Reassurance and Reduced Anxietymentioning

confidence: 75%

Section: Reassurance and Reduced Anxietymentioning

confidence: 99%

Section: Reassurance and Reduced Anxietymentioning

confidence: 99%

Section: Reassurance and Reduced Anxietymentioning

confidence: 99%

See 2 more Smart Citations

Use of Mobile Devices to Help Cancer Patients Meet Their Information Needs in Non-Inpatient Settings: Systematic Review (Preprint)

Richards¹,

Kinnersley²,

Brain³

et al. 2018

Preprint

View full text Add to dashboard Cite

show abstract

“…A recent study [37] showed that mHealth apps caused anxiety among breast cancer patients waiting for surgery by sending them multiple reminders. mHealth and medical apps may generate different risks to patients and their safety, and these risks could be even more harmful in complex apps [38].…”

Section: Perils Of Mhealth In Shared Decision Makingmentioning

confidence: 99%

Are mobile health applications useful for supporting shared decision making in diagnostic and treatment decisions?

Rahimi¹,

Menear²,

Robitaille

2017

Global Health Action

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Mobile health (mHealth) applications intended to support shared decision making in diagnostic and treatment decisions are increasingly available. In this paper, we discuss some recent studies on mHealth applications with relevance to shared decision making. We discuss the potential advantages and disadvantages of using mHealth in shared decision making in various contexts, and suggest some directions for future research in this quickly expanding field.

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An exploration of the effects of information giving and information needs of women with newly diagnosed early‐stage breast cancer: A mixed‐method systematic review

2021

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Aim To review the information needs of women with newly diagnosed early‐stage breast cancer and the effects of information giving by measuring patient‐reported outcomes. Design A mixed‐method systematic review using PRISMA guidelines. Methods The major electronic nursing databases were searched from inception until 31 December 2019 using key terms. Included studies were assessed using the Crowes Critical Appraisal Tool. Results Four quantitative studies and two qualitative studies, comprising of 537 participants (age range from 25 to 98 years), were included for the ultimate qualitative synthesis of this review. There was high‐level evidence that demonstrated the prevalence of these groups of women's information needs and their improvement in fighting spirit and decrease in helplessness/hopelessness for information giving interventions; low‐level evidence of long‐term adjustment and well‐being improvement; and limited evidence indicating that inadequate information, including restricted information, too much information and conflicting information could cause some ramifications.

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PATI: Patient accessed tailored information: A pilot study to evaluate the effect on preoperative breast cancer patients of information delivered via a mobile application

Cited by 65 publications

References 35 publications

Use of Mobile Devices to Help Cancer Patients Meet Their Information Needs in Non-Inpatient Settings: Systematic Review (Preprint)

Use of Mobile Devices to Help Cancer Patients Meet Their Information Needs in Non-Inpatient Settings: Systematic Review (Preprint)

Are mobile health applications useful for supporting shared decision making in diagnostic and treatment decisions?

An exploration of the effects of information giving and information needs of women with newly diagnosed early‐stage breast cancer: A mixed‐method systematic review

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