Patient access to full general practice health records

Richards, Tessa; Coulter, Angela; McMillan, Brian; Hägglund, Maria

doi:10.1136/bmj.o3019

Cited by 3 publications

(3 citation statements)

References 7 publications

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“…In England, where access to information for patients varies greatly across practices, efforts to institute a nationwide system for open notes are foundering 7…”

Section: Workloadsmentioning

confidence: 99%

Access to records: Do open notes work for patients?

Silberner

2023

BMJ

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“…In England, where access to information for patients varies greatly across practices, efforts to institute a nationwide system for open notes are foundering 7…”

Section: Workloadsmentioning

confidence: 99%

Access to records: Do open notes work for patients?

Silberner

2023

BMJ

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“…These include poor information technology, security rules for ambulance release or medication management, staffing levels, the availability of appropriately trained staff and prison overcrowding [15]. For example with prison electronic health records it has been reported how limitations affecting interfacing with external systems may delay verification of medication records if the information needed is not available when required [19], and there are ongoing discussions across UK healthcare considering how inter-operability and sharing of health information (including with patients) could address challenges such as these [56][57][58]. However, such issues can have deleterious consequences on physical and psychological morbidity, high rates of mortality, self-harm, and substance misuse [10].…”

Section: Plos Onementioning

confidence: 99%

Defining avoidable healthcare-associated harm in prisons: A mixed-method development study

Keers

Wainwright²,

McFadzean³

et al. 2023

PLoS ONE

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Background Reducing avoidable healthcare-associated harm is a global health priority. Progress in evaluating the burden and aetiology of avoidable harm in prisons is limited compared with other healthcare sectors. To address this gap, this study aimed to develop a definition of avoidable harm to facilitate future epidemiological studies in prisons. Methods Using a sequential mixed methods study design we first characterised and reached consensus on the types and avoidability of patient harm in prison healthcare involving analysis of 151 serious prison incidents reported to the Strategic Executive Information System (StEIS) followed by in-depth nominal group (NG) discussions with four former service users and four prison professionals. Findings of the NG discussions and StEIS analysis were then synthesised and discussed among the research team and study oversight groups to develop an operational definition of avoidable harm in prison healthcare which was subsequently tested and validated using prison patient safety incident report data derived from the National Reporting and Learning System (NRLS). Results Analysis of StEIS incident reports and NG discussions identified important factors influencing avoidable harm which reflected the unique prison setting, including health care delivery issues and constraints associated with the secure environment which limited access to care. These findings informed the development of a new working two-tier definition of avoidable harm using appropriate and timely intervention, which included an additional assessment of harm avoidability taking into the account the prison regime and environment. The definition was compatible with the NRLS incident report narratives and illustrated how the prison environment may influence identification of avoidable harm and judgements of avoidability. Conclusions We have developed a working definition of avoidable harm in prison health care that enables consideration of caveats associated with prison environments and systems. Our definition enables future studies of the safety of prison healthcare to standardise outcome measurement.

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“…The development of a single consolidated digital medication record would also enable patients to access to their complete medicines record to corroborate and contribute to the accuracy of that record and to make decisions in relation to their own care. International evidence and experience broadly support patient access to electronic health records,3 although evidence on health outcomes is mixed 4. Digital and health literacy issues must be considered in the development of SDMRs,567 including measures to prevent the digital exclusion of groups such as older adults and some patients from ethnic minority backgrounds.…”

mentioning

confidence: 99%