Patient and family communication during consultation visits: The effects of a decision aid for treatment decision-making for localized prostate cancer

Abstract

Objective To analyze the effects of a decision aid on improving patients’ and family members’ information giving and question asking during consultations for prostate cancer treatment decision-making. Methods This study is a secondary analysis of archived audio-recorded real-time consultation visits with participants from a randomized clinical trial. Participants were randomly assigned into three groups: TD—intervention targeted patient-only; TS—intervention targeted patients and family members; and control—a handout on staying healthy during treatment. We conducted content analysis using a researcher-developed communication coding system. Using SAS 9.3, we conducted Chi-square/Fisher’s exact test to examine whether information giving and question asking among patients and family members varied by groups when discussing different content/topics. Results Compared with those in the TS and control groups, significantly higher percentages of participants in the TD group demonstrated information giving in discussing topics about diagnosis, treatment options, risks and benefits, and preferences; and engaged in question asking when discussing diagnosis, watchful waiting/active surveillance, risks and benefits, and preferences for treatment impacts. Conclusion Information support and communication skills training for patients were effective in improving communication during treatment decision-making consultations. Practice implications Providing information about prostate cancer and communication skills training empower patients and their family members.

Evaluating the clinical utility of early exome sequencing in diverse pediatric outpatient populations in the North Carolina Clinical Genomic Evaluation of Next-generation Exome Sequencing (NCGENES) 2 study: A randomized controlled trial

“…Codes are being developed after initial readings of the transcripts and adapted from prior studies (70)(71)(72)(73).…”

Evaluating the clinical utility of early exome sequencing in diverse pediatric outpatient populations in the North Carolina Clinical Genomic Evaluation of Next-generation Exome Sequencing (NCGENES) 2 study: a randomized controlled trial

“…The primary psychosocial outcome variables are parents’ perception of the patient-centeredness of the clinical consultation and coded communication behaviors (e.g., the number of questions parents asked during the appointment) from transcriptions of audio recorded at a child participants’ clinic visit [ 73 ]. Codes are being developed after initial readings of the transcripts and adapted from prior studies [ 90 – 93 ].…”

Interventions that Facilitate Shared Decision-Making in Cancers with Active Surveillance as Treatment Option: a Systematic Review of Literature

“…These DAs included written information, videos and/ or exercises offering patients the opportunity to consider what they deemed important regarding the treatment choice of their disease. Six studies used an informational booklet, containing information on the disease, different treatment options and the possible side effects of each treatment option [26,31,32,[38][39][40]. In four studies, a video presentation was the main tool of the DA [32,34,36,41].…”