Patient and Family Engagement in the United States: A Social Movement from Patient to Advocate to Partner

Maurer, Maureen; Dardess, Pam; Rouse, Tara Bristol

doi:10.1007/978-3-030-14101-1_5

Cited by 15 publications

(20 citation statements)

References 34 publications

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“…However, patients can be motivated to participate in patient safety activities through open communication with, positive feedback from and supportive relationships with healthcare providers. According to Maurer et al ,34 healthcare providers’ negative reactions can be a barrier to patient participation, while their active invitation for patients to participate can be a facilitator. Thus, healthcare providers must support and guide patients to participate.…”

Section: Discussionmentioning

confidence: 99%

“…A qualitative study conducted with patients and nursing staff members found similar results—that patients felt that healthcare providers were too busy asking questions or talking 20. Patients and families may feel overwhelmed by the healthcare system and highly technical information 34 38. Therefore, the organisational context within hospitals, including workflow processes and hospital polices, should be changed to be focused on patient-centred care and patient safety.…”

Section: Discussionmentioning

confidence: 99%

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Mixed-method investigation of health consumers’ perception and experience of participation in patient safety activities

2020

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ObjectivesThis study aimed to examine the factors influencing patient safety behaviours and to explore health customers’ experiences of patient participation in the healthcare system.DesignA mixed-method sequential explanatory design was employed using a survey and focus group interviews with health consumers.SettingThe study was conducted in South Korea using an online survey tool.ParticipantsSurvey data were collected from 493 Korean adults, aged 19 years or older, who had visited hospitals within the most recent 1 year. Focus group interviews were conducted in two groups of six participants each among those of the survey participants who agreed to participate in focus groups.Main outcome measuresThe survey measured the recognition of the importance of participation, extent of willingness to participate and experience of engaging in patient safety activities using a 4-point Likert scale. Qualitative data were collected through focus group interviews to explore health consumers’ experience of patient participation in hospital care, and the data were analysed using content analysis.ResultsThe average score for experience of participation in patient safety behaviours (2.13±0.63) was found to be lower than those of recognition of the importance of participation (3.27±0.51) and willingness to participate (2.62±0.52). By integrating the results of the quantitative and qualitative data analysis, the factors associated with the experience of engaging in healthcare behaviour included patient-related factors, illness-related factors, factors involving relationship between patients and healthcare providers, and healthcare environment factors.ConclusionsTo improve patient participation, it is necessary to create a healthcare environment in which patients can speak comfortably and to provide an education programme reflecting the patients’ needs. Also, healthcare providers must consider patients as partners for patient safety. Shared decision-making procedures and patient-centred care and patient safety policies should be established in hospitals.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Mixed-method investigation of health consumers’ perception and experience of participation in patient safety activities

2020

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“…Training nurses how to document while engaging the patient or caregiver in the documentation process may be helpful. 31…”

Section: Discussionmentioning

confidence: 99%

Impact of Home Care Admission Nurses' Goals on Electronic Health Record Documentation Strategies at the Point of Care

Yang

Bass

Bowles

et al. 2019

CIN: Computers, Informatics, Nursing

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Home care nurses have multiple goals at the patient admission visit. Electronic health records support some of these goals, including high-quality documentation, but nurses may not complete the electronic documentation at the point of care. To characterize admission nurses' practices at the point of care and lay the foundation for design recommendations, this study investigates admission nurses' documentation strategies with respect to entering electronic data and how nursing goals affect them. We conducted 10 observations of home care agency admissions with five admission nurses in rural Pennsylvania. We collected screenshots and recorded the admission process. We asked the nurses questions outside the point of care. We coded the nurses' strategies at the data-entry screen level. Using thematic analysis, we investigated the influence of nursing goals on documentation strategies. Subject matter experts reviewed our findings. Several goals affect nurses' documentation strategies: ensure data accuracy, reduce time in the patient's home, and prevent infection. Home care admission nurses distribute the electronic documentation temporally due to their goals. Nurses developed memory aids to support completion of the documentation after leaving the patients' homes. Design and training should support the distributed manner in which home care nurses document patient encounters.This is an open-access article distributed under the terms of the Creative Commons Attribution-Non Commercial-No Derivatives License 4.0 (CCBY-NC-ND), where it is permissible to download and share the work provided it is properly cited. The work cannot be changed in any way or used commercially without permission from the journal.

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“…2 Another kind of participation, but one that is out of scope here, is patient and family participation in a specific patient's care decisions and delivery (e.g., shared decision making). There are other less fine grained taxonomies of patient participation, e.g., as Patient, Advocate, or Partner (Maurer et al, 2019).…”

Section: Public Health Smartphone Apps For Marginalized Populations Wayne Zacharymentioning

confidence: 99%

The Patient Factor: Involving Patient and Family Stakeholders as Advisors, Co-Designers, Citizen Scientists, and Peers

Holden

Valdez

Anders

et al. 2020

Proceedings of the Human Factors and Ergonomics Society Annual

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In health and healthcare, patients, families, and other stakeholders increasingly participate in designing, executing, and evaluating initiatives likely to affect them. Stakeholder participant roles include: (1) Advisors, as in patient/family advisory councils; (2) Co-Designers, as in participatory design team members; (3) Citizen Scientists, as in community-based participatory research; and (4) Peers, as in peer reviewers of proposed research or decisions regarding the ethics of a planned research study. This panel assembles leading US and UK human factors experts to discuss how stakeholders can be and have been involved as participants in the design, implementation, or evaluation of health or healthcare related initiatives. Panelists describe: (a) how they have involved stakeholders, describing their methods, strategies, and results; (b) associated benefits they have observed; (c) needs that have surfaced and must be addressed for successful stakeholder participation; and (d) recommendations for human factors professionals planning to involve stakeholder participants.

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Patient and Family Engagement in the United States: A Social Movement from Patient to Advocate to Partner

Cited by 15 publications

References 34 publications

Mixed-method investigation of health consumers’ perception and experience of participation in patient safety activities

Mixed-method investigation of health consumers’ perception and experience of participation in patient safety activities

Impact of Home Care Admission Nurses' Goals on Electronic Health Record Documentation Strategies at the Point of Care

The Patient Factor: Involving Patient and Family Stakeholders as Advisors, Co-Designers, Citizen Scientists, and Peers

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