2019
DOI: 10.1016/j.ssci.2019.06.024
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Patient and family perspectives in resilient healthcare studies: A question of morality or logic?

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Cited by 36 publications
(40 citation statements)
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References 29 publications
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“…When healthcare professionals and the system accept patients' or next to kin's information and contribution as important for giving care, resilience can be supported. Consistent with this growing body of literature, we propose that resilience in healthcare cannot be conceptualised or explored without a clear understanding of the role of patients, users, families and other stakeholders in creating or co-creating resilience [23,24,39].…”
Section: Links Amongst Resilience Involvement and Collaborative Learmentioning
confidence: 78%
“…When healthcare professionals and the system accept patients' or next to kin's information and contribution as important for giving care, resilience can be supported. Consistent with this growing body of literature, we propose that resilience in healthcare cannot be conceptualised or explored without a clear understanding of the role of patients, users, families and other stakeholders in creating or co-creating resilience [23,24,39].…”
Section: Links Amongst Resilience Involvement and Collaborative Learmentioning
confidence: 78%
“…This can contribute in a direction of meeting overall governmental expectations of more involvement (Norwegian Ministry of Health & Care Services, ); and embrace the proactive approach suggested by next of kin in this study. Future research should further explore how next of kin experiences can influence and improve cancer care quality and safety (O'Hara, Canfield, & Aase, ). A possible way forward could be to develop a targeted questionnaire with this specific purpose, or to use the FAMCARE scale with a mixed‐method approach as we have demonstrated in this study in larger studies that compare several hospitals and in cross country studies.…”
Section: Discussionmentioning
confidence: 99%
“…The emotional burden is especially pertinent to the individual reactive involvement category discussed above (5,13,14). If user involvement in regulation is a question of morality or logic (8) then how regulators deal with the challenge of emotionality, or epistemic injustice (55), should be further investigated to understand the rationale and experiences of regulatory bodies.…”
Section: Regulators Used Methods In All Four Categories Identi Ed In mentioning
confidence: 99%
“…First, the expectation is that it will lead to better quality decisions across levels and thereby to better quality, and person-centred care. Second, as patients are the ones affected by decisions, they should have the opportunity to in uence decisions (1,2,3,4,5,6,7,8).…”
Section: Introductionmentioning
confidence: 99%