Patient and family perspectives regarding the use of telehealth for cystic fibrosis care

Shanthikumar, Shivanthan; Moore, Emily; Corda, Jen; Reardon, Nicola; Louey, Stef; Frayman, Katherine B; Harrison, Jo; Ranganathan, Sarath

doi:10.1002/ppul.25262

Cited by 15 publications

(28 citation statements)

References 5 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Aside from exercise services, telehealth has emerged as a promising tool for delivery of CF care, with single-centre descriptions of changing practice detailing acceptance and challenges of such an approach [11,12]. This adoption of digital services aligns with the long-term NHS strategy of utilising more technology in routine care [13], as well as the recent 'Carter Report'; a review of efficiency and productivity within the NHS, that highlighted the need for enhanced digital solutions [14].…”

Section: Discussionmentioning

confidence: 99%

The impact of COVID-19 upon the delivery of exercise services within cystic fibrosis clinics in the United Kingdom

Tomlinson

Saynor

Stevens

et al. 2021

Preprint

View full text Add to dashboard Cite

The COVID-19 pandemic has resulted in unprecedent change to clinical practice. As the impact upon delivery of exercise services for people with cystic fibrosis (CF) in the UK was unknown, this was characterised via a national survey. In total, 31 CF centres participated. Principal findings included a significant reduction in exercise testing, and widespread adaptation to deliver exercise training using telehealth methods. Promisingly, 71% stated that they would continue to use virtual methods of engaging patients in future practice. This does, however, highlight a need to develop sustainable and more standardised telehealth services further to manage patients moving forwards.

show abstract

Section: Discussionmentioning

confidence: 99%

The impact of COVID-19 upon the delivery of exercise services within cystic fibrosis clinics in the United Kingdom

Tomlinson

Saynor

Stevens

et al. 2021

Preprint

View full text Add to dashboard Cite

show abstract

“…Other concerns were that there was less engagement with the CF care team, no staff-collected airway sample and concerns about privacy. A significant advantage identified was the decreased cross-infection risk, especially in the context of increasing detections of infection with non-tuberculous mycobacteria in our service [6] .…”

Section: Commentarymentioning

confidence: 99%

“…A local satisfaction survey in a pediatric setting identified that nearly all respondents (97.5%) reported being able to speak to all the clinicians they wanted to during a consultation and that respondents were predominantly satisfied (46.8%), or very satisfied (44.3%) with TH clinics. Just over half (51.7%) of patients aged 6 years or older had access to a home spirometer (Easy on-PC [1] , [2] , [3] , [4] , [5] , [6] , [7] , NDD Medical Technologies, Zurich Switzerland). The majority were able to obtain an airway sample at home (88.6%).…”

Section: Commentarymentioning

confidence: 99%

“…TH is currently being used for clinic consultations, education, research discussion, annual review discussions, physical therapy technique training, mental health screening and well-being interactions, additional pulmonary function assessments and acute clinical consultation for potential exacerbations. In terms of the future role of TH clinics, the majority (87.3%) of respondents wanted to consider TH clinics beyond the COVID-19 pandemic [6] . The main concern expressed by stakeholders was that there was no physical examination.…”

Section: Commentarymentioning

confidence: 99%

See 1 more Smart Citation

Evaluating barriers to and promotors of telehealth during the COVID-19 pandemic at U.S. cystic fibrosis programs (Commentary)

Ranganathan

2021

Journal of Cystic Fibrosis

View full text Add to dashboard Cite

“…Findings at other CF centers suggest that patients and families are most concerned with lack of physical exam and pulmonary function testing but that patient-reported benefits include reduced time spent traveling, reduced time away from school or work, and reduced risk of infection. 21 Overall, patient satisfaction with telehealth is high. We anticipate that this style of appointment will continue to be offered, and it will be important to define roles for CF care team members in this setting.…”

Section: Practice Implicationsmentioning

confidence: 99%

Virtual medication tours with a pharmacist as part of a cystic fibrosis telehealth visit

Warda¹,

Rotolo²

2021

Journal of the American Pharmacists Association

View full text Add to dashboard Cite

BACKGROUND As a result of the COVID-19 pandemic, institutions needed innovative solutions to provide care. With implementation of telehealth, the cystic fibrosis pharmacist was able to incorporate a virtual medication tour during appointments. OBJECTIVE The purpose of our study was to describe the uptake and impact of pharmacist-led virtual medication tours during telehealth visits in the CF clinic setting. PRACTICE DESCRIPTION Prior to the COVID-19 pandemic, the cystic fibrosis pharmacist participated in in-person multidisciplinary team visits to complete medication history reconciliation, assess adherence, assess efficacy and address possible side effects of medications, and work collaboratively with the CF care team and patient to create therapeutic plans. The virtual medication tour described in this study was completed in addition or as a complement to these pre-existing pharmacist roles and responsibilities. PRACTICE INNOVATION Patients seen via telehealth visit were asked to provide a virtual tour of their medications. The pharmacist completed medication history and evaluated whether or not storage conditions were appropriate in regards to temperature, humidity, light exposure, and accessibility to children. EVALUATION METHODS The pharmacist recorded findings from the virtual medication tours, and made interventions when appropriate. Descriptive statistics were used for analysis. RESULTS Of 20 patients seen via telehealth for a quarterly visit during the first 3 months after implementation, 13 were willing to participate in a virtual medication tour. Prior to the visit, 25% had information missing from their medication list. Virtual medication tour allowed for resolution of this information 80% of the time. Three of the four participating patients with a child under 12 years old had medications stored in a location accessible to children. PRACTICE IMPLICATIONS AND CONCLUSION A virtual medication tour led by a pharmacist can be successfully incorporated into telehealth visits, and was accepted by a majority of patients. Most patients stored medications appropriately, but might benefit from education on poison prevention practices.

show abstract

Patient and family perspectives regarding the use of telehealth for cystic fibrosis care

Cited by 15 publications

References 5 publications

The impact of COVID-19 upon the delivery of exercise services within cystic fibrosis clinics in the United Kingdom

The impact of COVID-19 upon the delivery of exercise services within cystic fibrosis clinics in the United Kingdom

Evaluating barriers to and promotors of telehealth during the COVID-19 pandemic at U.S. cystic fibrosis programs (Commentary)

Virtual medication tours with a pharmacist as part of a cystic fibrosis telehealth visit

Contact Info

Product

Resources

About