Patient and Provider Cocreation of Mobile Texting Apps to Support Behavioral Health: Usability Study

Arevian, Armen C.; O’Hora, Jennifer; Rosser, James C.; Mango, Joseph; Miklowitz, David J.; Wells, Kenneth B.

doi:10.2196/12655

Cited by 17 publications

(12 citation statements)

References 24 publications

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“…Other often used terms were community based participatory research (N=9) [48, 52–54, 56, 70, 71, 93, 94], co-creation (N=8) [43, 46, 58, 62, 73, 97, 107, 120], public and patient involvement (N=7) [67, 79, 90, 102, 109, 111, 114], participatory action research (N=5) [59, 68, 108, 112, 122], and user centered design (N=4) [34, 89, 92, 115]. Citizen science was only used in two records [49, 118], and usability study [47], co-production [51], human centered participatory design [84], social Justice design [87], symposium [95], community oriented approach [98], and participation in research [116] were all only used once to describe the research design.…”

Section: Resultsmentioning

confidence: 99%

Citizen involvement in research on technological innovations for health, care or well-being: a scoping review

Leersum

Jaschinski

Bults

et al. 2022

Preprint

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Citizen science can be a powerful approach to foster the successful implementation of technological innovations in health, care or well-being. Involving experience experts as co-researchers or co-designers of technological innovations facilitates mutual learning, community building, and empowerment. By utilizing the expert knowledge of the intended users, innovations have a better chance to get adopted and solve complex health-related problems. As citizen science is still a relatively new practice for health and well-being, little is known about effective methods and guidelines for successful collaboration. This scoping review aims to provide insight in 1) the levels of citizen involvement in current research on technological innovations for health, care or well-being, 2) the best practices and used participatory methodologies, and 3) lesson’s learned by the researchers. The search was performed in SCOPUS in January 2021 and included peer-reviewed journal and conference papers published between 2016 and 2020. The final selection (N=83) was limited to empirical studies that had a clear focus on technological innovations for health, care or well-being and involved citizens at the level of collaboration or higher. Our results show a growing interest in citizens science as an inclusive research approach. Citizens are predominantly involved in the design phase of innovations and less in the preparation, data-analyses or reporting phase. Eight records had citizens in the lead in one of the research phases. Researcher use different terms to describe their methodological approach including participatory design, co-design, community based participatory research, co-creation, public and patient involvement, partcipatory action research, user-centered design and citizen science. Our selection of best practice cases shows that succesfull citizen science projects develope a structural and longtidutinal partnership with their collaborators, use a situated and adaptive research approach, and have researchers that are willing to give-up tradional power dynamics and engage in a mutual learning experience.

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Section: Resultsmentioning

confidence: 99%

Citizen involvement in research on technological innovations for health, care or well-being: a scoping review

Leersum

Jaschinski

Bults

et al. 2022

Preprint

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“…User experience surveys were collected after completing the 2D and 3D measures, and physical measurements were completed last. The data for the Somatomap app and survey was collected on the Chorus app platform 38 . Chorus is a visual development platform supporting the creation of web-based digital health applications that can be accessed on various devices including mobile, tablet and desktop.…”

Section: Methodsmentioning

confidence: 99%

Visual mapping of body image disturbance in anorexia nervosa reveals objective markers of illness severity

Ralph‐Nearman

Arevian

Moseman

et al. 2021

Sci Rep

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Body image disturbance (BID) is a core feature of eating disorders, for which there are few objective markers. We examined the feasibility of a novel digital tool, “Somatomap”, to index BID related to anorexia nervosa (AN) severity. Fifty-five AN inpatients and 55 healthy comparisons (HC) outlined their body concerns on a 2-Dimensional avatar. Next, they indicated sizes/shapes of body parts for their current and ideal body using sliders on a 3-Dimensional avatar. Physical measurements of corresponding body parts, in cm, were collected for reference. We evaluated regional differences in BID using proportional z-scores to generate statistical body maps, and multivariate analysis of covariance to assess perceptual discrepancies for current body, ideal body, and body dissatisfaction. The AN group demonstrated greater regional perceptual inaccuracy for their current body than HC, greater discrepancies between their current and ideal body, and higher body dissatisfaction than HCs. AN body concerns localized disproportionately to the chest and lower abdomen. The number of body concerns and perceptual inaccuracy for individual body parts was strongly associated with Eating Disorder Examination Questionnaire (Global EDE-Q) scores across both groups. Somatomap demonstrated feasibility to capture multidimensional aspects of BID. Several implicit measures were significantly associated with illness severity, suggesting potential utility for identifying objective BID markers.

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“…The research team developed the facilitator topic guide from literature in this area and findings from a previous national survey on patient preferences in the management of hypertension conducted in Canada using the James Lind Alliance approach [11] (see Supplementary Material). Focus group sessions included barriers/facilitators to patient data monitoring.…”

Section: Semi-structured Focus Groupsmentioning

confidence: 99%

“…To ensure that data tracking tools for virtual care are usable, relevant, and engaging for end-users, both patients' and providers' views must be considered in designing digital tools. Including views from both patients and hypertension specialists is critical to cocreating digital health tools as these groups tend to have differing views on priorities in hypertension management [10,11] , and poor physician engagement is associated with low uptake of digital health tools in clinical care [12,13] . This study aimed to explore patient and hypertension specialist care provider perceptions of data monitoring including the use of PROMs to inform the design of digital health tools for hypertension management and to understand the differences and similarities between patient and specialist provider perspectives.…”

Section: Introductionmentioning

confidence: 99%

Digital health technology and hypertension management: a qualitative analysis of patient and specialist provider preferences on data tracking

Chow,

Forde,

Sawatzky

et al. 2022

Conn Health

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Aim: Digital health for hypertension management holds potential for improving the quality of care but requires long-term patient engagement to track health data. We explored patient and hypertension specialist perceptions of clinical utility for data tracking including standardized patient-reported outcome measures (PROMs), home blood pressure (BP) measurement, and other health metrics. Methods: Participants reviewed general health status, patient satisfaction, and hypertension-specific PROMs. Semi-structured focus groups (n = 15) with nine patients with hypertension and six hypertension specialists were audio-recorded and thematically analyzed. Results: Key themes identified from patients included: (1) comfort and appreciation of home BP monitoring but only during important periods of hypertension care; (2) preference for tracking new symptoms and medication side effects; (3) patients perceived tracking other health measures including general PROMs, diet and exercise as less relevant to their care; and (4) visually represented BP trends evaluating associations with changes in other health parameters were perceived as useful. Key themes identified by hypertension specialists included: (1) concerns about patient digital literacy; (2) utilizing visual representations of long-term BP data trends for patient empowerment; and (3) unclear relevance of tracking medication adverse effects, PROMs, and other non-BP health metrics. Conclusion: Patients and hypertension specialists had similar perspectives for most aspects of data monitoring but differed in preference for a few aspects that were germane to patients, including monitoring medication adverse effects and symptoms. Including views on data tracking from both patients and providers are essential for designing digital tools to optimize hypertension management.

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Patient and Provider Cocreation of Mobile Texting Apps to Support Behavioral Health: Usability Study

Cited by 17 publications

References 24 publications

Citizen involvement in research on technological innovations for health, care or well-being: a scoping review

Citizen involvement in research on technological innovations for health, care or well-being: a scoping review

Visual mapping of body image disturbance in anorexia nervosa reveals objective markers of illness severity

Digital health technology and hypertension management: a qualitative analysis of patient and specialist provider preferences on data tracking

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