Patient and public involvement in health technology assessment: update of a systematic review of international experiences

Gagnon, Marie‐Pierre; Dipankui, Mylène Tantchou; Poder, Thomas G.; Payne-Gagnon, Julie; Mbemba, Gisèle Irène Claudine; Beretta, Valentina

doi:10.1017/s0266462321000064

Cited by 37 publications

(31 citation statements)

References 54 publications

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“…The “invited spaces” for patient participation have been set by HTA policy and practice and leave significant opportunities for broadening through mutual discussions ( 22 ). Public representatives have a place on the appraisal committees in a number of countries ( 17 , 23 , 24 ) and in some healthcare systems patients are payers in addition to being the focal point of what healthcare is about. As payers, patients are legitimate stakeholders within HTA.…”

Section: Involving Patients In Htamentioning

confidence: 99%

“…Co-creation with patients can add to the legitimacy of the HTA process for the common good (14). Currently patient involvement is limited in its scope and barriers to their involvement include the lack of information to patients and public about HTA and the lack of policies (15)(16)(17), and the need for culture change (18)(19)(20)(21). The "invited spaces" for patient participation have been set by HTA policy and practice and leave significant opportunities for broadening through mutual discussions (22).…”

Section: Involving Patients In Htamentioning

confidence: 99%

See 1 more Smart Citation

Can We Afford to Exclude Patients Throughout Health Technology Assessment?

Wale¹,

Chandler

Collyar³

et al. 2022

Front. Med. Technol.

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Health technology assessment (HTA) is intended to determine the value of health technologies and, once a technology is recommended for funding, bridge clinical research and practice. Understanding the values and beliefs expressed by patients and health professionals can help guide this knowledge transfer and work toward managing the expectations of end users. We gathered patient and patient group leader experiences to gain insights into the roles that patients and patient advocacy groups are playing. We argue that through partnerships and co-creation between HTA professionals, researchers and patient advocates we can strengthen the HTA process and better align with service delivery where person-centered care and shared decision making are key elements. Patient experiences and knowledge are important to the democratization of evidence and the legitimacy of HTAs. Patient preference studies are used to balance benefits with potential harms of technologies, and patient-reported outcomes (PROs) can measure what matters to patients over time. A change in culture in HTA bodies is occurring and with further transformative thinking patients can be involved in every step of the HTA process. Patients have a right to be involved in HTAs, with patients' values central to HTA deliberations on a technology and where patients can provide valuable insights to inform HTA decision-making; and in ensuring that HTA methodologies evolve. By evaluating the implementation of HTA recommendations we can determine how HTA benefits patients and their communities. Our shared commitment can positively effect the common good and provide benefits to individual patients and their communities.

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Section: Involving Patients In Htamentioning

confidence: 99%

Section: Involving Patients In Htamentioning

confidence: 99%

Can We Afford to Exclude Patients Throughout Health Technology Assessment?

Wale¹,

Chandler

Collyar³

et al. 2022

Front. Med. Technol.

View full text Add to dashboard Cite

show abstract

“…In the first phase, Silva (10) showed the gradual implementation of PPI actions by the Brazilian HTA agency. However, like many other HTA bodies, the strategies do not go beyond consultation level (22). Considering the current trend to broaden the spectrum of involvement to increase genuine participation (6) and the findings from this study, the involvement strategies already used in Brazil should be expanded, for an earlier, more direct, and active participation.…”

Section: Discussionmentioning

confidence: 87%

A framework for action to improve patient and public involvement in health technology assessment

Silva

Facey

Bryan

et al. 2021

Int J Technol Assess Health Care

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Background Patient and public involvement (PPI) in the Brazilian Health Technology Assessment (HTA) process occurs in response to a legislative mandate for “social participation.” This resulted in some limited patient participation activities, and, therefore, a more systematic approach was needed. The study describes the development of a suggested framework for action to improve PPI in HTA. Methods This work used formal methodology to develop a PPI framework based on three-phase mixed-methods research with desktop review of Brazilian PPI activities in HTA; workshop, survey, and interviews with Brazilian stakeholders; and a rapid review of international practices to enact effective patient involvement. Patient partners reviewed the draft framework. Results According to patient group representatives, their involvement in the Brazilian HTA process is important but could be improved. Different stakeholders perceived barriers, identified values, and made suggestions for improvement, such as expansion of communication, capacity building, and transparency, to support more meaningful patient involvement. The international practices identified opportunities for earlier, more active, and collaborative PPI during all HTA stages, based on values and principles that are relevant for Brazilian patients and the public. These findings were synthesized to design a framework that defines and systematizes actions to support PPI in Brazil, highlighting the importance of evaluating these strategies. Conclusions Since the publication of this framework, some of its suggestions are being implemented in the Brazilian HTA process to improve PPI. We encourage other HTA organizations to consider a systematic and planned approach with regular evaluation when pursuing or strengthening involvement practices.

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“…First, PPI in healthcare innovation has taken a number of approaches, and the majority of the studies reviewed focused on process and service innovation ( n = 62, 71%), while only seven studies (8%) focused on technological innovation and five (6%) on systems innovation. In terms of technological innovation, this trend is reflected in Gagnon et al's 103 review of PPI in health technology assessment, where the use of PPI in the development of technology is recognized as a relatively recent growth area. Second, the studies reviewed focused on PPI in earlier stages of the innovation journey in comparison to later stages, reflecting PPI trends in general 4,5 .…”

Section: Discussionmentioning

confidence: 99%

“…Caution and ambivalence towards the use of PPI in health technology development have long been noted 106 . Recently, it was identified that the use of PPI is increasing in this area of innovation; however, challenges continue, including lack of public knowledge/awareness and lack of guidance on how to use PPI in health technology innovation 103 . It has been suggested that the slow take‐up of PPI in this field of innovation is due to the dual roles of the health technology community to contribute to both research and policy‐making 107 .…”

Section: Discussionmentioning

confidence: 99%

Mapping the role of patient and public involvement during the different stages of healthcare innovation: A scoping review

Cluley

Ziemann

Feeley

et al. 2022

Health Expectations

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Background: Patient and public involvement (PPI) has become increasingly important in the development, delivery and improvement of healthcare. PPI is used in healthcare innovation; yet, how it is used has been under-reported. The aim of this scoping review is to identify and map the current available empirical evidence on the role of PPI during different stages of healthcare innovation. Methods:The scoping review was conducted in accordance with PRISMAScR and included any study published in a peer-reviewed journal between 2004 and 2021 that reported on PPI in healthcare innovation within any healthcare setting or context in any country. The following databases were searched: Medline, EMBASE, CINAHL, PsycInfo, HMIC and Google Scholar. We included any study type, including quantitative, qualitative and mixed-method studies. We excluded theoretical frameworks, conceptual, scientific or grey literature as well as discussion and opinion papers.Results: Of the 87 included studies, 81 (93%) focused on or were conducted by authors in developed countries. A wide range of conditions were considered, with more studies focusing on mental health (n = 18, 21%) and cancer care (n = 8, 9%). The vast majority of the studies focused on process and service innovations (n = 62, 71%). Seven studies focused on technological and clinical innovations (8%), while 12 looked at both technological and service innovations (14%). Only five studies examined systems innovation (5%) and one study looked across all types of innovations (1%). PPI is more common in the earlier stages of innovation, particularly problem identification and invention, in comparison to adoption and diffusion. Conclusion:Healthcare innovation tends to be a lengthy process. Yet, our study highlights that PPI is more common across earlier stages of innovation and focuses mostly on service innovation. Stronger PPI in later stages could support the adoption and diffusion of innovation.

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Patient and public involvement in health technology assessment: update of a systematic review of international experiences

Cited by 37 publications

References 54 publications

Can We Afford to Exclude Patients Throughout Health Technology Assessment?

Can We Afford to Exclude Patients Throughout Health Technology Assessment?

A framework for action to improve patient and public involvement in health technology assessment

Mapping the role of patient and public involvement during the different stages of healthcare innovation: A scoping review

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