Patient attitudes towards kidney transplant listing: qualitative findings from the ATTOM study

Calestani, Melania; Tonkin‐Crine, Sarah; Pruthi, Rishi; Leydon, Geraldine; Ravanan, Rommel; Bradley, J. Andrew; Tomson, Charles; Forsythe, John; Oniscu, Gabriel C.; Bradley, Clare; Cairns, John; Dudley, Christopher; Watson, Chris; Draper, Heather; Rj, Johnson; Metcalfe, Wendy; Fogarty, Damian; Roderick, Paul

doi:10.1093/ndt/gfu188

Cited by 39 publications

(110 citation statements)

References 17 publications

Supporting

Mentioning

106

Contrasting

Unclassified

Order By: Relevance

“…Based on the findings of this study, and in line with existing research (Calestani et al, 2014), it is recommended that waiting list patients be given more clarity around how the list works and their continued status on it; and that clinicians offer talking therapies to waiting list and transplant patients so that they have space to work through any issues arising from receiving a kidney from a deceased donor.…”

Section: Thinking About Receiving a Kidney From A Deceased Donormentioning

confidence: 64%

“…Existing work in this area has found uncertainty to be of concern to those on the waiting list for organs (NHS, 2013, Calestani et al, 2014, Weems and Patterson, 1989, Martin et al, 2006. Just as James, Jenny and Wendy describe, patients waiting for a liver transplant (Moran et al, 2009) found that a lack of contact from the team 14 left them feeling forgotten.…”

Section: Adjusting To the Uncertainty Of Waitingmentioning

confidence: 99%

“…The literature that does exist suggests a range of potentially psychologically distressing factors for those waiting for a kidney from a deceased donor. Several papers have found that those on the waiting list feel they do not have enough information about how it works, leading to a sense of confusion (Martin et al, 2010, Calestani et al, 2014, Weems and Patterson, 1989 A qualitative report into life on the waiting list (Sque et al, 2010) suggests that people who are waiting for a kidney from a deceased donor are striving for normality, albeit a normality that is constrained by factors including dialysis (Sque et al, 2010). Many participants didn't think about the list; however, it came back to mind when participants faced psychological challenges such as being called as a back-up recipient for a kidney.…”

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

Waiting for a kidney from a deceased donor: an interpretative phenomenological analysis

Spiers

Smith

2015

Psychology, Health & Medicine

View full text Add to dashboard Cite

Section: Thinking About Receiving a Kidney From A Deceased Donormentioning

confidence: 64%

Section: Adjusting To the Uncertainty Of Waitingmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Waiting for a kidney from a deceased donor: an interpretative phenomenological analysis

Spiers

Smith

2015

Psychology, Health & Medicine

View full text Add to dashboard Cite

“…This applies at mild-to-moderate stages in order to discuss risk stratification and inform self-management efforts including smoking cessation and weight loss (if overweight or obese) and the potential need for pharmacological intervention. It is also vital in more advanced CKD where informed decisions are needed with regard to dialysis and transplantation and in decisions to opt for palliative treatment 93. In this context, the evidence that health literacy may be poor in a high proportion of people with CKD is of concern 94.…”

Section: Managing People With Ckdmentioning

confidence: 99%

Chronic kidney disease: identification and management in primary care

Fraser¹,

Blakeman²

2016

POR

126

View full text Add to dashboard Cite

Chronic kidney disease (CKD) is an important and common noncommunicable condition globally. In national and international guidelines, CKD is defined and staged according to measures of kidney function that allow for a degree of risk stratification using commonly available markers. It is often asymptomatic in its early stages, and early detection is important to reduce future risk. The risk of cardiovascular outcomes is greater than the risk of progression to end-stage kidney disease for most people with CKD. CKD also predisposes to acute kidney injury – a major cause of morbidity and mortality worldwide. Although only a small proportion of people with CKD progress to end-stage kidney disease, renal replacement therapy (dialysis or transplantation) represents major costs for health care systems and burden for patients. Efforts in primary care to reduce the risks of cardiovascular disease, acute kidney injury, and progression are therefore required. Monitoring renal function is an important task, and primary care clinicians are well placed to oversee this aspect of care along with the management of modifiable risk factors, particularly blood pressure and proteinuria. Good primary care judgment is also essential in making decisions about referral for specialist nephrology opinion. As CKD commonly occurs alongside other conditions, consideration of comorbidities and patient wishes is important, and primary care clinicians have a key role in coordinating care while adopting a holistic, patient-centered approach and providing continuity. This review aims to summarize the vital role that primary care plays in predialysis CKD care and to outline the main considerations in its identification, monitoring, and clinical management in this context.

show abstract

“…Similarly, in focus groups of kidney transplant candidates, patients reported wanting more information that not only is presented concisely but is also relevant to their particular disease state. 15,16 …”

Section: Discussionmentioning

confidence: 99%

Beyond “Median Waiting Time”

Hart¹,

Salkowski

Snyder³

et al. 2016

Transplantation

View full text Add to dashboard Cite

Background Median historical time to kidney transplant is misleading because it does not convey the competing risks of death or removal from the waiting list. We developed and validated a competing risk model to calculate likelihood of outcomes for kidney transplant candidates and demonstrate how this information differs from median time to transplant. Methods Data were obtained from the US Scientific Registry of Transplant Recipients. The retrospective cohort included 163 636 adults listed for kidney transplant before December 31, 2011. Predictors were age, sex, blood type, calculated panel-reactive antibodies, donation service area, dialysis duration, comorbid conditions, and body mass index. Outcomes were deceased or living donor transplant, death or removal from the list due to deteriorating medical condition, or removal due to other reasons. We calculated hazards for the possible outcomes, then the cumulative incidence function for a given candidate using competing risk methodology. Discrimination and calibration were assessed through C statistics and calibration plots for each cause-specific Cox proportional hazard model. Results C statistics ranged from 0.64 to 0.73. Calibration plots showed good calibration. The competing risk model shows probability of all possible outcomes for up to 12 years given a candidate's characteristics, contrasted with the median waiting time for that candidate's donation service area. Conclusions A competing risk model conveys more relevant information than the median waiting time for a given transplant center. This model will be updated to create a calculator reflecting the most recent outcomes and changes in allocation policy. It illustrates the conversations that should be initiated with transplant candidates.

show abstract

Patient attitudes towards kidney transplant listing: qualitative findings from the ATTOM study

Cited by 39 publications

References 17 publications

Waiting for a kidney from a deceased donor: an interpretative phenomenological analysis

Waiting for a kidney from a deceased donor: an interpretative phenomenological analysis

Chronic kidney disease: identification and management in primary care

Beyond “Median Waiting Time”

Contact Info

Product

Resources

About