Patient-Centered Goal Setting in Developmental Therapy: Discordance between Documented Goals and Caregiver-Perceived Goals

Angeli, Jennifer M.; Harpster, Karen; Huijs, Lobke; Seid, Michael; Sheehan, Amber; Schwab, Sarah M.

doi:10.1097/pq9.0000000000000199

Cited by 15 publications

(13 citation statements)

References 33 publications

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“…Yet, while most occupational therapists perceived that their goal setting was family-centred, some child and parent participants felt it took a more therapist-directed approach. This is consistent with the findings of Angeli et al [ 54 ]. Parents confirmed that therapist decision-making takes priority, while therapists reported mainly giving priority to parent’s voice and working to balance expectations of parents.…”

Section: Discussionsupporting

confidence: 94%

A qualitative study of child participation in decision-making: Exploring rights-based approaches in pediatric occupational therapy

2021

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Background According to Article 12 of the United Nations Convention on the Rights of the Child, therapists are duty-bound to include children in decisions that impact them. Although occupational therapists champion client-centred, collaborative practice, there remains a paucity of studies detailing children’s rights and experiences of decision-making in pediatric occupational therapy. Purpose This qualitative study described the decision-making experiences of children, parents and therapists in occupational therapy. Methods Semi-structured interviews were conducted with 17 participants (six children, five parents and six occupational therapists), and data analysed using thematic analysis. Findings Three themes emerged: 1) Goal-setting experiences; 2) Adults: child-rights gatekeepers or defenders? and 3) Decision-making in context. Findings suggest that decision-making is mostly adult directed, and children’s voices are subsumed by adult-led services, priorities, and agendas. Implications Children’s rights need to be embedded as an aspect of best practice in providing services that are child-centred in occupational therapy practices and education.

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Section: Discussionsupporting

confidence: 94%

A qualitative study of child participation in decision-making: Exploring rights-based approaches in pediatric occupational therapy

2021

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“…A good quality relationship between patients, families and professionals is essential for achieving this goal (Angeli et al, 2019) There is a lack of studies that analyse the perceptions and experiences of parents of patients treated in ECI regarding their relationship with the professionals involved. Knowledge of these perceptions could help improve the implementation of PFCC in this field.…”

Section: Introductionmentioning

confidence: 99%

Parents of children with disabilities' perceptions regarding the quality of interaction with Health professionals working in early intervention: A qualitative descriptive study

Morera-Balaguer

Lillo-Navarro

Oliveira-Sousa

et al. 2022

Journal of Clinical Nursing

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Aims and ObjectivesThe aim of this study is to explore the perceptions of parents of children with physical disabilities concerning the quality of their interaction with health professionals in early intervention programs.BackgroundDespite the consensus on the need for Patient and Family‐Centered Care, there are still difficulties when executing such care. The quality of interaction among patients, families, and professionals is essential to facilitate the implementation of the programs.DesignA qualitative descriptive study with thematic analysis using a Modified Grounded Theory approach.MethodsData were collected through seven focus groups with 28 parents of children with physical disabilities who were undergoing early intervention programs in three centres. The study followed the COREQ guidelines and checklist.ResultsTwo themes emerged from the experiences: ‘exchange of information and education’, which included all the activities, procedures, exercises and skills taught by the professionals to help parents care for their child; and ‘interpersonal skills’, which focused on the way the professional relates with the child and the parents. Several subthemes emerged within each theme.ConclusionsThis study identified which elements of the professional‐parent interaction are considered by parents when evaluating the quality of their interaction with the health care provider of their children.Relevance to Clinical PracticeThe results of this study bring to light certain behaviours and interactions that health professionals should consider in order to improve the perceptions of parents of children with disabilities regarding the quality of interaction in the context of early childhood intervention.Patient or Public ContributionParents contributed to the data collected. Early intervention professionals were involved in participant checking to ensure the rigour of the study.

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“…Currently there is a great interest in studying strategies to implement patient-centered care (PCC) in all areas of healthcare [1][2][3][4][5][6][7]. According to Morgan and Yoder [8], PCC is a "holistic (biopsycho-social-spiritual) approach to delivering care that is respectful and individualized, allowing negotiation of care, and offering choice through a therapeutic relationship where persons are empowered to participate in health decisions at whatever level is desired".…”

Section: Introductionmentioning

confidence: 99%

“…One of the most relevant factors for the establishment of PCC is the quality of the therapeutic relationship, or the relationship that is established between the care providers and their patients [6][7][8][9][10][11][12][13]. There is growing consensus that the quality of care depends directly on communication and the relationship between patient and therapist, both in the field of physical therapy [4,5,[14][15][16][17][18][19] and in others [20].…”

Section: Introductionmentioning

confidence: 99%

The Influence of the Environment on the Patient-Centered Therapeutic Relationship in Physical Therapy: A Qualitative Study

Morera-Balaguer¹,

Mc²,

S³

et al. 2020

Preprint

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Currently, in the scientific literature there is a great interest on the study of strategies to implement patient-centered care. One of the main tools for this is the therapeutic relationship. Some studies suggest that the perception of the environment in which the physical therapy treatment takes place can influence the perception of its quality. A qualitative study using focus groups was performed. Two researchers conducted the focus groups, using a topic guide with predetermined questions. The focus group discussions were audio-recorded, transcribed verbatim and analyzed thematically using a modified grounded theory approach. The setting was three hospitals and six public health centers located in Spain. The inclusion criteria were patients who had received a minimum of 15 physical therapy sessions and with no communication impairments. Thirty-one participants in four focus groups. Participants described a series of specific experiences relating to the environment, which they felt were influential in the establishment of therapeutic patient-centered relationships, including eight physical factors and five organizational factors. The results of this study highlight environmental factors that affect the quality of the therapeutic patient-centered relationship in physical therapy and emphasize the need for physical therapists and administrators to rethink the situation and propose strategies for improvement.

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Patient-Centered Goal Setting in Developmental Therapy: Discordance between Documented Goals and Caregiver-Perceived Goals

Abstract: Supplemental Digital Content is available in the text.

Cited by 15 publications

References 33 publications

A qualitative study of child participation in decision-making: Exploring rights-based approaches in pediatric occupational therapy

A qualitative study of child participation in decision-making: Exploring rights-based approaches in pediatric occupational therapy

Parents of children with disabilities' perceptions regarding the quality of interaction with Health professionals working in early intervention: A qualitative descriptive study

The Influence of the Environment on the Patient-Centered Therapeutic Relationship in Physical Therapy: A Qualitative Study

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