Patient-Centered Quality Measures for Dialysis Care: A Report of a Kidney Disease Outcomes Quality Initiative (KDOQI) Scientific Workshop Sponsored by the National Kidney Foundation

Weiner, Daniel E.; Delgado, Cynthia; Flythe, Jennifer E.; Forfang, Derek L.; Manley, Thomas; McGonigal, Lisa J.; McNamara, Elizabeth; Murphy, Heather; Roach, Jesse L.; Watnick, Suzanne G.; Weinhandl, Eric; Willis, Kerry; Berns, Jeffrey S.; Aragon, Michael; Bednarski, Donna; Best, Aja; Blaser, Robert; Bowling, C Barrett; Butler, Catherine; Callahan, Mary Beth; Chan, Christopher; Clark, Stephanie; Couch, Sasha; Crews, Deidra; Crittenden, Stanley; Custer, Lisa; Damron, Kelli Collins; Danielson, Patty; Ditschman, Erich; Dunning, Stephan; Edwards, Dawn; Fitting, Matthew; Gedney, Nieltje; Horton, Golden; Jaar, Bernard; Jensen, Haley; Johansen, Kirsten; Joseph, Jessica; Lin, Eugene; Liu, Frank; Longino, Kevin; Mazumdar, Siddhartha; Mendu, Mallika; Mohan, Sumit; O’Rourke, Erin; Palevsky, Paul; Pappoe, Shika; Pearce, Sharon; Pettis, Amber; Reid, Morgan; Rivara, Matthew; Roberts, Glenda; Rocco, Michael; Saffer, Tonya; Schatell, Dori; Schell, Jane; Scherer, Jennifer; Shanaman, Beth; Somers, Michael; Taylor, Robert; Tentori, Francesca; Tummalapalli, Sri Lekha; Unruh, Mark; Warady, Brad; White, David; Wick, Gail; Wilkie, Caroline

doi:10.1053/j.ajkd.2023.09.015

Cited by 4 publications

(6 citation statements)

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“…PREMs: these measures aim to assess care that aligns with individuals’ preferences, needs and values, ensuring that patient values guide clinical decisions [ 48 ]. PROMs should be distinguished from PREMs, as the latter offer feedback to healthcare professionals regarding the overall quality of care at a system-wide level.…”

Section: Person-centered Pd Delivery Prescription—individualized Pati...mentioning

confidence: 99%

“…PROMs should be distinguished from PREMs, as the latter offer feedback to healthcare professionals regarding the overall quality of care at a system-wide level. While PROMs focus on patients’ self-reported outcomes, including symptoms and QoL, PREMs provide insights into patients' experiences with the healthcare system, helping assess and enhance the overall quality of care provided [ 47 , 48 ]. Effective implementation requires suitable data platforms for enhanced interaction among patients, caregivers and the care team to stimulate positive changes.…”

Section: Person-centered Pd Delivery Prescription—individualized Pati...mentioning

confidence: 99%

“…Effective implementation requires suitable data platforms for enhanced interaction among patients, caregivers and the care team to stimulate positive changes. Key considerations for seamless integration include creating and validating relevant survey tools, exploring efficient methods for timely data collection, and utilizing platforms like web or texting options [ 48 ]. Recently, substantial progress has been made in developing PREMs specifically for home dialysis.…”

Section: Person-centered Pd Delivery Prescription—individualized Pati...mentioning

confidence: 99%

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Personalized peritoneal dialysis prescription—beyond clinical or analytical values

Slon-Roblero,

Sanchez-Alvarez,

Bajo-Rubio

2024

Clinical Kidney Journal

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Traditionally, dialysis adequacy has been assessed primarily by determining the clearance of a single small solute, urea. Nevertheless, it has become increasingly evident that numerous other factors play a crucial role in the overall well-being, outcomes and quality of life of dialysis patients. Consequently, in recent years, there has been a notable paradigm shift in guidelines and recommendations regarding dialysis adequacy. This shift represents a departure from a narrow focus only on the removal of specific toxins, embracing a more holistic, person-centered approach. This new perspective underscores the critical importance of improving the well-being of individuals undergoing dialysis while simultaneously minimizing the overall treatment burden. It is based on a double focus on both clinical outcomes and a comprehensive patient experience. To achieve this, a person-centered approach must be embraced when devising care strategies for each individual. This requires a close collaboration between the healthcare team and the patient, facilitating an in-depth understanding of the patient's unique goals, priorities and preferences while striving for the highest quality of care during treatment. The aim of this publication is to address the existing evidence on this all-encompassing approach to treatment care for patients undergoing peritoneal dialysis and provide a concise overview to promote a deeper understanding of this person-centered approach.

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Section: Person-centered Pd Delivery Prescription—individualized Pati...mentioning

confidence: 99%

Section: Person-centered Pd Delivery Prescription—individualized Pati...mentioning

confidence: 99%

Section: Person-centered Pd Delivery Prescription—individualized Pati...mentioning

confidence: 99%

See 1 more Smart Citation

Personalized peritoneal dialysis prescription—beyond clinical or analytical values

Slon-Roblero,

Sanchez-Alvarez,

Bajo-Rubio

2024

Clinical Kidney Journal

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show abstract

“…Additionally, by demonstrating the effectiveness of an ACP intervention on patient-centered outcomes, the trial provides preliminary support for a dialysis quality framework anchored to goals that matter to individual patients, a concept known as goal-directed dialysis. This idea represents a marked departure from population-level quality programs currently used in dialysis that may inadvertently limit patient choice …”

mentioning

confidence: 99%

“…This idea represents a marked departure from population-level quality programs currently used in dialysis that may inadvertently limit patient choice. 8,9 Song and colleagues 5 are to be commended for conducting a high-quality trial of ACP in this complex population and setting. While much is still to be learned, the study is an important building block in the evidence base for patient-centered dialysis care.…”

mentioning

confidence: 99%