Patient decision aids in clinical practice for people with diabetes: a scoping review

Cornelius, Jodie L.; Doran, Frances; Jefford, Elaine; Salehi, Asiyeh

doi:10.1007/s13340-020-00429-7

Cited by 9 publications

(3 citation statements)

References 44 publications

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“…DiabetesFlex Care may promote patient-healthcare team collaboration, thereby supporting self-management. However, more evidence is needed to support this hypothesis, as well as determine the impact of care-management tools such as PRO questionnaires and decision aids on clinical outcomes and long-term changes in self-management behaviours among individuals with diabetes (30,31).…”

Section: Discussionmentioning

confidence: 99%

Flexible patient‐reported outcome‐based telehealth follow‐up for type 1 diabetes: A qualitative study

Jensen

Schougaard

Laurberg

et al. 2023

Scandinavian Caring Sciences

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BackgroundSuccessful diabetes management requires collaboration between patients and healthcare professionals and should be aligned with an individual's condition and resources. We developed a flexible, individualised, patient‐reported outcome (PRO)‐based telehealth intervention called “DiabetesFlex Care” in which patients completed an annual self‐reported questionnaire from home, one required face‐to‐face appointment, and two optional outpatient consultations. In this study, we investigated patients' experiences using DiabetesFlex Care.MethodsWe conducted a qualitative, interpretive descriptive (ID) study based on semi‐structured interviews with a purposeful sample of 36 patients with type 1 diabetes (T1D) who had used DiabetesFlex Care. Recorded audio data were transcribed and analysed inductively using the constant comparative method.ResultsDiabetesFlex Care changed participants' perspectives on living with diabetes. Patients became more involved in their own care and found that DiabetesFlex Care helped to make their conversations with healthcare professionals more relevant. Furthermore, participants appreciated the ability to both choose the format of their appointments (face‐to‐face vs. phone call) and cancel unnecessary appointments.ConclusionDiabetesFlex Care was a flexible and inclusive health service that enabled patients to take more responsibility for their own diabetes management. The questionnaire‐based approach in DiabetesFlex Care can help healthcare professionals systematically account for patients' perspectives and support user involvement and self‐management. By extension, this approach can also help minimise healthcare‐related disruptions in patients' lives. Further studies are needed to determine whether flexible PRO‐based telehealth is an acceptable solution for all patients.

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Section: Discussionmentioning

confidence: 99%

Flexible patient‐reported outcome‐based telehealth follow‐up for type 1 diabetes: A qualitative study

Jensen

Schougaard

Laurberg

et al. 2023

Scandinavian Caring Sciences

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“… 53 Our findings also noted that referrals to a lifestyle modification program were rare, suggesting the need to increase awareness further. 21 22 24 26 32–34 Consultations with carers and patients can be complemented with clinical support tools such as patient decision aids, 42 where HCPs work together with patients to plan their actions for behavior change (eg, when and what kinds of exercises). Realistic goals for achieving a behavior (eg, how much time to spend on exercising a day) or an outcome (eg, weight loss) should be set.…”

Section: Discussionmentioning

confidence: 99%

Knowledge, attitude, and practice toward pre-diabetes among the public, patients with pre-diabetes and healthcare professionals: a systematic review

Teoh

Chong

et al. 2023

BMJ Open Diab Res Care

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The prevalence of pre-diabetes is increasing globally, affecting an estimated 552 million people by 2030. While lifestyle interventions are the first line of defense against progression toward diabetes, information on barriers toward pre-diabetes management and how to overcome these barriers are scarce. This systematic review describes the publics’ and healthcare professionals’ knowledge, attitude and practice (KAP) toward pre-diabetes and determines the barriers toward pre-diabetes management. A systematic search for studies examining KAP towards pre-diabetes was conducted in six databases from inception to September 2022. Studies that quantitatively assessed at least two KAP elements using questionnaires were included. The quality of studies was assessed using the NIH Quality Assessment Tool for Observational Cohort and Cross-Sectional Studies. Barriers and enablers were identified and mapped onto the Capability, Motivation, and Behaviour model to identify factors that influence behavior change. Twenty-one articles that surveyed 8876 participants were included in this review. Most of the reviews (n=13) were directed to healthcare professionals. Overall, positive attitudes toward diabetes prevention efforts were observed, although there were still knowledge deficits and poor behavior toward pre-diabetes management. Barriers and enablers were detected at patients (eg, goals and intention), healthcare professionals (eg, clinical judgement) and system (eg, access and resources) levels. The use of different survey instruments to assess KAP prevented a head-to-head comparison between studies. Most studies conducted among patients were from middle-income countries, while among healthcare professionals (HCPs) were from high-income countries, which may produce some biasness. Nevertheless, the development of pre-diabetes intervention should focus on: (1) increasing knowledge on pre-diabetes and its management; (2) imparting practical skills to manage pre-diabetes; (3) providing resources for lifestyle management; (4) improving the accessibility of lifestyle management programs; and (5) other HCPs and human support to pre-diabetes management.

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“…Several PDAs have been developed and tested in different countries speci cally for the treatment of T2DM [24]. For example, the Diabetes Medication Choice decision aid, developed in the US, is for patients who are not (yet) using insulin and have multiple treatment options to consider [25].…”

Section: Discussionmentioning

confidence: 99%

Development of a patient decision aid for type 2 diabetes mellitus: a patient-centered approach

Tichler,

Hertroijs,

Ruwaard

et al. 2023

Preprint

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Background: Patient decision aids (PDAs) have been shown to effectively facilitate shared decision-making (SDM) between patients and healthcare professionals. The International Patient Decision Aid Standards (IPDAS) Collaboration created a model for the systematic development of PDAs, offering guidance to PDA developers. However, the absence of a solid evidence base limits practical recommendations for best practices. For example, uncertainties exist about the most appropriate method for identifying the needs and preferences of patients and healthcare professionals. We aim to provide a comprehensive overview of the development process (including key stakeholders and methodologies employed), using the IPDAS model, for the development of a PDA for type 2 diabetes mellitus (T2DM). Methods: Between September 2020 and February 2023, we systematically developed the PDA for T2DM in the Netherlands. We adopted a patient-centered approach by researching patient considerations and actively collaborating with a multidisciplinary steering group that represented all relevant stakeholders in Dutch diabetes care (e.g., patients with T2DM, healthcare professionals, and patient organizations). The content of the PDA and the development of a prototype were determined by incorporating the needs and preferences of patients, input from the steering group, and available evidence regarding treatment options for T2DM. The research team and steering group iteratively reviewed the PDA prototype. Results: A web-based PDA was developed consisting of five sections: 1) information about T2DM and the available treatment options; 2) comparison of treatment options based on, for example, risk of cardiovascular diseases and effect on daily life; 3) questions to assess patients’ knowledge; 4) value-clarification exercise; and 5) summary of the patient’s journey through the PDA. Before patients use the PDA, healthcare professionals can make a preselection of the most relevant treatment options. Conclusions: Patients and healthcare professionals were involved in the development process of the PDA for T2DM in an early and iterative way. This ensured that the PDA is aligned with the needs and preferences of the end-users. In a future study, we will investigate the effectiveness of the PDA in facilitating shared decision-making in the treatment of T2DM. Trial registration: International Clinical Trials Registry Platform ID: NL8948, date of registration: 05-10-2020

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Patient decision aids in clinical practice for people with diabetes: a scoping review

Cited by 9 publications

References 44 publications

Flexible patient‐reported outcome‐based telehealth follow‐up for type 1 diabetes: A qualitative study

Flexible patient‐reported outcome‐based telehealth follow‐up for type 1 diabetes: A qualitative study

Knowledge, attitude, and practice toward pre-diabetes among the public, patients with pre-diabetes and healthcare professionals: a systematic review

Development of a patient decision aid for type 2 diabetes mellitus: a patient-centered approach

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