Patient Education and Engagement through Social Media

Chirumamilla, Sravya; Gulati, Martha

doi:10.2174/1573403x15666191120115107

Cited by 32 publications

(31 citation statements)

References 41 publications

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“…[27][28][29][30][31][32] Online Twitter journal clubs (eg, #JACCclub from the Journal of the American College of Cardiology, #ASEchoJC, and Twitter Live) and SoMe during national conferences have become increasingly popular ways to reach global audiences (Figure 6). 4,33 SoMe has also been used to draw attention to physician and patient advocacy and address patient education and health inequities. 33,34 During the COVID-19 pandemic, global and national CV societies have responded to the changing protocols and need for rapid learning by implementing changes to the established guidelines according to COVID safety recommendations.…”

Section: Influence On Cardiovascular Societies and Researchmentioning

confidence: 99%

“…4,33 SoMe has also been used to draw attention to physician and patient advocacy and address patient education and health inequities. 33,34 During the COVID-19 pandemic, global and national CV societies have responded to the changing protocols and need for rapid learning by implementing changes to the established guidelines according to COVID safety recommendations. 35,36 Several CV imaging societies, including the American Society of Echocardiography (ASE), Society of Cardiovascular Computed Tomography (SCCT), and American Society of Nuclear Cardiology (ASNC), have endorsed new safety guidelines and efficient protocols (ie, use of point-of-care ultrasound) during the COVID-19 pandemic to reduce potential exposure to other patients and health care providers.…”

Section: Influence On Cardiovascular Societies and Researchmentioning

confidence: 99%

See 1 more Smart Citation

Impact of Social Media and Virtual Learning on Cardiology During the COVID-19 Pandemic Era and Beyond

Senapati¹,

Khan²,

Chebrolu

2020

Methodist DeBakey Cardiovascular Journal

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Section: Influence On Cardiovascular Societies and Researchmentioning

confidence: 99%

Section: Influence On Cardiovascular Societies and Researchmentioning

confidence: 99%

Impact of Social Media and Virtual Learning on Cardiology During the COVID-19 Pandemic Era and Beyond

Senapati¹,

Khan²,

Chebrolu

2020

Methodist DeBakey Cardiovascular Journal

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“…Having access to relevant and reliable information is important for educating and aiding new patients in disease management [1][2][3]. Over the past 16 years, many individuals with a chronic disease have been turning to Internet sources, such as social media, for education about their condition and treatment [4,5] despite a hesitancy from physicians and medical providers to use this resource for patient education [6]. Social media use among Americans has increased dramatically across adults of all genders, race, income, education level, and communities since the early 2000s [4].…”

Section: Introductionmentioning

confidence: 99%

Twitter Trends for Celiac Disease and the Gluten-Free Diet: Cross-sectional Descriptive Analysis

Germone¹,

Wright²,

Kimmons³

et al. 2022

JMIR Infodemiology

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Background Few studies have systematically analyzed information regarding chronic medical conditions and available treatments on social media. Celiac disease (CD) is an exemplar of the need to investigate web-based educational sources. CD is an autoimmune condition wherein the ingestion of gluten causes intestinal damage and, if left untreated by a strict gluten-free diet (GFD), can result in significant nutritional deficiencies leading to cancer, bone disease, and death. Adherence to the GFD can be difficult owing to cost and negative stigma, including misinformation about what gluten is and who should avoid it. Given the significant impact that negative stigma and common misunderstandings have on the treatment of CD, this condition was chosen to systematically investigate the scope and nature of sources and information distributed through social media. Objective To address concerns related to educational social media sources, this study explored trends on the social media platform Twitter about CD and the GFD to identify primary influencers and the type of information disseminated by these influencers. Methods This cross-sectional study used data mining to collect tweets and users who used the hashtags #celiac and #glutenfree from an 8-month time frame. Tweets were then analyzed to describe who is disseminating information via this platform and the content, source, and frequency of such information. Results More content was posted for #glutenfree (1501.8 tweets per day) than for #celiac (69 tweets per day). A substantial proportion of the content was produced by a small percentage of contributors (ie, “Superuser”), who could be categorized as self-promotors (eg, bloggers, writers, authors; 13.9% of #glutenfree tweets and 22.7% of #celiac tweets), self-identified female family members (eg, mother; 4.3% of #glutenfree tweets and 8% of #celiac tweets), or commercial entities (eg, restaurants and bakeries). On the other hand, relatively few self-identified scientific, nonprofit, and medical provider users made substantial contributions on Twitter related to the GFD or CD (1% of #glutenfree tweets and 3.1% of #celiac tweets, respectively). Conclusions Most material on Twitter was provided by self-promoters, commercial entities, or self-identified female family members, which may not have been supported by current medical and scientific practices. Researchers and medical providers could potentially benefit from contributing more to this space to enhance the web-based resources for patients and families.

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“…Several peer-reviewed ophthalmology journals, professional organizations, and patient advocacy groups have active SM accounts through which they update their followers about the latest news and events. [ 3 ] The uses of SM in the medical field are wide-ranging including medical education,[ 4 ] patient engagement,[ 5 ] and to aid in recruiting patients for clinical trials. [ 6 ] Moreover, SM platforms are also used to market physicians' practices and acquire more patients.…”

Section: Introductionmentioning

confidence: 99%

The Use of Social Media among Saudi Ophthalmologists

Owaifeer

Abbasi

Taisan

et al. 2021

Middle East African Journal of Ophthalmology

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PURPOSE: The purpose of this study is to evaluate the use of and beliefs toward social media (SM) among Saudi ophthalmologists. METHODS: This was a cross-sectional descriptive study. A web-based, self-administered questionnaire was e-mailed to ophthalmologists within Saudi Arabia. RESULTS: Out of 392 recipients, 293 completed the survey (74.7% response rate). The vast majority (90.1%) used at least one platform for personal and professional purposes or either. The three most commonly used applications were Twitter (72.3%), Snapchat (65.9%), and Instagram (51.9%). The opinions of respondents with regard to the different aspects of SM varied widely. Around half (56.7%) believed that it was permissible for ophthalmologists to promote themselves on SM and 70.6% agreed that SM usage by health-care professionals should be regulated. Participants believe that SM had both a positive and a negative impact on their daily life and clinical practice. For example, 94 (32.1%) respondents stated that it improved their ability to educate patients, on the other hand, 80 (27.3%) reported that SM wastes quality time that can be spent on something more productive. CONCLUSION: Our results demonstrate an increased utilization of SM among Saudi ophthalmologists. The ethical aspects of SM usage were a matter of controversy among our respondents. This necessitates the establishment of guidelines by regulatory bodies and/or individual health-care organizations.

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Patient Education and Engagement through Social Media

Cited by 32 publications

References 41 publications

Impact of Social Media and Virtual Learning on Cardiology During the COVID-19 Pandemic Era and Beyond

Impact of Social Media and Virtual Learning on Cardiology During the COVID-19 Pandemic Era and Beyond

Twitter Trends for Celiac Disease and the Gluten-Free Diet: Cross-sectional Descriptive Analysis

The Use of Social Media among Saudi Ophthalmologists

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