Patient Education in Chronic Skin Diseases: A Systematic Review

Bes, J de; Legierse, Catharina M.; Prinsen, C. A.C.; Korte, J. de

doi:10.2340/00015555-1022

Cited by 64 publications

(42 citation statements)

References 43 publications

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“…Following this intervention, patients reported reduced disease severity. Similar results were found with educational interventions in adults [47].…”

Section: Treatments Of Skin-related Psychosocial Problemssupporting

confidence: 78%

“…A review of randomized controlled trials in patients with chronic skin conditions reveals that in particular interventions involving a multidisciplinary team and several meetings, participants reported an improved quality of life and reduced disease severity [47]. One example is the intervention of Staab et al [48] in which a distinction was made between different age groups, and children with atopic eczema and their parents were provided with a structured psychoeducation, consisting of six sessions which were led by a multidisciplinary team (among others a dermatologist, a psychologist, a nurse and a dietician).…”

Section: Treatments Of Skin-related Psychosocial Problemsmentioning

confidence: 99%

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Psychological Treatments for Dermatological Conditions

2016

Skin and Psyche

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Abstract:The impact of dermatological conditions on a patient's life is frequently underestimated. Patients with skin conditions experience several physical complaints, including itch, pain and fatigue. Furthermore, in comparison to the general population, patients report a decreased psychological well-being, lowered quality of life and feelings of stigmatization and shame. Psychological treatments are widely used in addition to regular dermatological treatments to improve physical and psychological functioning of patients with chronic skin conditions. These treatments are usually aimed at changing the psychosocial factors that can influence the onset and/or course of skin conditions, such as dysfunctional coping behaviors, itch-scratching problems and stress. There are unimodal interventions in which single treatments are used, for example psychoeducation or relaxation exercises, and multimodal treatments in which a variety of different interventions are applied based on cognitive-behavioral therapy and self-management principles. Furthermore, a distinction can be made between interventions that focus primarily on skin-related psychosocial problems, interventions that focus on itch-scratching problems, and interventions that are focused on psychiatric problems in the dermatological practice. This chapter gives an overview on the psychosocial factors relevant for dermatological conditions, relevant diagnostic methods and the content and scientific evidence of specific psychological treatments in these different categories.

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“…Following this intervention, patients reported reduced disease severity. Similar results were found with educational interventions in adults [47].…”

Section: Treatments Of Skin-related Psychosocial Problemssupporting

confidence: 78%

Section: Treatments Of Skin-related Psychosocial Problemsmentioning

confidence: 99%

Psychological Treatments for Dermatological Conditions

2016

Skin and Psyche

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“…The value of adjunctive patient education and support as a means of improving quality of life and reducing disease severity in patients with conditions such as atopic eczema has been shown to be of value in a systematic review . However, more recently, a review of interventions used in randomized controlled trials, aimed at patients with psoriasis, concluded that attempts to improve disease severity and quality of life through the provision of educational information have met with limited success …”

Section: Introductionmentioning

confidence: 99%

The role of community pharmacists in supporting self-management in patients with psoriasis

Tucker

Stewart

2016

International Journal of Pharmacy Practice

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Background The majority of patients with psoriasis have mild to moderate disease which can be managed in primary care with topical therapies. The supportive role of pharmacists for patients with long‐term dermatological conditions is largely unknown. Objective To assess the impact of an educational intervention delivered by community pharmacists to improve self‐management for people with psoriasis. Method The study involved a pre‐ and post‐intervention design. Seven community pharmacies were selected based on their location (urban, rural etc.) and the pharmacists recruited via local comprehensive research networks. Patients with mild to moderate psoriasis were recruited either opportunistically or via a letter of invite by pharmacists who undertook a face‐to‐face consultation with one follow‐up visit after 6 weeks. The primary outcome was the change in person‐centred dermatology self‐care index (PEDESI) score and secondary outcomes were the self‐assessed psoriasis and severity index (SAPASI), measuring disease severity and the dermatology quality of life index (DLQI). Key findings A total of 47 patients were recruited. At 6 weeks, 42/47 (89.3%) patients completed the follow‐up consultation. There was a significant increase in mean PEDESI scores (25.15 versus 17.78, P < 0.001) at 6 weeks compared to baseline. Similarly, SAPASI (11.60 versus 7.74, P < 0.001) and DLQI (7.21 versus 4.14, P < 0.001) scores improved significantly. Conclusion Pharmacist‐assisted support for patients with psoriasis improved knowledge, reduced disease severity and the impact on quality of life. These results suggest that community pharmacists might have an important role to play in facilitating self‐management for patients with psoriasis.

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“…In dermatology, TPE has been mainly used in atopic dermatitis and psoriasis [12]. In our center, the monitoring of a large cohort of children with ichthyosis revealed a strong sense of exclusion among these families, as well as common misunderstandings about the disease [13].…”

Section: Introductionmentioning

confidence: 99%

Importance of therapeutic patient education in ichthyosis: results of a prospective single reference center study

Dufresne

Hadj‐Rabia

Taïeb³

et al. 2013

Orphanet Journal of Rare Diseases

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BackgroundIchthyoses are a heterogeneous group of rare genodermatoses. Patients and their families face difficulties related to daily care and management that may be aggravated by social isolation.ObjectivesTo evaluate the impact of therapeutic educational programs in improving the knowledge of ichthyosis patients, and their relatives, about their disease.Patients and methodsWe organized a two sessions-program of “know-how” dedicated to the overall management of ichthyoses. These sessions were conducted based on a tool specifically designed for the study, which addressed our various areas of expertise through a collective game. The participants (patients and their parents and siblings) were divided into groups, and the questions were tailored according to the participants’ age. The program was conceived as a knowledge reinforcement program that took place during a weekend of education and rest, organized away from healthcare structures. Our aim was to facilitate the program in a neutral place to encourage respite care and to ensure the availability of a multidisciplinary healthcare team.ResultsAfter the reinforcement session, children aged from 6 to 12 years and their families acquired the targeted know-how and social skills.ConclusionBenefits of TPE in the management of ichthyoses are the following: (1) the trust between patients their families and the caregivers was strengthened; (2) the context of the program encouraged self-expression, answered questions and provided mutual aid; and (3) the more self-sufficient families could better manage emergencies.

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Patient Education in Chronic Skin Diseases: A Systematic Review

Cited by 64 publications

References 43 publications

Psychological Treatments for Dermatological Conditions

Psychological Treatments for Dermatological Conditions

The role of community pharmacists in supporting self-management in patients with psoriasis

Importance of therapeutic patient education in ichthyosis: results of a prospective single reference center study

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