Patient empowerment: A cross-disease exploration of antecedents and consequences

Prigge, Jana Kristin; Dietz, Beatrix; Homburg, Christian; Hoyer, Wayne D.; Burton, Jennifer L.

doi:10.1016/j.ijresmar.2015.05.009

Cited by 61 publications

(85 citation statements)

References 89 publications

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“…It is noteworthy that findings of the present study are constrained to cancer patient organizations and cannot be extrapolated to other health conditions. While the literature suggests substantial variation among disease groups with respect to patient participation, no study to date has aimed at directly addressing this objective. Some evidence on patient empowerment indicates that empowerment exerts no impact on therapy compliance of patients with most severe diseases, such as cancer, whereas it enhances therapy compliance among those with less severe conditions, such as diabetes .…”

Section: Discussionmentioning

confidence: 99%

“…The reason for addressing only one disease group rather than adopting a more disease‐general approach is justified by evidence indicating that health conditions display marked diversity in terms of their impact on the population, their priority status within a government policy, their media and public profile as well as the degree to which they are ingrained in the medical model . Furthermore, a recent study has bolstered the moderator effect of type of disease in the association between patient empowerment and therapy compliance . Cancer was chosen as the disease of interest, primarily because it constitutes a major public health concern incurring significant burden to European societies .…”

Section: Introductionmentioning

confidence: 99%

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Health democracy in Europe: Cancer patient organization participation in health policy

Souliotis

Peppou

Agapidaki

et al. 2017

Health Expectations

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BackgroundPatient organization participation in health policy decision making is an understudied area of inquiry. A handful of qualitative studies have suggested that the growing number of patient organizations in Europe and their increasing involvement in policy issues do not result in high political effectiveness. However, existing research is largely country‐specific.ObjectiveTo examine the degree and impact of cancer patient organization (CPO) participation in health policy decision making in EU‐28 and to identify their correlates.MethodsA total of 1266 members of CPOs participated in this study, recruited from a diversity of sources. CPO participation in health policy was assessed with the Health Democracy Index, a previously developed instrument measuring the degree and impact of patient organization participation in various realms of health policy. Additional questions collected information about participants' and the CPO's characteristics. Data were gleaned in the form of an online self‐reported instrument.ResultsThe highest degree of CPO participation was observed with respect to hospital boards, reforms in health policy and ethics committees for clinical trials. On the contrary, the lowest was discerned with regard to panels in other important health‐related organizations and in the Ministry of Health. The reverse pattern of results was observed concerning the Impact subscale. As regards the correlates of CPO participation, legislation bore the strongest association with the Degree subscale, while organizational factors emerged as the most important variables with regard to the Impact subscale.ConclusionsResearch findings indicate that a high degree of CPO participation does not necessarily ensure a high impact. Efforts to promote high and effective CPO participation should be geared towards the establishment of a health‐care law based on patient rights as well as to the formation of coalitions among CPOs and the provision of training to its members.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Health democracy in Europe: Cancer patient organization participation in health policy

Souliotis

Peppou

Agapidaki

et al. 2017

Health Expectations

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show abstract

“…En el ámbito de la salud se habla de Empowering Patient Education, para referirse a la educación encaminada a incentivar que los pacientes tomen el control de su propio proceso de salud (19). El proceso de empoderamiento varía según la persona, el contexto y el tiempo, por tanto, antes de planificar cualquier estrategia educativa sanitaria necesitamos conocer a nuestros pacientes y su situación (20). No es posible proporcionar una educación que ayude al enfermo a capacitarse solo con programas estándares ya que, algunas veces, el punto de vista de los profesionales sanitarios no corresponde con las necesidades de conocimiento del paciente.…”

Section: Introductionunclassified

Validación de la versión española: Expectativa y conocimiento recibido del paciente hospitalizado

et al. 2017

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Objetivo: evaluar la validez y la fiabilidad de la versión española del instrumento Expectativas y conocimiento recibido del paciente hospitalizado (ECPH/CRPH) en pacientes con osteoartritis intervenidos de artroplastia total de rodilla. Material y métodos: el proceso de validación siguió las recomendaciones internacionales: validez de contenido, validez de constructo, validez de criterio y fiabilidad. Un total de 248 pacientes que debían intervenirse de artroplastia total de rodilla en 5 hospitales públicos españoles contestaron la ECPH antes de ser hospitalizados y 220 pacientes contestaron el CRPH al darles el alta hospitalaria. Resultados: el análisis factorial confirmó las dimensiones de la escala original para el conocimiento recibido, pero no en la escala para las expectativas. La correlación de las dimensiones de la ECPH con la Escala de Opinión de la Salud de Krantz (KHOS) y la correlación de las dimensiones de la CRPH con la Escala de Acceso a la Información (AKS) indicaron la validez de criterio mostrando unas relaciones positivas. Los resultados señalaron buena fiabilidad con valores de alfa Cronbach elevados. Conclusión: el proceso de validación indica que la versión española del ECPH/CRPH es un instrumento válido y fiable para medir las expectativas y el conocimiento recibido en pacientes quirúrgicos en el contexto español.

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“…When the providers' perspective is employed, communication between the parties, transferring power to patients and patient autonomy is considered empowerment (Ouschan, et al, 2000). Alternately when empowerment is viewed from the patient, in involves skills acquisition for health involvement, self-efficacy for achieving self-determined goals and a negotiation of autonomy (Prigge, Dietz, Homburg, Hoyer, & Burton, 2015). The thesis focuses on the latter as "the emergence of a person's [patients] potential as a result of an empowerment process, may be viewed as a co-creation, within a true partnership" (Aujoulat, et al, 2007, p. 15) as it supports the healthcare consumer perspective foregrounded in this research.…”

Section: Engagement and Psychological Empowermentmentioning

confidence: 99%

“…Fundamentally self-determination is about self-perception through evidence, sense-making, responsibility, self-advocacy and gaining control, which is critical to the experience of empowerment (Aujoulat, Young, & Salmon, 2012;Bravo, et al, 2015;Prigge, et al, 2015). …”

Section: (Rq2)mentioning

confidence: 99%

Engagement, Empowerment and Patient Generated Health Data

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Patient empowerment: A cross-disease exploration of antecedents and consequences

Cited by 61 publications

References 89 publications

Health democracy in Europe: Cancer patient organization participation in health policy

Health democracy in Europe: Cancer patient organization participation in health policy

Validación de la versión española: Expectativa y conocimiento recibido del paciente hospitalizado

Engagement, Empowerment and Patient Generated Health Data

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