Patient Empowerment: Apni Jung (Our Fight) against Rheumatoid Arthritis for South Asian Population

Bosworth, Ailsa; Dubey, Shirish; Adebajo, Ade; Moorthy, Arumugam; Arora, Shivam; Salim, Afshan; Reehal, Joti; Paudyal, Vibhu; Gupta, Monica; Kumar, Kanta

doi:10.31138/mjr.32.2.93

Cited by 2 publications

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References 25 publications

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“…Sadly, this is not unique to rheumatology [ 8 ]. Education and health literacy were considered important factors leading to worse outcomes, and hence we developed resources such as Apni Jung (our fight) to improve the level of understanding of disease mechanisms and treatments in RA [ 9 ] and osteomalacia information [ 10 ] for South Asian patients. There has been scant comparable data coming out from mainland Europe with no clear explanation for this.…”

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Crying out for equity: outcomes of rheumatic diseases confounded by ethnicity

Dubey

Adebajo

2022

Clin Rheumatol

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Publisher's note Springer Nature remains neutral with regard to jurisdictional claims in published maps and institutional affiliations. Key messages1. Black, Asian, and minority ethnic (BAME) patients have worse outcomes in a number of rheumatological diseases. 2. There is a paucity of good-quality data on the scientific explanations for these discrepancies. 3. These issues need urgent redressal through appropriate resource provision for suitable studies.

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confidence: 99%

Crying out for equity: outcomes of rheumatic diseases confounded by ethnicity

Dubey

Adebajo

2022

Clin Rheumatol

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“…Recognizing the impact of early disease experiences on long-term outcomes may be particularly relevant to patients from ethnic minority backgrounds who develop RA [32]. Interventions such as Apni Jung (our fight against RA) may have helped South Asian patients, but similar resources are not available for other ethnic groups [33].…”

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confidence: 99%

Worse outcomes linked to ethnicity for early inflammatory arthritis in England and Wales: a national cohort study

et al. 2022

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Objective To assess variability in care quality and treatment outcomes across ethnicities in early inflammatory arthritis (EIA). Methods We conducted an observational cohort study in England and Wales from May 2018-March 2020, including patients with a suspected/confirmed EIA diagnosis. Care quality was assessed against six metrics defined by national guidelines. Clinical outcomes were measured using DAS28. Outcomes between ethnic groups (‘White’, ‘Black’, ‘Asian’, ‘Mixed, ‘Other’) were compared, and adjusted for confounders. Results 35,807 eligible patients were analysed. Of those, 30,643 (85.6%) were White and 5,164 (14.6%) were from ethnic minorities: 1,035 (2.8%) Black; 2,617 (7.3%) Asian; 238 (0.6%) Mixed; 1,274 (3.5%) Other. 12,955 patients had confirmed EIA, of whom 11,315 were White and 1,640 were from ethnic minorities: 314 (2.4%) Black; 927 (7.1%) Asian; 70 (0.5%) Mixed; 329 (2.5%) Other. 14,803 patients were assessed by rheumatology within three weeks, and 5,642 started treatment within six weeks of referral. There were no significant differences by ethnicity. Ethnic minority patients had lower odds of disease remission at three months (adjusted odds ratio 0.79 [95% CI: 0.65,0.96]) relative to White patients. Ethnic minorities were significantly less likely to receive initial treatment with methotrexate (0.68 [0.52-0.90]) or with glucocorticoids (0.63 [0.49-0.80]). Conclusion We demonstrate that some ethnic minorities are less likely to achieve disease remission in three months following EIA diagnosis. This is not explained by delays in referral or time to treatment. Our data highlight the need for investigation into the possible drivers of these inequitable outcomes and reappraisal of EIA management pathways.

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Patient Empowerment: Apni Jung (Our Fight) against Rheumatoid Arthritis for South Asian Population

Cited by 2 publications

References 25 publications

Crying out for equity: outcomes of rheumatic diseases confounded by ethnicity

Crying out for equity: outcomes of rheumatic diseases confounded by ethnicity

Worse outcomes linked to ethnicity for early inflammatory arthritis in England and Wales: a national cohort study

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