Patient engagement: qualitative narratives illustrate patient engagement behaviors

Sloan, Alyssa Grace; Knowles, Amy

doi:10.1080/17538068.2017.1340541

Cited by 11 publications

(6 citation statements)

References 36 publications

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“…This study supports engagement efforts, which are included in numerous contemporary strategies for improving health outcomes and provides a mechanism to inform future engagement interventions aimed at improving the patient experience, quality of care and patient safety. Consistent with Sloan and Knowles (2017), many patients in this study shared feelings that everything was decided for them before or during hospitalisation, and they could not identify a decision that they made while hospitalised. Efforts need to be made by nurses to involve patients in decision-making, even if it is something as simple as when to ambulate in the halls or when they would like to wash up.…”

Section: Discussionmentioning

confidence: 68%

Patients’ perspectives on engaging in their healthcare while hospitalised

Jerofke‐Owen

Dahlman

2018

Journal of Clinical Nursing

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The articulation of what patients actually experience in the hospital setting contributes to improve nursing practice by offering insight into what is important to the patient and how best to engage with them in their care. The constraints that patients reported facing related to their healthcare engagement should be used to inform the delivery of future engagement interventions in the acute care setting.

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Section: Discussionmentioning

confidence: 68%

Patients’ perspectives on engaging in their healthcare while hospitalised

Jerofke‐Owen

Dahlman

2018

Journal of Clinical Nursing

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“…Particularly for vaccine recommendations, studies have shown a preference for interpersonal medical interactions with access to medical experts as a key source characteristic (Hopfer & Clippard, 2011 ; Rains & Ruppel, 2016 ). The preference for interpersonal interactions with medical professionals underscores the important role clinicians play in communicating HPV prevention recommendations to young adults and disseminating interventions (Sloan & Knowles, 2017 ). However, the use of other sources highlights the significant role of accessibility and immediacy in exposure to health messages.…”

Section: Discussionmentioning

confidence: 99%

Health Information Source Characteristics Matter: Adapting the Dissemination of an HPV Vaccine Intervention to Reach Latina and Vietnamese Women

et al. 2021

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Latina and Vietnamese women are disproportionately burdened by human papillomavirus (HPV)-associated cervical cancer and underutilize the HPV vaccine, which is an effective cancer prevention measure. To inform the adaptation of a National Cancer Institute’s evidence-based cancer control program, HPV Vaccine Decision Narratives, and because of the rapidly changing information concerning consumption patterns of young adults, we elicited preferences and characteristics associated with women’s interest in various health information sources, specifically for HPV vaccination. We conducted 50 interviews with young Latina and Vietnamese women at two Planned Parenthood health centers in Southern California. Interview questions were guided by the Channel Complementarity Theory and focused on understanding the multiple communication channels women turn to for health, and the characteristics that motivate their use. Our results showed that Latina and Vietnamese women turn to many sources, from online and social media to school health classes, mothers, and doctors. Specific characteristics that motivate women’s online use of health information included immediacy and access, convenience and credibility. When receiving HPV vaccine information, privacy, avoiding information overload, interpersonal engagement, and receiving health information from trusted sources was important. Our study advances the prevention literature by elevating the role of platform delivery considerations and emphasizing preferences to effectively reach Latina and Vietnamese women, who are disproportionately burdened by HPV cancers and are less aware of HPV vaccine prevention. These results can be used to further inform the dissemination of this cancer control program. Adaptation of the program should include changes to its delivery, such that trusted sources are used, and dissemination is coordinated to send a consistent message across multiple communication methods.

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“…Patient-centred care involves patients being active members and shared decision-makers in their own healthcare 25. This necessitates patients being empowered with evidence-based information tailored to them and being supported to evaluate the potential impact of these healthcare decisions.…”

Section: Introductionmentioning

confidence: 99%

“…Patient-centred care involves patients being active members and shared decision-makers in their own healthcare. 25 This necessitates patients being empowered with evidence-based information tailored to them and being supported to evaluate the potential impact of these healthcare decisions. In England, the National Institute for Health and Care Excellence (NICE) works to centrally incorporate shared decision-making into the delivery of information about care and treatment, supported by patient decision aids.…”

Section: Introductionmentioning

confidence: 99%

Patient acceptability of intravitreal complement inhibitors in geographic atrophy (GA): protocol for a UK-based cross-sectional study

Dinah,

Enoch,

Ghulakhszian

et al. 2024

BMJ Open

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IntroductionGeographic atrophy (GA) is the advanced form of the non-neovascular (‘dry’) type of age-related macular degeneration (AMD). Previously untreatable, complement inhibitors delivered by regular intravitreal injections have recently been demonstrated to slow down the progression of GA lesions in phase 3 trials. One such treatment, Syfovre (pegcetacoplan), was approved by the US Food and Drug Administration in February 2023. These therapies slow down, but do not stop or reverse, the progression of GA; they may also increase the risk of developing the neovascular (‘wet’) type of AMD. In light of these developments, this study aims to quantify the acceptability of these new intravitreal injection treatments to patients with GA in the UK and explore factors that may influence the acceptability of these treatments.Methods and analysisIn this cross-sectional, non-interventional study, the primary objective is to determine the proportion of patients with GA that find regular intravitreal therapy acceptable for slowing the progression of GA. We will use a validated acceptability questionnaire in order to quantify the acceptability of new treatments among patients with GA. The correlation between acceptability and functional and structural biomarkers of GA will be established. We will also explore demographic, general health and ocular factors that may influence acceptability. 180 individuals with a diagnosis of GA will be recruited from 7 to 8 participating National Health Service trusts across the UK. Multiple regression analysis will be conducted to determine the simultaneous effects of multiple factors on patient acceptability.Ethics and disseminationThe study received ethical approval from the Health Research Authority on 14 March 2023 (IRAS Project ID: 324854). Findings will be disseminated through peer-reviewed publications and conference presentations to the medical retina community, as well as through dialogue with patients and macular disease charities.

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Patient engagement: qualitative narratives illustrate patient engagement behaviors

Cited by 11 publications

References 36 publications

Patients’ perspectives on engaging in their healthcare while hospitalised

Patients’ perspectives on engaging in their healthcare while hospitalised

Health Information Source Characteristics Matter: Adapting the Dissemination of an HPV Vaccine Intervention to Reach Latina and Vietnamese Women

Patient acceptability of intravitreal complement inhibitors in geographic atrophy (GA): protocol for a UK-based cross-sectional study

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