Patient engagement with the
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            : why and how?

Anstey, Alexander Vincent; Popli, Urvi; Hughes, Chuck

doi:10.1111/bjd.17847

Cited by 4 publications

(1 citation statement)

References 9 publications

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“…The BJD publishes leading scientific research from across the world, and the accessibility and real‐world impact of this work can be increased with involvement from patients. Following on from previous editorials, 1,2 we have successfully maintained our partnership with patients to ensure that what we publish has a real‐world impact 3 . Our patient associate editors have first‐hand experience of living with a skin condition, and were recruited in a collaborative approach to champion patient involvement in the journal 3 .…”

Section: Figurementioning

confidence: 99%

Patient engagement with the BJD: encouraging the patient voice and readership

Hughes

Prescott

Arents³

2022

British Journal of Dermatology

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Section: Figurementioning

confidence: 99%

Patient engagement with the BJD: encouraging the patient voice and readership

Hughes

Prescott

Arents³

2022

British Journal of Dermatology

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BJD : onwards and upwards

Ingram

2019

Br J Dermatol

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Medical publishing does not stand still and, to paraphrase the Greek philosopher Heraclitus of Ephesus, 'The only thing that is constant is change'. This is my first issue as BJD Editor, having taken on leadership of the journal from Alex Anstey on 1 July. I am delighted that Eleni Linos, Stanford University, California, and Neil Rajan, Newcastle University, U.K., have joined the BJD senior editorial team as Deputy Editors. While Editor of BJD from 2013 to 2019, Alex Anstey undertook a prodigious change process to ensure that the BJD remains a top dermatology journal. Importantly, Alex started from first principles, asking the question 'What does the BJD now stand for?'. 1 A consensus position statement emerged, in which the BJD strives to publish the highest-quality research encompassing clinical trials, epidemiology, outcomes and qualitative research, and translational research that describes basic science of potential clinical relevance. Journal enhancements have flowed from the mission statement. The next step was to assemble a senior editorial team of stellar clinical academics for each journal section (take a look at the journal team on our website). 2 Our editorial team of section and associate editors increased in number from less than 20 to nearly 80 in a 5-year period (Fig. 1), with close to a 1 : 1 gender balance and a wide geographical spread across the continents. 3 Once the team was in place, we moved onto considering how to add value to original articles for our readers and authors. Under Alex's leadership, most BJD original articles are accompanied by a plain language summary in English and

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Patient engagement with the BJD : where do we stand?

Arents¹,

Burton²

2020

Br J Dermatol

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In June 2019 the BJD published an editorial on patient engagement with the journal. 1 In it, an overview was given on different kinds of patient engagement in the realm of medical research and all it entails, from formulating research questions at the beginning to evidence-based practice guidelines at the end. Within that whole processor chain, if you willthere is a role for patients and for peer-reviewed medical journals. But what could be the role of patients within a medical journal? The title of the editorial was 'Patient engagement with the BJD: why and how?' Reading it now, it can be concluded that many of the plans that were laid out have actually been accomplished.After recruitment, selection and interviews, two Patient Associate Editors were appointed in the autumn of 2019. They have become an integral part of the editorial team and are the authors of this editorial. An often-used quote within patient engagement is: 'We as patients do not want to be on the menu, we want to sit at the table'. Well, that is a fact now: we are sitting at the BJD's table, so to speak. We participate in editors' meetings, are consulted by editors on patient-related issues regularly, and were given the opportunity to present an overview of our role and activities at BJD's Editorial Team Day. But, what has been done? Not long ago, articles in medical journals were only accessible to the medical community. Patients and patient advocates only had access to abstracts in PubMed, if available. A lot has changed for the better, with open-access journals and open-access articles within journals. Yet, not everyone is able to understand these articles. An often-heard complaint from patients in general is: 'They are just not doing enough research on my disease'. Well, maybe it has been done, but they are not aware of

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Patient engagement with the BJD : why and how?

Cited by 4 publications

References 9 publications

Patient engagement with the BJD: encouraging the patient voice and readership

Patient engagement with the BJD: encouraging the patient voice and readership

BJD : onwards and upwards

Patient engagement with the BJD : where do we stand?

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