Patient experience of pregnancy-related venous thrombosis: A phenomenological study

Abstract

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Evaluation of patients' experience and related qualitative outcomes in venous thromboembolism: A scoping review

“…We identified seven major themes representative of the 28 included studies, all of which are included in our review. 10 We identified pronounced themes related to psychological distress and health anxiety in seven studies conducted on younger patients with VTE, 34,35,37,38,39,40,47 supported by an additional two studies that noted a difference in psychological experiences between younger and older participants. 41,43 Hypotheses to explain this phenomenon include lack of peer support and understanding, more pronounced journey of misdiagnosis because of a lower index of suspicion, disruption of routine events, and more limited life or disease experience from which to extrapolate effective coping mechanisms.…”

“…Two of these seven studies suggested that younger age may have accounted for the increased psychological and emotional distress when contrasted to other studies 34,37 . There were studies conducted on other subgroups of interest, including women, 35,40,47,48 PE, 31,34,45,52 DVT, 38,46 unprovoked VTE, 39 and hospitalized patients 32,34 ; however, there were not enough data to facilitate cross‐study comparisons.…”

“…My husband would really like us to have another baby. I had IVF so the whole thing actually just now becomes, I don't know, it's another thing for me to think no I don't want to do it again 47 …”

“…I was constantly back up there, each time I kept saying about my leg, in that first week and each time they looked at it and said no, it's not a DVT, it's not red, it's not swollen and I was sure that it was 47 …”

“…I had IVF so the whole thing actually just now becomes, I don't know, it's another thing for me to think no I don't want to do it again. 47 I used to be a frequent traveler and had plans to live in a foreign country. I don't think along those lines anymore.…”