Patient Experiences of Loneliness

Karhe, Liisa; Kaunonen, Marja

doi:10.1097/ans.0000000000000096

Cited by 16 publications

(12 citation statements)

References 38 publications

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“…In addition, qualitative research can be useful to reconceptualise loneliness in the context of being isolated, as this feeling cannot be easily attributed to patients' dysfunctional cognition and/or dispositional behaviour (Bekhet, Zauszniewski, & Nakhla, 2008;Karhe & Kaunonen, 2015). The last might contribute to a concurrent lonely state, which should deserve psychological attention, as participants reported emotional loneliness scores slightly higher than the general population (de Jong Gierveld & VanTilburg, 2002).…”

Section: Discussionmentioning

confidence: 99%

Development and initial validation of a questionnaire to assess patients’ perception of protective isolation following haematopoietic stem cell transplantation

et al. 2018

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The aim of this study was to develop and psychometrically test a questionnaire assessing patients’ perception of protective isolation following haematopoietic stem cell transplantation (HSCT). The conceptual framework for developing the questionnaire was a three‐dimensional model that emerged from a metasynthesis: isolation‐related suffering, relationship with oneself and relationship with others. Item selection was performed through a focus group, comparison with the findings of two phenomenological studies, and content validity with 22 experts. Cognitive interviews with five patients were used to verify face validity. A validation study was conducted in 10 Italian centres, all members of the Italian Group of stem cell transplant (GITMO). Patients completed the questionnaires between 7 and 9 days post‐transplant. Dimensionality was tested through exploratory factor analysis (EFA). A total of 17 items yielded a content validity index (CVI) of 0.88. Participants included 186 adult patients receiving autologous (48%) or allogeneic (52%) HSCT in protective isolation. The EFA yielded a three‐factor solution, explaining 55% of the variance. The scale showed adequate psychometric properties, with the exception of three items, which were eliminated. Future studies should test the psychometric properties of the questionnaire through confirmatory factor analysis and verify its transcultural validity.

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Section: Discussionmentioning

confidence: 99%

Development and initial validation of a questionnaire to assess patients’ perception of protective isolation following haematopoietic stem cell transplantation

et al. 2018

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“…43 The stressor demonstrating the third strongest correlation with frightening experiences was loneliness (R 2 = 0.168) ( treatment practices of health care providers, treating patients without empathy and as if they were not humans, lack of respect, failure to spend enough time with patients, lack of communication, and failure to inform patients adequately lead to feelings of loneliness in patients. 44 One study demonstrated that the fact that patients on mechanical ventilation are dependent on health care professionals to communicate was a cause of feeling lonely. 45 In the present study, health care providers mainly focusing on technical aspects of care and ignoring the communication needs of patients might have been responsible for patients experiencing loneliness and considering it a negative experience.…”

Section: Such Interventions Have Been Reported To Be Effective In Satmentioning

confidence: 99%

The relationship between stressors and intensive care unit experiences

Zengin¹,

Ören²,

Ustundag

2019

Nursing in Critical Care

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Background Patients in intensive care units (ICUs) face many physical and psychological stressors because of the environment of these units and their own critical conditions and experience stress in various degrees. Each stressor may affect patients' experiences in ICUs differently. Aim and objectives This study aimed to examine the relationship between stressors and patients' experiences in an ICU. Methods This descriptive, cross‐sectional study was conducted between September 2014 and June 2015 in a university hospital and included 116 patients who were admitted to the general ICU for at least 24 hours. Data were collected using the Intensive Care Experience Scale and a questionnaire that included questions about socio‐demographic and disease‐related characteristics of patients and their stressors. Results The mean age of the patients was 57.81 ± 13.81 years, and the mean duration of ICU stay was 2.28 ± 3.88 days. There was a moderate positive relation between the stressors noise (r = .534; P < .01), thirst (r = .438; P < .01), loneliness (r = .410; P < .01), and pain (r = .404; P < .01) and the subscale frightening experiences. However, there was a moderate, negative relation between the stressors inability to speak (r = −.444; P < .01), surrounding speeches (r = −.458; P < .01), equipment noise (r = −.490; P < .01), and physical exercise (r = −.546; P < .01) and the subscale satisfaction with care. Conclusions The patients associated stressors with satisfaction and frightening experiences in the early period of their discharge from the ICU. As stressors increases, so do frightening experiences, and satisfaction with care is affected negatively. Relevance to clinical practice Currently, stressors to which patients discharged from ICU are exposed during their admission to wards are not evaluated in practice. This study is important in that it can help health professionals be aware of effects of stressors on patients in the early period of their discharge.

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“…According to a recent report by the Jo Cox Commission, almost a quarter of parents with young children felt always or often lonely , more than a third of those aged over 75 years reported feelings of loneliness out of their control, and, in one year, more than 4000 children reported feeling unbearably lonely in the United Kingdom alone [5]. Hospitalized patients are at a particularly high risk of loneliness [6].…”

Section: Loneliness Social Connection and Healthmentioning

confidence: 99%

Reducing Patient Loneliness With Artificial Agents: Design Insights From Evolutionary Neuropsychiatry

Loveys¹,

Fricchione²,

Kolappa³

et al. 2019

J Med Internet Res

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Loneliness is a growing public health issue that substantially increases the risk of morbidity and mortality. Artificial agents, such as robots, embodied conversational agents, and chatbots, present an innovation in care delivery and have been shown to reduce patient loneliness by providing social support. However, similar to doctor and patient relationships, the quality of a patient’s relationship with an artificial agent can impact support effectiveness as well as care engagement. Incorporating mammalian attachment-building behavior in neural network processing as part of an agent’s capabilities may improve relationship quality and engagement between patients and artificial agents. We encourage developers of artificial agents intended to relieve patient loneliness to incorporate design insights from evolutionary neuropsychiatry.

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Patient Experiences of Loneliness

Cited by 16 publications

References 38 publications

Development and initial validation of a questionnaire to assess patients’ perception of protective isolation following haematopoietic stem cell transplantation

Development and initial validation of a questionnaire to assess patients’ perception of protective isolation following haematopoietic stem cell transplantation

The relationship between stressors and intensive care unit experiences

Reducing Patient Loneliness With Artificial Agents: Design Insights From Evolutionary Neuropsychiatry

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