Patient Information Recall in a Rheumatology Clinic

Anderson, John L.; Dodman, Sally; Kopelman, Michael; Fleming, A

doi:10.1093/rheumatology/18.1.18

Cited by 139 publications

(70 citation statements)

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“…8,9 When only oral information is provided, much of that information is forgotten. [10][11][12] Stroke patients and their carers need to receive information on a wide variety of topics and at all phases of the recovery process.…”

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confidence: 99%

Assessing the Suitability of Written Stroke Materials: An Evaluation of the Interrater Reliability of the Suitability Assessment of Materials (SAM) Checklist

Hoffmann

Ladner

2012

Topics in Stroke Rehabilitation

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Purpose: Written materials are frequently used to provide education to stroke patients and their carers. However, poor quality materials are a barrier to effective information provision. A quick and reliable method of evaluating material quality is needed. This study evaluated the interrater reliability of the Suitability Assessment of Materials (SAM) checklist in a sample of written stroke education materials. Methods: Two independent raters evaluated the materials (n = 25) using the SAM, and ratings were analyzed to reveal total percentage agreements and weighted kappa values for individual items and overall SAM rating. Results: The majority of the individual SAM items had high interrater reliability, with 17 of the 22 items achieving substantial, almost perfect, or perfect weighted kappa value scores. The overall SAM rating achieved a weighted kappa value of 0.60, with a percentage total agreement of 96%. Conclusion: Health care professionals should evaluate the content and design characteristics of written education materials before using them with patients. A tool such as the SAM checklist can be used; however, raters should exercise caution when interpreting results from items with more subjective scoring criteria. Refi nements to the scoring criteria for these items are recommended. The value of the SAM is that it can be used to identify specifi c elements that should be modifi ed before education materials are provided to patients. Key words: health education, interrater reliability, patient education, SAM, stroke, written education materials, written information T he importance and benefi ts of providing patients and their carers with education are widely acknowledged.1 Written patient education materials are frequently used by health professionals and desired by patients, 2-4 and they offer benefi ts such as portability and message consistency. 5 Additionally, patients are able to read information at a time and speed that are suitable for them, choose how much information they receive, refer back to information as needed, and share information with family members who were not present during the consultation.5-7 Health care professionals are encouraged to use written education materials with patients to reinforce and supplement information that is provided orally. 8,9 When only oral information is provided, much of that information is forgotten. [10][11][12] Stroke patients and their carers need to receive information on a wide variety of topics and at all phases of the recovery process.13 Information can assist individuals to understand what has happened, cope with the consequences, know what secondary stroke prevention behaviors to perform, and facilitate self-management of a chronic condition. Providing information to stroke patients and their carers has been found to improve patient and carer knowledge and aspects of patient satisfaction and to reduce patient depression.14 Clinical guidelines for stroke care now recommend that all patients and their families be offered information that is tailored t...

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confidence: 99%

Assessing the Suitability of Written Stroke Materials: An Evaluation of the Interrater Reliability of the Suitability Assessment of Materials (SAM) Checklist

Hoffmann

Ladner

2012

Topics in Stroke Rehabilitation

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“…Patients forget 20-80% of medical information provided by their physician during consultations (Anderson et al, 1979;Gabrijel et al, 2008;Jansen et al, 2008a,b;Kessels, 2003;Ley, 1979). When patients do not remember information, they are less likely to cope with the disease, make wellinformed decision and adhere to treatment and medical advice (Andersson et al, 2015;Linn et al, 2013;Mill & Sullivan, 1999).…”

Section: Introductionmentioning

confidence: 99%

Are psychophysiological arousal and self-reported emotional stress during an oncological consultation related to memory of medical information? An experimental study

Visser

Tollenaar

Bosch

et al. 2017

Stress

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(2017) Are psychophysiological arousal and self-reported emotional stress during an oncological consultation related to memory of medical information? An experimental study, Stress, 20:1, 103-111, DOI: 10.1080/10253890.2017 Patients forget 20-80% of information provided during medical consultations. The emotional stress often experienced by patients during consultations could be one of the mechanisms that lead to limited recall. The current experimental study therefore investigated the associations between (analog) patients' psychophysiological arousal, self-reported emotional stress and their (long term) memory of information provided by the physician. One hundred and eighty one cancer-naïve individuals acted as so-called analog patients (APs), i.e. they were instructed to watch a scripted video-recoding of an oncological bad news consultation while imagining themselves being in the patient's situation. Electrodermal and cardiovascular activity (e.g. skin conductance level and heart rate) were recorded during watching. Self-reported emotional stress was assessed before and after watching, using the STAI-State and seven Visual Analog Scales. Memory, both free recall and recognition, was assessed after 24-28 h. Watching the consultation evoked significant psychophysiological and self-reported stress responses. However, investigating the associations between 24 psychophysiological arousal measures, eight self-reported stress measures and free recall and recognition of information resulted in one significant, small (partial) correlation (r ¼ 0.19). Considering multiple testing, this significant result was probably due to chance. Alternative analytical methods yielded identical results, strengthening our conclusion that no evidence was found for relationships between variables of interest. These null-findings are highly relevant, as they may be considered to refute the long-standing, but yet untested assumption that a relationship between stress and memory exists within this context. Moreover, these findings suggest that lowering patients' stress levels during the consultation would probably not be sufficient to raise memory of information to an optimal level. Alternative explanations for these findings are discussed. ARTICLE HISTORY Lay summaryHigh levels of emotional stress experienced by patients during medical consultations might explain why they forget 20-80% of information provided by their physician. Although we were able to induce emotional stress in the participants of this experimental study, no evidence was found for a relationship between stress levels and memory of medical information. These results suggest that to improve patients' memory more is needed than lowering patients' stress levels only.

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“…This requires the patient to have a clear understanding about their condition and how to manage their symptoms effectively. Information given verbally during a consultation can be quickly forgotten and is frequently misinterpreted [3]. Hence, patient information leaflets (PILS) are used to augment the advice offered during the clinical encounter [4], empowering patients to become more involved in their treatment decisions and to take greater self-care [5].…”

Section: Introductionmentioning

confidence: 99%

Readability, Presentation and Quality of Allergy-related Patient Information Leaflets; A Cross Sectional and Longitudinal Study

Paudyal

Capel-Williams²,

Griffiths³

et al. 2015

J Allergy Ther

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Objective:Patient information leaflets (PILs) are widely used to reinforce or illustrate health information and to complement verbal consultation. The objectives of the study were to assess the readability and presentation of PILs published by Allergy UK, and to conduct a longitudinal assessment to evaluate the impact of leaflet amendment and revision on readability.Methods:Readability of Allergy UK leaflets available in 2013 was assessed using Simple Measure of Gobbledegook (SMOG) and Flesch-Kincaid Reading Grade Formula. Leaflet presentation was evaluated using the Clear Print Guidelines of the Royal National Institute of Blind People (RNIB) and the Patient Information Appraisal System developed by the British Medical Association (BMA). Changes in the leaflets' readability scores over five years were investigated.Results:108 leaflets, covering a wide range of allergic conditions and treatment options, were assessed. The leaflets had average SMOG and Flesch-Kincaid scores of 13.9 (range 11-18, SD 1.2) and 10.9 (range 5-17, SD 2.1) respectively. All leaflets met the RNIB Clear Print guidelines, with the exception of font size which was universally inadequate. The leaflets scored on average 10 (median 10, range 7-15) out of a maximum of 27 on the BMA checklist. The overall average SMOG score of 31 leaflets available in both 2008 and 2013 had not changed significantly. The process of leaflet revision resulted in 1% change in readability scores overall, with a predominantly upward trend with six leaflets increasing their readability score by >10% and only three decreasing by >10%.Conclusion:Allergy-related patient information leaflets are well presented but have readability levels that are higher than those recommended for health information. Involving service users in the process of leaflet design, together with systematic pre-publication screening of readability would enhance the accessibility and comprehensibility of written information for people with allergy and their careers.

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Patient Information Recall in a Rheumatology Clinic

Cited by 139 publications

References 0 publications

Assessing the Suitability of Written Stroke Materials: An Evaluation of the Interrater Reliability of the Suitability Assessment of Materials (SAM) Checklist

Assessing the Suitability of Written Stroke Materials: An Evaluation of the Interrater Reliability of the Suitability Assessment of Materials (SAM) Checklist

Are psychophysiological arousal and self-reported emotional stress during an oncological consultation related to memory of medical information? An experimental study

Readability, Presentation and Quality of Allergy-related Patient Information Leaflets; A Cross Sectional and Longitudinal Study

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