Patient involvement in Europe – a comparative framework

Dent, Mike; Pahor, Majda

doi:10.1108/jhom-05-2015-0078

Cited by 136 publications

(186 citation statements)

References 25 publications

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“…Service user involvement is considered essential in promoting people’s health and ensuring the quality of health services (Dent & Pahor, 2015; Rise & Steinsbekk, 2016; Snyder & Engström, 2016; Tenbensel, 2010; WHO, 1986; Williamson, 2014), and is described as one of the ideals of contemporary health care (Longtin et al, 2010). A number of studies have shown that user involvement has potential benefits in changing health-related behaviours, empowering citizens to take greater responsibility for their own health, controlling health costs, improving the quality of health care provision and increasing patients’ satisfaction and adherence to treatment (Angel & Frederiksen, 2015; Castro, Van Regenmortel, Vanhaecht, Sermeus, & Van Hecke, 2016; Phillips, Street, & Haesler, 2016; Williamson, 2014).…”

Section: Introductionmentioning

confidence: 99%

Individual user involvement at Healthy Life Centres: a qualitative study exploring the perspective of health professionals

Sagsveen

Rise

Grønning

et al. 2018

International Journal of Qualitative Studies on Health and Well

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The aim of this study was to explore how professionals experience user involvement at an individual level and how they describe involving users at Healthy Life Centres. Four focus group interviews were conducted with a total of 23 professionals. Data were analysed using systematic text condensation. Four themes were identified: (1) Involving users through motivational interviewing; (2) Building a good and trustful relation; (3) Assessing and adjusting to the user’s needs and life situation; and(4) Strengthening the user’s ownership and participation in the lifestyle change process. Motivational interviewing was described by the professionals as a way to induce and ensure user involvement. However, seeing motivational interviewing and user involvement as the same concept might reduce user involvement from being a goal in itself and evolve into a means of achieving lifestyle changes. The professionals might be facing opposing discourses in their practice and a dilemma of promoting autonomy and involvement and at the same time promoting change in a predefined direction. Greater emphasis should thus be put on systematic reflection among professionals about what user involvement implies in the local Healthy Life Centre context and in each user’s situation. Abbreviations: HLC: Healthy Life Centre; MI: Motivational Interviewing; NCD: Non-communicable diseases; STC: Systematic Text Condensation. SDT: Self-determination theory

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Section: Introductionmentioning

confidence: 99%

Individual user involvement at Healthy Life Centres: a qualitative study exploring the perspective of health professionals

Sagsveen

Rise

Grønning

et al. 2018

International Journal of Qualitative Studies on Health and Well

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show abstract

“…Individual patients, citizens and their representatives are negotiating competing roles as citizens, consumers and co-producers. 4 Simultaneously we are witnessing the rise of increasingly commodified sources of 'patient experience. ' 17 Internationally, distinctions between the market, the state and civil society have become increasingly blurred, and PPI worldwide operates within this liminal space.…”

Section: Concluding Commentsmentioning

confidence: 99%

“…Longstanding questions about citizen voice and consumer choice persist. 4 A more recent phenomenon is a commodified form of PPI that is enacted in a marketplace characterized by an increasing plurality of suppliers, with varied and sometimes opaque mechanisms for representation.…”

Section: Establishing Credibility: Does Local Healthwatch Have a 'Usp'?mentioning

confidence: 99%

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Challenges Facing Healthwatch, a New Consumer Champion in England

Carter

Martin

2016

Int J Health Policy Manag

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This article engages with debates about the conceptualisation and practical challenges of patient and public involvement (PPI) in health and social care services. Policy in this area in England has shifted numerous times but increasingly a consumerist discourse seems to override more democratic ideas concerning the relationship between citizens and public services. Recent policy change in England has seen the creation of new consumer champion bodies in the form of local Healthwatch. The article describes these new organisational structures for PPI and shows how those who seek to influence planning and delivery of services or comment or complain about aspects of their care face considerable complexity. This is due, in part, to the ambiguous remit set out for newly instigated Healthwatch organisations by government. Drawing on governance theory, we show that it can also be understood as a function of an increasingly polycentric governance arena. Challenges that flow from this include problems of specifying jurisdictional responsibility, accountability, and legitimacy. We review Healthwatch progress to date, then we set out four challenges facing local Healthwatch organisations before discussing the implications of these for patients and the public. The first challenge relates to non-coterminous boundaries and jurisdictional integrity. Secondly, establishing the unique features of Healthwatch is problematic in the crowded PPI arena. The third challenge arises from limited resources as well as the fact that resources flow to Healthwatch from the local authorities that Healthwatch are expected to hold to account. The fourth challenge we identify is how local Healthwatch organisations negotiate the complexity of being a partner to statutory and other organisations, while at the same time being expected to champion local people's views.

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“…In recent decades we have seen the prioritisation of choice and autonomy as key quality indicators in many western palliative care services (Borgstrom and Walter, 2015;Ho, 2008;IHF, 2014). A clear illustration of this in Ireland and other European countries is the promotion of patient involvement (Dent and Pahor, 2015), especially in relation to place of care and death (Eurobarometer, 2007). In many countries, the delivery of home care has been promoted as the ideal type of formal care, offering cost savings to local authorities and 'choice' for palliative-care patients and their families.…”

Section: Introductionmentioning

confidence: 99%

The Commodification of Care: a Critical Exploration of the Marketing Mix for Domiciliary Care at the End-of-Life

Lolich

2017

DBSBR

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Patient involvement in Europe – a comparative framework

Abstract: The paper presents a robust model for comparative research. The findings may well be useful not only to researchers but also to policy makers and analysts.

Cited by 136 publications

References 25 publications

Individual user involvement at Healthy Life Centres: a qualitative study exploring the perspective of health professionals

Individual user involvement at Healthy Life Centres: a qualitative study exploring the perspective of health professionals

Challenges Facing Healthwatch, a New Consumer Champion in England

The Commodification of Care: a Critical Exploration of the Marketing Mix for Domiciliary Care at the End-of-Life

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