Patient participation from the perspective of staff members working in spinal cord injury rehabilitation

Abstract

Study design Qualitative method, semi-structured interviews. Objectives The aims of this study were to explore the meaning of patient participation from the perspective of staff members working with spinal cord injury (SCI) rehabilitation, and what they saw as requisites for and constraints to patient participation. Setting Swedish spinal injury unit. Methods Interviews with 13 staff members at a spinal unit were conducted individually and analyzed by means of content analysis.Results One category describing patient participation emerged from the interviews: Patient -a team member. Four categories were extracted as requisites: Communication; information and knowledge; routines; respecting the patient as a unique person; and an open climate. Three categories of constraints were identified: Understaffing and new staff members; patients' inability to grasp information; and structures and fragmented responsibilities. Conclusions The informants were unanimous in stating that the patient is an integral and natural member of the rehabilitation team. Recognizing the person with SCI as a team member acknowledges and endorses the patient as a person with capabilities to participate in his or her rehabilitation. The patient as a person also means that he or she has unique needs and preferences, which the staff members must accommodate. This is also fundamental in a person-centered approach. Therefore, the viewpoints of the informants may be useful for other settings to enhance person centeredness and patient participation.

Nursing staff facilitate patient participation by championing the patient's perspective: An action research study in spinal cord injury rehabilitation

“…[5][6][7][8] In spinal cord injury (SCI) rehabilitation, patient participation is highlighted as a key to successful rehabilitation. [9][10][11] This is due to the patient's struggle to cope with the far-reaching consequences of an SCI on physical, psychological, social and existential levels. [12][13][14][15] The, often sudden, disruption of an individual's life has wideranging consequences, and his or her work life, family life and social life may change forever, which may lead to a lower quality of life 16 and/or severe psychiatric conditions.…”

Rasch analysis of the Patient Participation in Rehabilitation Questionnaire (PPRQ)

“…Thus, the PPRQ was developed on the assumption that patient participation is a multidimensional concept, comprising five subscales: respect and integrity , planning and decision making , information and knowledge , motivation and encouragement , and involvement of family . Also, the content of PPRQ seems to corroborate a broader patient perspective; the understanding of staff; theories of PCC; and other similar questionnaires . However, recent Rasch validations of two other similar questionnaires, the Patient Preference for Patient Participation tool (The 4Ps) and Person‐Centered Care in outpatient care in rheumatology (PCCoc/rheum), suggest a unidimensionality for similar subcomponents as the PPRQ.…”

Grieving a disrupted biography: an interpretative phenomenological analysis exploring barriers to the use of mindfulness after neurological injury or impairment

“…The second superordinate theme identified the role of proactive self-management used to support the reconciliation of an individual's past and present health status and foster day-to-day self-care. Principally this theme reflected the challenges inherent in regaining autonomy and a sense of responsibility over one's own health status -factors considered core to successful rehabilitation and self-management [37]. With tightening rehabilitation timelines [38], self-management is increasingly important to facilitate the ability to take responsibility over one's own health [39].…”