T reatment of multiple sclerosis (MS), a chronic and progressive neurological disease affecting numerous health dimensions, 1 can involve a range of specialty providers.2 MS specialists have expertise in the use of MS treatments and management of side effects. Patients treated by MS specialists are more likely to receive MS-related tests and treatment. [1][2][3] Previous studies indicated that most people with MS visit a neurologist at least once a year and that increased contact with a neurologist affects quality of life. [4][5][6] One study found that people with MS rated their MSrelated care as superior when their principal care physician was a neurologist, compared to people with MS whose principal care physician was a medical internist, family or general practitioner, or other physician.
7Given the complexity of MS, many experts recommend that comprehensive care be provided by interdisciplinary teams. 1,2,8 This research builds on a previous study identifying urban-rural differences in demographics and disease characteristics among people with MS. 9 The earlier study found significant urban-rural differences in various patient and MS characteristics. That study analyzed differences in demographic and MS characteristics based on location of residence of the person with MS. In contrast, the research presented in this article focuses on differences based on whether the person with MS was treated by a neurologist. The objective of this study was to identify differences in demographics, disease characteristics, and patient perceptions of health care between people with MS treated by neurologists or specialists at an MS clinic and those not receiving any care from a neurologist in the previous 12 months. The study also makes a distinction between people with MS who have a neurologist as their principal care physician and those who were treated by a neurologist in the previous 12 months. These analyses include patient-perceived differences in access to and quality of MS-focused care.
MethodsThe current study is part of a larger research project that included 1518 people with MS living throughout the United States. Because the purpose of the larger project was to learn more about people living with MS in rural locations, the survey sample was weighted so that about two-thirds of respondents lived outside metropolitan statistical areas (MSAs). The sample was selected from three urban-rural subgroups: MSAs, adjacent rural areas located within 50 miles of an MSA,
Neurologist Versus Nonneurologist Care of Multiple Sclerosis PatientsRobert J. Buchanan, PhD; Michael Kaufman, MD; Li Zhu, PhD; Wesley James, MSThe purpose of this study was to identify differences between people with multiple sclerosis (MS) who are treated by someone other than a neurologist and those treated by neurologists or specialists at MS clinics. Factors studied included demographics, disease characteristics, and patient perceptions of care. We surveyed 1518 people with MS, organizing respondents into four groups based on who provided their care: a ...