Patient Perceptions of Pre-Implementation of Personal Health Records (PHRs): A Qualitative Study of People Living With HIV in New York City

Smith, Ann; Odlum, EdD Michelle; Sikka, Manik; Bakken, Suzanne; Kanter, Tim

doi:10.1080/15381501.2012.735166

Cited by 9 publications

(7 citation statements)

References 27 publications

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“…PHRs can also assist users in monitoring daily self-care activities and enable patients to collaborate and share their experiences with their providers and caregivers. As an integrated patient-centered technology, PHRs also offer the means for increased patient engagement through improved provider-patient and physician-patient communication [ 14 , 54 , 66 , 68 , 74 ], thus leading to greater personalization of care [ 3 ].…”

Section: Resultsmentioning

confidence: 99%

“…The overarching vision behind PHR technology offerings is to enable patient empowerment, reduce health care costs, and provide better continuity of care [ 3 ] through access to timely, reliable, and comprehensible health information for patients and streamlined communication between patients and health care providers [ 13 , 14 ]. The objective of this paper is to offer a review of the utility, value, and benefits of PHR systems through a discussion of their features and functions and to deliberate how PHR functionality can potentially translate into value for the health care consumer and benefits for the health care system as a whole.…”

Section: Introductionmentioning

confidence: 99%

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Utility, Value, and Benefits of Contemporary Personal Health Records: Integrative Review and Conceptual Synthesis

Ruhi

Chugh

2021

J Med Internet Res

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Background Contemporary personal health record (PHR) technologies offer a useful platform for individuals to maintain a lifelong record of personally reported and clinically sourced data from various points of medical care. Objective This paper presents an integrative review and synthesis of the extant literature on PHRs. This review draws upon multiple lenses of analysis and deliberates value perspectives of PHRs at the product, consumer, and industry levels. Methods Academic databases were searched using multiple keywords related to PHRs for the years 2001-2020. Three research questions were formulated and used as selection criteria in our review of the extant literature relevant to our study. Results We offer a high-level functional utility model of PHR features and functions. We also conceptualize a consumer value framework of PHRs, highlighting the applications of these technologies across various health care delivery activities. Finally, we provide a summary of the benefits of PHRs for various health care constituents, including consumers, providers, payors, and public health agencies. Conclusions PHR products offer a myriad of content-, connectivity-, and collaboration-based features and functions for their users. Although consumers benefit from the tools provided by PHR technologies, their overall value extends across the constituents of the health care delivery chain. Despite advances in technology, our literature review identifies a shortfall in the research addressing consumer value enabled by PHR tools. In addition to scholars and researchers, our literature review and proposed framework may be especially helpful for value analysis committees in the health care sector that are commissioned for the appraisal of innovative health information technologies such as PHRs.

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Section: Resultsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Utility, Value, and Benefits of Contemporary Personal Health Records: Integrative Review and Conceptual Synthesis

Ruhi

Chugh

2021

J Med Internet Res

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“…Other services can be added to ePHRs, such as booking appointments, requesting referrals, messaging health care providers, requesting medication refills, and educational materials [ 3 , 4 ]. Several benefits may be gained from using ePHRs, such as empowering patients [ 5 , 6 ], increasing their adherence to medication [ 7 , 8 ], improving their self-management [ 8 , 9 ], enhancing patient-provider relationships and communications [ 10 , 11 ], decreasing adverse events and allergic reactions [ 11 , 12 ], and avoiding duplicated tests [ 11 , 12 ].…”

Section: Introductionmentioning

confidence: 99%

Patients’ Perspectives About Factors Affecting Their Use of Electronic Personal Health Records in England: Qualitative Analysis

Abd‐Alrazaq¹,

Safi²,

Bewick³

et al. 2021

J Med Internet Res

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Background General practices (GPs) in England have recently introduced a nationwide electronic personal health record (ePHR) system called Patient Online or GP online services, which allows patients to view parts of their medical records, book appointments, and request prescription refills. Although this system is free of charge, its adoption rates are low. To improve patients’ adoption and implementation success of the system, it is important to understand the factors affecting their use of the system. Objective The aim of this study is to explore patients’ perspectives of factors affecting their use of ePHRs in England. Methods A cross-sectional survey was carried out between August 21 and September 26, 2017. A questionnaire was used in this survey to collect mainly quantitative data through closed-ended questions in addition to qualitative data through an open-ended question. A convenience sample was recruited in 4 GPs in West Yorkshire, England. Given that the quantitative data were analyzed in a previous study, we analyzed the qualitative data using thematic analysis. Results Of the 800 eligible patients invited to participate in the survey, 624 (78.0%) returned a fully completed questionnaire. Of those returned questionnaires, the open-ended question was answered by 136/624 (21.8%) participants. A total of 2 meta-themes emerged from participants’ responses. The first meta-theme comprises 5 themes about why patients do not use Patient Online: concerns about using Patient Online, lack of awareness of Patient Online, challenges regarding internet and computers, perceived characteristics of nonusers, and preference for personal contact. The second meta-theme contains 1 theme about why patients use Patient Online: encouraging features of Patient Online. Conclusions The challenges and concerns that impede the use of Patient Online seem to be of greater importance than the facilitators that encourage its use. There are practical considerations that, if incorporated into the system, are likely to improve its adoption rate: Patient Online should be useful, easy to use, secure, and easy to access. Different channels should be used to increase the awareness of the system, and GPs should ease registration with the system and provide manuals, training sessions, and technical support. More research is needed to assess the effect of the new factors found in this study (eg, lack of trust, difficulty registering with Patient Online) and factors affecting the continuing use of the system.

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“…Our review of the extant literature indicates that patients with chronic illnesses or disabilities, their caregivers, and people caring for older persons are more likely to adopt and use PHR technologies [ 15 , 44 - 46 , 58 - 61 ]. These groups of users will find PHR technologies useful as a communication tool to obtain personalized care from their clinicians [ 7 , 47 - 50 , 59 ] and as an organizational tool to help track patient health conditions, maintain medication lists, write patient diaries, and keep notes from physician consultations [ 7 , 8 , 41 , 49 , 50 , 60 , 62 ].…”

Section: Introductionmentioning

confidence: 99%

Sociotechnical Drivers and Barriers in the Consumer Adoption of Personal Health Records: Empirical Investigation

Ruhi¹,

Majedi²,

Chugh³

2021

JMIR Med Inform

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Background Increasingly popular in the health care domain, electronic personal health records (PHRs) have the potential to foster engagement toward improving health outcomes, achieving efficiencies in care, and reducing costs. Despite the touted benefits of PHRs, their uptake is lackluster, with low adoption rates. Objective This paper reports findings from an empirical investigation of the sociotechnical factors affecting the adoption of PHRs. Methods A research model comprising personal and technological determinants of PHR adoption was developed and validated in this study. Demographic, technographic, and psychographic data pertaining to the use of PHRs were collected through a web-based questionnaire for past, current, and potential users. Partial least squares-based structural equation modeling was used to estimate a structural model of cognitive and affective factors impacting intentions to use PHRs. Results The analysis revealed that in addition to the expected positive impact of a PHR system’s usefulness and usability, system integration also positively affects consumers’ intention to adopt. The results also suggest that higher levels of perceived usability and integration do not translate into higher levels of perceived usefulness. The study also highlights the importance of subjective norms, technology awareness, and technology anxiety as direct antecedents of the intention to adopt PHRs. The differential effects of the adoption factors are also discussed. Conclusions We hope that our study will contribute to the understanding of consumer adoption of PHRs and help improve the design and delivery of consumer-centric health care technologies. After discussing the implications for research, we provide suggestions and guidelines for PHR technology developers and constituents in the health care delivery chain.

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Patient Perceptions of Pre-Implementation of Personal Health Records (PHRs): A Qualitative Study of People Living With HIV in New York City

Cited by 9 publications

References 27 publications

Utility, Value, and Benefits of Contemporary Personal Health Records: Integrative Review and Conceptual Synthesis

Utility, Value, and Benefits of Contemporary Personal Health Records: Integrative Review and Conceptual Synthesis

Patients’ Perspectives About Factors Affecting Their Use of Electronic Personal Health Records in England: Qualitative Analysis

Sociotechnical Drivers and Barriers in the Consumer Adoption of Personal Health Records: Empirical Investigation

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