Patient perspectives on living with chronic myeloid leukemia in India: Quality of life, psychosocial support, and stigma

Abstract

Chronic myeloid leukemia (CML) stands a frequently encountered type of blood cancer. Despite advancements in treatment, CML patients in India encounter obstacles in accessing healthcare and managing treatment-related side effects. This review focuses on understanding the experiences of patients living with CML in India. It delves into various aspects, such as their quality of life, the psychosocial support they receive, and the stigma they might face due to their condition. Psychological, emotional, and financial burdens are significant, compounded by limited social support and stigma. Coping strategies and psychosocial interventions play crucial roles in addressing these challenges. In addition, the review underscores the importance of patient-centred care and advocacy in enhancing outcomes and addressing unmet needs in CML management. Understanding the experiences of patients living with CML informs strategies for improving healthcare services and support systems to ensure holistic care and a better quality of life for patients.