Patient preferences and experiences of participation in surgical cancer care

Drott, Jenny; Fomichov, Victoria; Nordén, Maria; Larsson, Anna; Sandström, Per; Björnsson, Bergþór; Eldh, Ann Catrine

doi:10.1111/wvn.12589

Cited by 8 publications

(10 citation statements)

References 45 publications

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“…What patients prioritise for their participation in IC is ‘being listened to’ (Item 1) and ‘having reciprocal communication’ (Item 3). Drott et al 45 also found that this was the case for surgical cancer patients, indicating the importance of constructive dialogues with HCPs. Any such dialogue should be two‐way to provide a mutual exchange of information and knowledge, including opportunities to address barriers such as reduced health literacy and/or fatigue 48 .…”

Section: Discussionmentioning

confidence: 95%

“…Drott et al 45 also found that this was the case for surgical cancer patients, indicating the importance of constructive dialogues with…”

Section: Phase 2: Piloting Of the 4p Instrumentmentioning

confidence: 93%

“…such as surgical cancer care 45 and renal care, 46 where approximately two-thirds reached a sufficient level. However, the findings correspond well with previous research on IC, [23][24][25] indicating room for more person-centred patient participation.…”

Section: Phase 2: Piloting Of the 4p Instrumentmentioning

confidence: 99%

“…While this also provides HCPs with an opportunity to evaluate the conditions for preference-based patient participation, 29 current studies indicate that staff and managers may need further support for implementing such internal quality assessments. However, while previous studies employing the 4Ps have solely used self-reports filed by researchers, 31,[44][45][46] we propose future studies to further engage in a mutual coproduction of patient participation. 47 Patient participation entails that the provision of care should be guided by the patients' needs, goals and conditions and should include opportunities for participation.…”

Section: Phase 2: Piloting Of the 4p Instrumentmentioning

confidence: 99%

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Preference‐based patient participation in intermediate care: Translation, validation and piloting of the 4Ps in Norway

Kvæl,

Bergland,

Eldh

2023

Health Expectations

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IntroductionThe implementation and evaluation of patient participation to obtain high‐quality transitional care for older people is an international priority. Intermediate care (IC) services are regarded as an important part of the patient's pathway from the specialist to the primary care levels, bridging the gap between the hospital and the home. Patients may experience varying capacities and conditions for patient participation. Yet, few tools for evaluating patients' preferences for patient participation within IC services are at hand. Accordingly, further knowledge is needed to understand and scaffold processes for patient participation in IC. Therefore, the aim of this project was to translate, validate and pilot test the Patient Preferences for Patient Participation (the 4Ps) with patients in IC services in Norway.MethodsThis project comprised two phases: (1) a careful translation and cultural adaptation process, followed by a content validity trial among 15 patients and staff in Norwegian IC and (2) a cross‐sectional survey of the instrument with 60 patients admitted to IC.ResultsThe translation between Swedish and Norwegian required no conceptual or contextual adaptations. The subsequent cross‐sectional study, designed as a dialogue between the patients and staff, revealed that only 50% of the participants received a sufficient level of patient participation based on their preferences, mostly indicating that patients were receiving less‐than‐preferred conditions for engaging in their health and healthcare issues.ConclusionThe 4Ps instrument was deemed suitable for measuring patient participation based on patient preferences in the IC context and was feasible for both healthcare professionals and patients to complete in an interview when arriving at and leaving services. This may support person‐centred communication and collaboration, calling for further research on what facilitates patient participation and the implementation of person‐centred services for patients in IC.Patient or Public ContributionFirst, the current paper is part of the IPIC study (i.e., the implementation of patient participation in IC). Influenced by a James Lind Alliance process, the study addresses research uncertainties identified by patients, next of kin, staff and researchers in the cocreation process. Second, cognitive interviewing was conducted with 15 representatives of the target population: seven patients receiving IC services, one home‐dwelling previous IC patient (altogether four women and four men, most of them 80 years or older) and seven healthcare staff working in IC services. The interviews determined the relevance, comprehensiveness and clarity of the 4Ps. Finally, 60 patients admitted to IC took part in the cross‐sectional study.

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Section: Discussionmentioning

confidence: 95%

“…Drott et al 45 also found that this was the case for surgical cancer patients, indicating the importance of constructive dialogues with…”

Section: Phase 2: Piloting Of the 4p Instrumentmentioning

confidence: 93%

Section: Phase 2: Piloting Of the 4p Instrumentmentioning

confidence: 99%

Section: Phase 2: Piloting Of the 4p Instrumentmentioning

confidence: 99%

See 2 more Smart Citations

Preference‐based patient participation in intermediate care: Translation, validation and piloting of the 4Ps in Norway

Kvæl,

Bergland,

Eldh

2023

Health Expectations

Self Cite

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“…Patient participation may increase motivation and quality of care. Having reciprocal communication, being listened to by the healthcare professional and learning about what was planned for the individual was an attribute of participation in a study of patients in surgical cancer care (72).…”

Section: Ii)mentioning

confidence: 99%

Enterocutaneous fistula : Patients', families' and healthcare professionals' experiences - epidemiology and outcomes

Härle

2023

Linköping University Medical Dissertations

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Introduction: Enterocutaneous fistula is a rare and complex condition with high morbidity.The condition causes multiple health problems, and it is both physically and psychologically demanding for the affected person and their families. Infection, fistula wound care challenges, electrolyte and fluid imbalance, and malnutrition render the individual in need of long periods of in-hospital care and homecare. This also places great demands on healthcare professionals and knowledge among healthcare professionals can be lacking. The patients have different needs and person-centred care is one way to promote individualised care based on the patient's specific needs. Research about how enterocutaneous fistula affects the individual and their families is scarce, and healthcare professionals often have little experience providing care for these patients. There is also a lack of population-based studies on enterocutaneous fistula.The annual incidence of enterocutaneous fistula was 1.87 per 100.000 persons. Cumulative enterocutaneous fistula related in-hospital care, until closure or end of follow-up, was median 4 (range 0-61) weeks. Thirty-seven per cent of the patients needed parenteral supplementation and 80% needed help with fistula wound care. Home-based healthcare, i.e., fistula wound care, resources for parenteral feeding and access to 24-hour emergency wound care at home, was provided to 42.2% of the patients. Estimated overall mortality at one, three, and five years was 33.7%, 42.1%, and 47.6%, respectively. Mortality was dominated by patients who did not have spontaneous closure of the enterocutaneous fistula or undergo reconstructive surgery.Conclusions: Enterocutaneous fistula is a serious condition with a high overall mortality and the patients need a lot of healthcare resources. The condition restricts the patient's and family's daily life and leads to social isolation and psychological distress. By promoting person-centred care and patient participation, the healthcare professionals can strengthen autonomy in daily life and improve the patient's ability to cope with the situation. Regular team meetings of the multidisciplinary team, careful planning before discharge and providing person-centred care can facilitate the care process for everyone involved.

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Patient participation in orthopaedic care—a survey on hip surgery patients’ preferences for and experiences of engagement in their health and healthcare

Sköld,

Hälleberg-Nyman,

Joelsson-Alm

et al. 2024

International Journal of Orthopaedic and Trauma Nursing

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Patient preferences and experiences of participation in surgical cancer care

Cited by 8 publications

References 45 publications

Preference‐based patient participation in intermediate care: Translation, validation and piloting of the 4Ps in Norway

Preference‐based patient participation in intermediate care: Translation, validation and piloting of the 4Ps in Norway

Enterocutaneous fistula : Patients', families' and healthcare professionals' experiences - epidemiology and outcomes

Patient participation in orthopaedic care—a survey on hip surgery patients’ preferences for and experiences of engagement in their health and healthcare

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