Patient priorities of care in rheumatology outpatient clinics: a qualitative study

Ward, Vicky; Hill, Jackie; Hale, Claire; Bird, H. A.; Quinn, Helen; Thorpe, R.

doi:10.1002/msc.111

Cited by 31 publications

(58 citation statements)

References 24 publications

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“…Needs as a concept in musculoskeletal care has been researched (Müllersdorf, 2000(Müllersdorf, , 2002Müllersdorf and Söderback, 2000;Radford et al, 2008;Ward et al, 2007), and a needs assessment should always precede a healthcare intervention (Lawton, 1999). Well-developed instruments for baseline assessment establish a structured base from which needs assessments and individual plans of interventions could be developed (Law et al, 2005).…”

Section: Introductionmentioning

confidence: 99%

Exploring indicators for pain rehabilitation: A Delphi study using a multidisciplinary expert panel

Skjutar

Christensson

Müllersdorf

2009

Musculoskeletal Care

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Section: Introductionmentioning

confidence: 99%

Exploring indicators for pain rehabilitation: A Delphi study using a multidisciplinary expert panel

Skjutar

Christensson

Müllersdorf

2009

Musculoskeletal Care

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“…Therefore, patient-reported HRQOL and participation are now widely recognized as important outcome measures when assessing treatment efficacy in RA, allowing for better understanding of the correlation between different aspects of disease activity and its broad burden on patients 5,6 . Patient-reported outcomes (PRO), including global assessment of disease activity, pain, physical function, measures of HRQOL, and fatigue, are commonly used to assess efficacy in RA randomized controlled trials 7 , and their inclusion in clinical practice has become increasingly important 8,9 . In addition, assessment of participation in RA, e.g., productivity, as well as engagement in family/social and leisure activities, offers value from both individual and societal perspectives 5,10,11 .…”

mentioning

confidence: 99%

Patient Expectations and Perceptions of Goal-setting Strategies for Disease Management in Rheumatoid Arthritis

Strand

Wright²,

Bergman³

et al. 2015

J Rheumatol

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Objective.To identify how patients perceive the broad effect of active rheumatoid arthritis (RA) on their daily lives and indicate how RA disease management could benefit from the inclusion of individual goal-setting strategies.Methods.Two multinational surveys were completed by patients with RA. The “Good Days Fast” survey was conducted to explore the effect of disease on the daily lives and relationships of women with RA. The “Getting to Your Destination Faster” survey examined RA patients’ treatment expectations and goal-setting practices.Results.Respondents from all countries agreed that RA had a substantial negative effect on many aspects of their lives (work productivity, daily routines, participation in social and leisure activities) and emotional well-being (loss of self-confidence, feelings of detachment, isolation). Daily pain was a paramount issue, and being pain- and fatigue-free was considered the main indicator of a “good day.” Setting personal, social, and treatment goals, as well as monitoring disease progress to achieve these, was considered very beneficial by patients with RA, but discussion of treatment goals seldom appeared to be a part of medical appointments.Conclusion.Many patients with RA feel unable to communicate their disease burden and treatment goals, which are critically important to them, to their healthcare provider (HCP). Insights gained from these 2 surveys should help to guide patients and HCP to better focus upon mutually defined goals for continued improvement of management and achievement of optimal care in RA.

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“…Patients want to be able to ask for information freely and when they need it, and hope for clear answers, avoiding medical jargon. A way to do this is through oral explanations by professionals, in addition to written information (Ward et al, 2007).…”

Section: Information Needs About Disease Treatment and Medicationmentioning

confidence: 99%

What do we know about rheumatoid arthritis patients’ support needs for self-management? A scoping review

Zuidema

Repping-Wuts²,

Evers

et al. 2015

International Journal of Nursing Studies

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Patient priorities of care in rheumatology outpatient clinics: a qualitative study

Abstract: This research adds to the body of evidence on what patients want from their rheumatology care, and each theme has clear implications for future practice.

Cited by 31 publications

References 24 publications

Exploring indicators for pain rehabilitation: A Delphi study using a multidisciplinary expert panel

Exploring indicators for pain rehabilitation: A Delphi study using a multidisciplinary expert panel

Patient Expectations and Perceptions of Goal-setting Strategies for Disease Management in Rheumatoid Arthritis

What do we know about rheumatoid arthritis patients’ support needs for self-management? A scoping review

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