Patient-provider communication about the emotional cues and concerns of adolescent and young adult patients and their family members when receiving a diagnosis of cancer

Korsvold, Live; Mellblom, Anneli; Lie, Hanne C.; Ruud, Ellen; Loge, Jon Håvard; Finset, Arnstein

doi:10.1016/j.pec.2016.03.028

Cited by 32 publications

(19 citation statements)

References 33 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…Research has shown that when people are told a cancer diagnosis, conversations tend to be information-focussed and HCPs often miss opportunities to address emotional concerns expressed by patients and their families. 43 Our results similarly identified that the psychoso- Finally, where it is possible to structure AYAs' care within the one institution, our results suggest that this may positively benefit well-being.…”

Section: Discussionsupporting

confidence: 76%

Do Australian adolescents' and young adults' experiences of cancer care influence their quality of life?

et al. 2018

View full text Add to dashboard Cite

The results suggest that, for most AYAs' quality of life outcomes, positive experiences of age-appropriate communication and emotional support may underpin the effect of positive experiences of care throughout the cancer care pathway. The results support the need for communication and support tailored to an AYA audience, as recognised by recent Australian and international guidelines on the care of AYAs with cancer.

show abstract

Section: Discussionsupporting

confidence: 76%

Do Australian adolescents' and young adults' experiences of cancer care influence their quality of life?

et al. 2018

View full text Add to dashboard Cite

show abstract

“…As previously suggested (31), these findings imply that a deeper understanding of the psychosocial burden of RA will enable health care providers to better manage or prevent patient-provider discordance. However, addressing this issue may present challenges because providers may not recognize psychosocial cues that patients present (32,33). When patients voice distress or other negative affective tones during rheumatology visits, their adherence to recommended treatments is predictably lower over time (34).…”

Section: Discussionmentioning

confidence: 99%

“Like No One Is Listening to Me”: A Qualitative Study of Patient–Provider Discordance Between Global Assessments of Disease Activity in Rheumatoid Arthritis

Kvrgic

Asiedu

Crowson

et al. 2018

Arthritis Care & Research

View full text Add to dashboard Cite

Patients described discordance in terms of symptom assessment and understanding how RA affects everyday life. Typical clinical assessments did not capture their experience. The resulting conceptual framework should inform future interventional studies seeking to enhance concordance of patient-physician communication and to optimize satisfaction with care and health-related quality-of-life outcomes for patients with RA.

show abstract

“…It could be needed, for instance, when complications turn up or walking ability vanishes. Previously, communication in medical consultations at the time of a cancer diagnosis has been found to be dominated by information-giving although the affected adolescents or young adults and their relatives often expressed emotional concerns [20]. Among family carers, emotional stress engendered by poor communication when receiving the news of a diagnosis of a progressive disease has been shown, but a majority of the participants were satisfied because they had longer consultation time, the neurologist was empathetic, the information and support provided was perceived to be relevant, and there was a plan for following up support [21].…”

Section: Discussionmentioning

confidence: 99%

Perceptions of the transition from receiving the diagnosis recessive limb-girdle muscular dystrophy to becoming in need of human support and using a wheelchair: an interview study

Aho

Hultsjö

Hjelm

2018

Disability and Rehabilitation

View full text Add to dashboard Cite

Purpose: To describe perceptions of the transition from receiving the diagnosis recessive limb-girdle muscular dystrophy to becoming in need of human support to manage daily life and using a wheelchair for ambulation, from the affected young adults' and their parents' perspectives. Method: A qualitative and descriptive study design was used. Semi-structured interviews were held with 14 young adults diagnosed with recessive limb-girdle muscular dystrophy and 19 parents. Phenomenography was used for data analysis. Results: The diagnosis was described as being a shock and difficult to comprehend but also as a relief and a tool for information. Beginning to use a wheelchair was perceived to be mentally difficult but it also provided freedom. New ways of living involved physical, emotional, practical, and social difficulties as well as experiences of learning to adapt to the disease. The transition was overshadowed by concern about disease progression and influenced by facilitating factors, which were young adult being seen as a person; supportive family and friends; mobilized internal resources; meaningful daily activities; adapted environment; and professional support. Conclusions: The different perceptions expressed in this study highlight the importance of identifying personal perceptions and needs in order to optimize support provided by healthcare professionals. ä IMPLICATIONS FOR REHABILITATIONThe different perceptions described in this study emphasize the need for person-centered care for young adults living with recessive limb-girdle muscular dystrophy and their parents. Regular controls and professional support to cope with the disease and its consequences should be offered, not only at the time of diagnosis but also throughout disease progression. Beginning to use a wheelchair can be a psychologically distressing process, which has to be acknowledged by healthcare professionals when introducing it. Healthcare professionals should not only recognize the importance of having social relations and activities that are meaningful but also be a link to authorities in society and to interest organizations that can help to facilitate the person's management of the disease. ARTICLE HISTORY

show abstract

Patient-provider communication about the emotional cues and concerns of adolescent and young adult patients and their family members when receiving a diagnosis of cancer

Cited by 32 publications

References 33 publications

Do Australian adolescents' and young adults' experiences of cancer care influence their quality of life?

Do Australian adolescents' and young adults' experiences of cancer care influence their quality of life?

“Like No One Is Listening to Me”: A Qualitative Study of Patient–Provider Discordance Between Global Assessments of Disease Activity in Rheumatoid Arthritis

Perceptions of the transition from receiving the diagnosis recessive limb-girdle muscular dystrophy to becoming in need of human support and using a wheelchair: an interview study

Contact Info

Product

Resources

About