Patient, Public, Consumer, and Community Engagement: From Consucrat to Representative Comment on "The Rise of the Consucrat"

DeCamp, Matthew; Brewer, Sarah E.; Dukhanin, Vadim

doi:10.34172/ijhpm.2020.148

Cited by 4 publications

(7 citation statements)

References 24 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Consumer engagement is a key principle in the planning and delivery of health services, and is increasingly becoming a regulatory requirement in addition to an ethical obligation. 86 Involving consumers at the systems level is a strategy used worldwide to promote person-centred health-care, and in regard to opioid use may reduce stigmatisation of service users. 87 Ideally, consumer involvement should also include developing and reviewing policies with the aim of eliminating stigmatising language.…”

Section: Strategies To Reduce Stigmamentioning

confidence: 99%

The Impact of Stigma on People with Opioid Use Disorder, Opioid Treatment, and Policy

Cheetham¹,

Picco²,

Barnett³

et al. 2022

SAR

100

View full text Add to dashboard Cite

Illicit drug use disorders are the most stigmatised health conditions worldwide, and stigma acts as a meaningful barrier to treatment entry and treatment provision. In the context of dramatically rising opioid-related harms, it is critical that we understand the drivers of stigma and how it affects opioid use disorder treatment and policy. The aim of this narrative review is to discuss how opioid-related stigma impacts treatment provision and harm reduction, and provide potential strategies to reduce stigma at a social and structural level. We used the Framework for Integrating Normative Influences on Stigma (FINIS) to identify sources of opioid-related stigma at the macro (structural stigma), meso (public stigma) and micro (internalised stigma) levels. Reducing stigma requires strategies that target multiple levels, however addressing inequity in the laws, regulations, and rules that segregate people with opioid and other substance use disorders from mainstream society is essential.

show abstract

Section: Strategies To Reduce Stigmamentioning

confidence: 99%

The Impact of Stigma on People with Opioid Use Disorder, Opioid Treatment, and Policy

Cheetham¹,

Picco²,

Barnett³

et al. 2022

SAR

100

View full text Add to dashboard Cite

show abstract

“…Co‐design in health services is messy and complex, involving diverse actors with various abilities and statuses. Identifying diverse co‐design team members and bringing them together to enable and implement change requires an investment of resource before, during and after the process of co‐design 40‐43 . Much of the work undertaken in well‐developed co‐design processes is invisible and based on values and relationships.…”

Section: Unintended Consequences From Co‐designmentioning

confidence: 99%

“…Identifying diverse co‐design team members and bringing them together to enable and implement change requires an investment of resource before, during and after the process of co‐design. 40 , 41 , 42 , 43 Much of the work undertaken in well‐developed co‐design processes is invisible and based on values and relationships. This can involve additional time to enable the development of trust between participants or capture feedback and input outside of formal co‐design settings such as workshops, in particular for the public and patient partners.…”

Section: Unintended Consequences From Co‐designmentioning

confidence: 99%

Mitigating unintended consequences of co‐design in health care

Shé

Harrison

2021

Health Expectations

View full text Add to dashboard Cite

Background Co‐design and associated terms are increasingly being used to facilitate values‐based approaches to health‐care improvement. It is messy and complex, involving diverse actors. Methods We explore the notion that initiatives have outcomes other than initially planned is neither new nor novel but is overlooked when thinking about co‐design. We explore some of the unintended consequences and outline some optimal conditions that can mitigate challenges. Discussion Although co‐design approaches are being applied in health care, questions remain regarding its ability to produce gains in health outcomes. Little is known about determining whether co‐design is the most suitable approach to achieve the given project goals, the levels of involvement required to realize the benefits of co‐design or the potential unintended consequences. There is a risk of further marginalizing or adding burden to under‐represented populations and/or over‐researched populations. Conclusion Undertaking a co‐design approach without the optimal conditions for inclusive involvement by all may not result in an equal partnership or improve health or care quality outcomes. Co‐design requires on‐going reflective discussions and deliberative thinking to remove any power imbalances. However, without adequate resources, a focus on implementation and support from senior leaders, it is a tough ask to achieve. Patient or Public Contribution This viewpoint article was written by two academics who have undertaken a significant amount of PPI and co‐design work with members of the public and patient's right across the health system. Our work guided the focus of this viewpoint as we reflected on our experiences.

show abstract

“…16 Social media-based engagement can also allow consumer representatives, patients and families to connect more easily to organise and advocate for change, 15 which could help overcome potential disconnection between patient populations and their representatives. 17,18 The use of social media for consumer engagement is not without risks. Engagement methods characterised by relationship building between consumers and service providers (such as co-design) might be more difficult via social media, 11,15 and the public nature of interactions on some social media platforms could expose both individuals and organisations to harms such as bullying, harassment and trolling.…”

Section: Introductionmentioning

confidence: 99%

“… 10 , 11 , 14 , 15 Because social media can reach audiences different to those reached by typical engagement methods, it may help grow the pool of people engaged in health service design and QI, and expand or re-imagine engagement strategies beyond the overreliance on ‘career consumers.’ 16 Social media-based engagement can also allow consumer representatives, patients and families to connect more easily to organise and advocate for change, 15 which could help overcome potential disconnection between patient populations and their representatives. 17 , 18 …”

Section: Introductionmentioning

confidence: 99%

Social Media as a Tool for Consumer Engagement in Hospital Quality Improvement and Service Design: Barriers and Enablers for Implementation

Walsh

Hyett

Howley³

et al. 2021

Int J Health Policy Manag

View full text Add to dashboard Cite

Background: Social media can be used to engage consumers in hospital service design and quality improvement (QI) activities, however its uptake may be limited by a lack of guidance to support implementation. This article presents the perceived barriers and enablers in using social media for consumer engagement derived from an interview study with public hospital stakeholders. Methods: Semi-structured interviews with 26 Australian hospital service providers and consumer representatives. Data were analysed using a deductive content analysis method. Results: Data were collected between October 2019 and April 2020. Facebook was the platform most commonly used for consumer engagement activities. Barriers and enablers to social media-based consumer engagement were identified. The barrier themes were (1) fears and concerns; (2) lack of skills and resources for social media engagement; (3) lack of organisational processes and support; and (4) problems with social media platforms and the changing social media landscape. The enabler themes were: (1) hospitals facilitating access and use; (2) making discussions safe; (3) cultivating a social media community; and (4) building on success. Conclusion: Using social media to facilitate consumer engagement in hospital service design and QI activities is feasible and acceptable to service providers and consumers. Hospitals and their executives can create a supportive environment for social media-based engagement activities through developing clear governance systems and providing training and support to all users. Consumers need to be involved in co-designing social media-based activities and determining which forms of engagement are accessible and acceptable. For some consumers and service providers, barriers such as a lack of resources and distrust of social media companies might mean that social media-based engagement will be less acceptable for them. Because of this it is important that hospitals provide complementary methods of engagement (eg, face-to-face) alongside social media-based methods.

show abstract

Patient, Public, Consumer, and Community Engagement: From Consucrat to Representative Comment on "The Rise of the Consucrat"

Cited by 4 publications

References 24 publications

The Impact of Stigma on People with Opioid Use Disorder, Opioid Treatment, and Policy

The Impact of Stigma on People with Opioid Use Disorder, Opioid Treatment, and Policy

Mitigating unintended consequences of co‐design in health care

Social Media as a Tool for Consumer Engagement in Hospital Quality Improvement and Service Design: Barriers and Enablers for Implementation

Contact Info

Product

Resources

About