Patient-reported financial toxicity, quality of life, and health behaviors in insured US cancer survivors

Hoeve, Elizabeth S. Ver; Ali-Akbarian, Leila; Price, Sarah N.; Lothfi, Nurhyikmah M.; Hamann, Heidi

doi:10.1007/s00520-020-05468-z

Cited by 56 publications

(54 citation statements)

References 40 publications

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“…Working status, social pro le and nancial toxicity: Cancer diagnosis was related to changes at work, such as retirement, not contract renewal, or job change due to cancer therapy. The negative consequences of cancer therapy on employment, associated with nancial problems and increased nancial toxicity and reduced Health-Related Quality of Life were also reported by others [22,23]. The living alone status and children at School can also add to patients' burden and nancial toxicity [1,2,24].…”

Section: Discussing the Patient-reported Pro Le Cancer Status And Socioeconomic Detailsmentioning

confidence: 98%

CureCancer Digital Platform In The Routine Clinical Oncology Practice Facilitates Patients’ Self-Data Recording, Communicating With Health Care Professionals, Treatment Adherence And “Distancing Interventions” During Covid-19 And Reduces Costs. A Feasibility And Satisfaction Study*.

Galiti¹,

Linardou

Agelaki

et al. 2021

Preprint

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Purpose: We assessed CureCancer’s feasibility and patients’ and HCPs’ satisfaction. CureCancer is a patient-centric/driven platform, which enables patients to self-create their profile, report symptoms and communicate with physicians.Methods: Patients from 18 Centers were asked to register at CureCancer, upload their data and complete a questionnaire on demographics, disease and treatment characteristics, and their satisfaction. Results: 159 patients were enrolled and 144 (90.6%) registered. 114 of 144 (79.1%), 63 males and 51 females, median age 54.5 years, completed the questionnaire. 64 patients were University and 35 were high School graduates. 46 patients had metastatic disease, 87 were on active treatment and 51 received supportive care. All patients also visited non-oncology HCPs. Nineteen patients changed work status and 49 had children below 24 years. Registration was “very/very much” easy for 98 (86.0 %) patients. File uploading was “very/very much” easy for 47 (41.2%) patients. Over 80% of patients and physicians preferred the digital way. 99 patients and all HCPs will recommend CureCancer to others. Easy data access, improved communication, feeling safe, treatment adherence, interventions from distance, particularly during covid-19 pandemic and saving time and money, were highly commented by patients and HCPs. Conclusion: CureCancer was feasible and patients and HCPs were satisfied. File uploading changed to become more user friendly. Integration of CureCancer in the routine practice is expected to improve cancer care and reduce cancer costs. Patients’ self-reporting, with CureCancer, can increase the accuracy of clinical trial results and map social/work/economic issues following cancer diagnosis to assist health care policy.

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Section: Discussing the Patient-reported Pro Le Cancer Status And Socioeconomic Detailsmentioning

confidence: 98%

CureCancer Digital Platform In The Routine Clinical Oncology Practice Facilitates Patients’ Self-Data Recording, Communicating With Health Care Professionals, Treatment Adherence And “Distancing Interventions” During Covid-19 And Reduces Costs. A Feasibility And Satisfaction Study*.

Galiti¹,

Linardou

Agelaki

et al. 2021

Preprint

View full text Add to dashboard Cite

show abstract

“…This may involve establishing a referral network within and outside the local institution with the requisite skills to effectively address patient symptoms and problems. To address a potential knowledge gap, Table 2 provides an overview of the 12 most common cancer‐related symptoms/problems and recommendations for evidence‐based, targeted interventions to address each 40,42,111,115,116,117,118,119,120,121,122,123,124,125,126,127,128,129,130,131,132,133,134,135,136,137,138,139,140,141,142,143,144,145,146,147,148,149,150,151,152,153,154,155,156,157,158,159,160,161,162,163,164,165,166,167,168,169,170,171,172,173,174,175,176,177,178,179,180,181,182,183,184,185,186,187,188,189,190,191,192,193,194,195,196,197,198,199,200,201,202,203 …”

Section: Intervention Characteristicsmentioning

confidence: 99%

Addressing distress management challenges: Recommendations from the consensus panel of the American Psychosocial Oncology Society and the Association of Oncology Social Work

Deshields

Gregorio

Flowers

et al. 2021

CA A Cancer J Clinicians

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Distress management (DM) (screening and response) is an essential component of cancer care across the treatment trajectory. Effective DM has many benefits, including improving patients' quality of life; reducing distress, anxiety, and depression; contributing to medical cost offsets; and reducing emergency department visits and hospitalizations. Unfortunately, many distressed patients do not receive needed services. There are several multilevel barriers that represent key challenges to DM and affect its implementation. The Consolidated Framework for Implementation Research was used as an organizational structure to outline the barriers and facilitators to implementation of DM, including: 1) individual characteristics (individual patient characteristics with a focus on groups who may face unique barriers to distress screening and linkage to services), 2) intervention (unique aspects of DM intervention, including specific challenges in screening and psychosocial intervention, with recommendations for resolving these challenges), 3) processes for implementation of DM (modality and timing of screening, the challenge of triage for urgent needs, and incorporation of patient-reported outcomes and quality measures), 4) organization-inner setting (the context of the clinic, hospital, or health care system); and 5) organization-outer setting (including reimbursement strategies and health-care policy). Specific recommendations for evidence-based strategies and interventions for each of the domains of the Consolidated Framework for Implementation Research are also included to address barriers and challenges.

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“…Fighting cancer can be a costly battle and understanding the relationship between patient-reported financial toxicity (FT) and health outcomes can help to support post-treatment cancer survivors. Incorporation of FT assessment into survivorship care planning could enhance clinical assessment of thyroid cancer patients, help address the dynamic and persistent challenges of survivorship, and help identify those most in need of intervention across the cancer care continuum [ 101 ].…”

Section: Do Guidelines Help Control Costs?mentioning

confidence: 99%

Differentiated Thyroid Cancer: A Health Economic Review

Heede

Tolley

Marco

et al. 2021

Cancers

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The incidence of differentiated thyroid cancer (DTC) is rising, mainly because of an increased detection of asymptomatic thyroid nodularity revealed by the liberal use of thyroid ultrasound. This review aims to reflect on the health economic considerations associated with the increasing diagnosis and treatment of DTC. Overdiagnosis and the resulting overtreatment have led to more surgical procedures, increasing health care and patients’ costs, and a large pool of community-dwelling thyroid cancer follow-up patients. Additionally, the cost of thyroid surgery seems to increase year on year even when inflation is taken into account. The increased healthcare costs and spending have placed significant pressure to identify potential factors associated with these increased costs. Some truly ground-breaking work in health economics has been undertaken, but more cost-effectiveness studies and micro-cost analyses are required to evaluate expenses and guide future solutions.

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Patient-reported financial toxicity, quality of life, and health behaviors in insured US cancer survivors

Cited by 56 publications

References 40 publications

CureCancer Digital Platform In The Routine Clinical Oncology Practice Facilitates Patients’ Self-Data Recording, Communicating With Health Care Professionals, Treatment Adherence And “Distancing Interventions” During Covid-19 And Reduces Costs. A Feasibility And Satisfaction Study*.

CureCancer Digital Platform In The Routine Clinical Oncology Practice Facilitates Patients’ Self-Data Recording, Communicating With Health Care Professionals, Treatment Adherence And “Distancing Interventions” During Covid-19 And Reduces Costs. A Feasibility And Satisfaction Study*.

Addressing distress management challenges: Recommendations from the consensus panel of the American Psychosocial Oncology Society and the Association of Oncology Social Work

Differentiated Thyroid Cancer: A Health Economic Review

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