Patient-Reported Outcome Measures in Key Sub-Saharan African Languages to Promote Diversity: A Scoping Review

Zyl, Chanel van; Mokkink, Lidwine B.; Derman, Wayne; Hanekom, Susan; Heine, Martin

doi:10.1016/j.vhri.2022.11.001

Cited by 2 publications

(2 citation statements)

References 24 publications

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“…Some measures are self-reported, which may be impractical in settings with low literacy rate [33]. Also, lengthy questionnaires, accredited administration or license fees, lack of available versions in local languages, or lack of culturally adapted content are barriers that limit application of existing measures across humanitarian settings and hinder comparability of results [33][34][35][36][37]. Furthermore, in heterogenous populations, such as patients after injury, the use of multiple specific measures hinders comparison between subgroups and increases clinician workload [38].…”

Section: Introductionmentioning

confidence: 99%

Assessing independence in mobility activities in trauma care: Validity and reliability of the Activity Independence Measure-Trauma (AIM-T) in humanitarian settings

Gohy,

Opava,

von Schreeb

et al. 2023

PLOS Glob Public Health

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The importance of measuring outcomes after injury beyond mortality and morbidity is increasingly recognized, though underreported in humanitarian settings. To address shortcomings of existing outcome measures in humanitarian settings, the Activity Independence Measure-Trauma (AIM-T) was developed, and is structured in three subscales (i.e., core, lower limb, and upper limb). This study aimed to assess the AIM-T construct validity (structural validity and hypothesis testing) and reliability (internal consistency, inter-rater reliability and measurement error) in four humanitarian settings (Burundi, Iraq, Cameroon and Central African Republic). Patients with acute injury (n = 195) were assessed using the AIM-T, the Barthel Index (BI), and two pain scores. Structural validity was assessed through confirmatory factor analysis. Hypotheses were tested regarding correlations with BI and pain scores using Pearson correlation coefficient (PCC) and differences in AIM-T scores between patients’ subgroups, using standardized effect size Cohen’s d (d). Internal consistency was assessed with Cronbach’s alpha (α). AIM-T was reassessed by a second rater in 77 participants to test inter-rater reliability using intraclass correlation coefficient (ICC). The results showed that the AIM-T structure in three subscales had an acceptable fit. The AIM-T showed an inverse weak to moderate correlation with both pain scores (PCC<0.7, p≤0.05), positive strong correlation with BI (PCC≥0.7, p≤0.05), and differed between all subgroups (d≥0.5, p≤0.05). The inter-rater reliability in the (sub)scales was good to excellent (ICC 0.86–0.91) and the three subscales’ internal consistency was adequate (α≥0.7). In conclusion, this study supports the AIM-T validity in measuring independence in mobility activities and its reliability in humanitarian settings, as well as it informs on its interpretability. Thus, the AIM-T could be a valuable measure to assess outcomes after injury in humanitarian settings.

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Section: Introductionmentioning

confidence: 99%

Assessing independence in mobility activities in trauma care: Validity and reliability of the Activity Independence Measure-Trauma (AIM-T) in humanitarian settings

Gohy,

Opava,

von Schreeb

et al. 2023

PLOS Glob Public Health

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“…This underlines the need for contextualisation studies regarding the use of outcome measures in Africa (Kossi et al 2020;Sogbossi et al 2014Sogbossi et al , 2022. However, while some standardised outcome measures have been adapted to the socio-cultural realities or translated and validated into local languages in both French-and English-speaking sub Saharan Africa countries (Sogbossi et al 2014(Sogbossi et al , 2022Van Zyl et al 2023), studies on how this improves their use in clinical practice are lacking. One could hypothesise that these outcome measures, although validated, have some cost implications related, for instance, to the availability of the materials or the training of professionals, resulting in no improvement in their use.…”

Section: Discussionmentioning

confidence: 99%

Use of standardised outcome measures among physiotherapists in French-speaking sub-Saharan Africa

Sawadogo,

Sogbossi,

Everard

et al. 2024

South African Journal of Physiotherapy

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Background: The use of standardised assessment tools is a fundamental aspect of good clinical practice. However, to our knowledge, no study has documented the use of standardised assessment tools in physiotherapy in French-speaking sub-Saharan Africa.Objectives: Documenting the use of standardised outcome measures in physiotherapy in French-speaking sub-Saharan Africa.Method: Our cross-sectional survey used an online self-questionnaire on facilitators and barriers to the use of standardised outcome measures, distributed to physiotherapists in French-speaking sub-Saharan Africa.Results: A total of 241 physiotherapists working in French-speaking sub-Saharan Africa responded to the survey. The most represented countries were Benin (36.9%), Cameroon (14.1%), and Burkina Faso (10.8%). Although 99% of participants reported using standardised outcome measures, only 27% of the respondents used them systematically (all the time). The most reported facilitators included the recognition that standardised outcome measures help to determine whether treatment is effective, help to guide care, and improve communication with patients. The most significant barriers were the lack of time, unavailability of the standardised outcome measures, and non-sensitivity of measures to patients’ cultural and ethnic concerns. There was a higher proportion of use in the middle age group (30–40) (p = 0.02) and a lower proportion of use in physiotherapists simultaneously working in public and private sectors (p = 0.05).Conclusion: Standardised outcome measures are still not widely used by physiotherapists in French-speaking sub-Saharan Africa.Clinical implications: The perceived barriers and facilitators could help to develop strategies to improve the systematic use of outcome measures in French-speaking sub-Saharan Africa.

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Patient-Reported Outcome Measures in Key Sub-Saharan African Languages to Promote Diversity: A Scoping Review

Cited by 2 publications

References 24 publications

Assessing independence in mobility activities in trauma care: Validity and reliability of the Activity Independence Measure-Trauma (AIM-T) in humanitarian settings

Assessing independence in mobility activities in trauma care: Validity and reliability of the Activity Independence Measure-Trauma (AIM-T) in humanitarian settings

Use of standardised outcome measures among physiotherapists in French-speaking sub-Saharan Africa

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