Patient‐reported outcome measures (PROMs) to guide clinical care: recommendations and challenges

Agarwal, Anupriya; Pain, Tilley; Lévesque, Jean‐Frédéric; Girgis, Afaf; Hoffman, Anna; Karnon, Jonathan; King, Madeleine; Shah, Karan; Morton, Rachael L.

doi:10.5694/mja2.51355

Cited by 30 publications

(16 citation statements)

References 4 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…25,26 Motivation and engagement of clinicians and patients in the process of PROMs collection have been identified as crucial determinants of successful uptake of this intervention. 13 Despite broad consensus that PROMs are integral to providing patient-centered care, high-quality evidence is required to confirm the clinical benefits of routine PROMs collection and management in patients with kidney disease. 29 Several trials are currently evaluating PROMs monitoring and management in advanced kidney disease [31][32][33] and will inform whether PROMs collection improves patient outcomes, the optimal mode of PROMs collection, efficient and effective strategies for data analysis and feedback, and the best management of complex symptoms in patients with kidney failure.…”

Section: Internet Accessmentioning

confidence: 99%

“…As part of the SWIFT pilot study 11 we studied the perspectives and experiences of patient participants, nephrologists, and nurses regarding the acceptability and feasibility of electronic PROMs (e-PROMs) collection with feedback to better inform the use of e-PROMs monitoring in research and clinical settings. 12,13 trial across 4 HD centers in Australia. Between August 6, 2019, and March 20, 2020, adults (≥18 years) undergoing maintenance HD were enrolled.…”

mentioning

confidence: 99%

See 1 more Smart Citation

Perspectives of Patients, Nurses, and Nephrologists About Electronic Symptom Monitoring With Feedback in Hemodialysis Care

Viecelli

Duncanson

Bennett

et al. 2022

American Journal of Kidney Diseases

View full text Add to dashboard Cite

Section: Internet Accessmentioning

confidence: 99%

mentioning

confidence: 99%

Perspectives of Patients, Nurses, and Nephrologists About Electronic Symptom Monitoring With Feedback in Hemodialysis Care

Viecelli

Duncanson

Bennett

et al. 2022

American Journal of Kidney Diseases

View full text Add to dashboard Cite

“…Kidney disease, consisting of chronic kidney disease (CKD), acute kidney injury (AKI) and kidney failure, affects 850 million people globally [ 1 – 3 ]. People with kidney failure can receive kidney replacement therapy (KRT) in the form of either dialysis or kidney transplantation to extend life.…”

Section: Introductionmentioning

confidence: 99%

“…Symptom management in palliative care improved QOL, reduced symptoms and increased functional wellbeing compared with standard care [ 14 ]. The use of patient-reported outcome measures (PROMs) including symptom monitoring is recommended to guide clinical care for many conditions; however, few trials have assessed the effectiveness of this intervention [ 1 ]. In haemodialysis populations, although effective targeted management of symptoms is associated with improved QOL [ 15 ], evidence is lacking from randomised controlled trials (RCT).…”

Section: Introductionmentioning

confidence: 99%

The Symptom Monitoring with Feedback Trial (SWIFT): protocol for a registry-based cluster randomised controlled trial in haemodialysis

Greenham

Bennett

Dansie

et al. 2022

Trials

View full text Add to dashboard Cite

Background Kidney failure prevalence is increasing worldwide. Haemodialysis, peritoneal dialysis or kidney transplantation are undertaken to extend life with kidney failure. People receiving haemodialysis commonly experience fatigue, pain, nausea, cramping, itching, sleeping difficulties, anxiety and depression. This symptom burden contributes to poor health-related quality of life (QOL) and is a major reason for treatment withdrawal and death. The Symptom monitoring WIth Feedback Trial (SWIFT) will test the hypothesis that regular symptom monitoring with feedback to people receiving haemodialysis and their treating clinical team can improve QOL. Methods We are conducting an Australia and New Zealand Dialysis and Transplant (ANZDATA) registry-based cluster randomised controlled trial to determine the clinical- and cost-effectiveness at 12 months, of 3-monthly symptom monitoring using the Integrated Palliative Outcome Scale-Renal (IPOS-Renal) survey with clinician feedback, compared with usual care among adults treated with haemodialysis. Participants complete symptom scoring using a tablet, which are provided to participants and to clinicians. The trial aims to recruit 143 satellite haemodialysis centres, (up to 2400 participants). The primary outcome is change in health-related QOL, as measured by EuroQol 5-Dimension, 5-Level (EQ-5D-5L) instrument. Secondary outcomes include overall survival, symptom severity (including haemodialysis-associated fatigue), healthcare utilisation and cost-effectiveness. Discussion SWIFT is the first registry-based trial in the Australian haemodialysis population to investigate whether regular symptom monitoring with feedback to participants and clinicians improves QOL. SWIFT is embedded in the ANZDATA Registry facilitating pragmatic recruitment from public and private dialysis clinics, throughout Australia. SWIFT will inform future collection, storage and reporting of patient-reported outcome measures (PROMs) within a clinical quality registry. As the first trial to rigorously estimate the efficacy and cost-effectiveness of routine PROMs collection and reporting in haemodialysis units, SWIFT will provide invaluable information to health services, clinicians and researchers working to improve the lives of those with kidney failure. Trial registration Australian New Zealand Clinical Trials Registry ACTRN12620001061921. Registered on 16 October 2020

show abstract

“…32 To support future use of any PROM collection and use in the clinical consultation, there are patient, healthcare profession, and environmental barriers that need to be addressed. 33 Systematic review evidence suggests that studies of collection and use of diabetes distress and depressive PROMs in diabetes care are scarce; PROM implementation in diabetes care thus requires further exploration. 7 …”

Section: Discussionmentioning

confidence: 99%

People with type 2 diabetes’ experiences of emotional support in Australian general practice: a qualitative study

et al. 2022

View full text Add to dashboard Cite

BackgroundDiabetes distress, experienced by up to 40% of people with type two diabetes, is the negative emotional response to the burden of living with and managing diabetes. It is associated with sub-optimal glycaemia and diabetes self-management. Research indicates that people with diabetes do not recall being asked about emotional distress by health care professionals.AimExplore the experiences, needs and expectations of people with type two diabetes regarding emotional support received in Australian general practice.Design & SettingExploratory qualitative study in Victoria, Australia.MethodSemi-structured interviews exploring emotional health and support received in general practice in twelve adults with type two diabetes who primarily attend general practice. Interviews were audio-recorded, transcribed verbatim, and analysed using the framework approach.ResultsThree major themes were identified: 1) Beneath the surface of diabetes care; 2) Importance of GP-patient relationship; 3) Communication counts. Participants experienced diabetes care as focused primarily on medical management, rather than the emotional aspects of living with type two diabetes. While people’s experiences of diabetes care in general practice primarily focused on physical health, the GP care beyond the presenting complaint has an essential role in identifying emotional issues and enabling support. Emotional issues were more likely to be discussed and acknowledged by the GP where there was a long-standing relationship between GP and patient.ConclusionPre-existing positive GP-patient relationships and supportive communication enable people with type two diabetes to raise emotional issues as part of diabetes care.

show abstract

Patient‐reported outcome measures (PROMs) to guide clinical care: recommendations and challenges

Cited by 30 publications

References 4 publications

Perspectives of Patients, Nurses, and Nephrologists About Electronic Symptom Monitoring With Feedback in Hemodialysis Care

Perspectives of Patients, Nurses, and Nephrologists About Electronic Symptom Monitoring With Feedback in Hemodialysis Care

The Symptom Monitoring with Feedback Trial (SWIFT): protocol for a registry-based cluster randomised controlled trial in haemodialysis

People with type 2 diabetes’ experiences of emotional support in Australian general practice: a qualitative study

Contact Info

Product

Resources

About