Patient Reported Outcomes for Patients Receiving a Hematopoietic Stem Cell Transplant: A Longitudinal Assessment with a Dashboard Display

Harnessing the Collective Expertise of Patients, Care Partners, Clinical Teams, and Researchers Through a Coproduction Learning Health System

“…More than 1800 palliative care pre-visit questionnaires (PVQs) were completed over 20 months and nearly 200 transplant and cellular therapy PVQs were completed over 11 months, allowing patients and care partners to provide information to guide conversations around what matters most (Wilson et al, 2022). Patient-generated data are now available to form the basis of a research registry and have been used to develop population-level analyses that depict the expected trajectory of recovery following a transplant (Hayes et al, 2022).…”