Patients and spouses coping with inflammatory arthritis: Impact of communication and spousal perceived social support and burden

Rat, Anne‐Christine; Brignon, Morgane; Beauvais, Catherine; Béranger, Martine; Boujut, Émilie; Cohen, Jean-David; Delannoy, Caroline; Griffoul-Espitalier, Isabelle; Kivits, Joëlle; Poivret, Didier; Thevenot, C; Tropé, Sonia; Untas, Aurélie; Alleyrat, Camille; Quintrec, Janine-Sophie Giraudet-Le

doi:10.1016/j.jbspin.2020.105125

Cited by 3 publications

(2 citation statements)

References 36 publications

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“…It has been found that support from family members, friends, or other social relationships has a positive effect in those with chronic illnesses on both their psychological 38 and physical health. 18,19 Albanese et al (2019) found that men with type 2 diabetes in particular named their spouses as a source of social support for diabetes management, while women named other family members and friends.…”

Section: Discussionmentioning

confidence: 99%

Perceived Spousal Support and Activities of Daily Living in Individuals With COPD

Efil,

Kalkan Ugurlu,

Akça Doğan

et al. 2024

West J Nurs Res

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Background: The relationship between perceived spousal support and activities of daily living in patients with chronic obstructive pulmonary disease (COPD) is unclear. Purpose: The aim of this study was to explore the relationship between spousal support perceived by those with COPD and their activities of daily living. Methods: This study was a cross-sectional and descriptive study. Data collection was conducted between September 2022 and April 2023. A Data Gathering Form, the Spousal Support Scale, and the London Chest Activity of Daily Living Scale were used to collect data. A total of 132 adults were included in this study. Results: The mean (SD) scores of individuals with COPD for perceived spousal support and activities of daily living were 62.40 (14.66) and 32.91 (15.72), respectively. Levels of perceived spousal support and activities of daily living varied according to sex, employment status, admission to the emergency service or hospitalization, use of antidepressants, and the severity of the illness ( P < .05). Those with better spousal support felt less dyspnea when performing the activities of daily living ( r = −0.205, P < .05). Conclusions: Knowing the potential factors affecting perceived spousal support and activities of daily living can provide an opportunity to determine appropriate strategies to increase the level of independence of individuals with COPD. Educational interventions to help spouses understand COPD may help increase spousal support.

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Section: Discussionmentioning

confidence: 99%

Perceived Spousal Support and Activities of Daily Living in Individuals With COPD

Efil,

Kalkan Ugurlu,

Akça Doğan

et al. 2024

West J Nurs Res

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“…Also, patients with shorter duration of disease were found to be more likely to be interested in one-to-one sessions with rheumatology professionals, listening to talks of experienced patients and online support services. Other studies have shown that there is value in promoting more educational sessions on sexual health [29], and the supportive role that spouses and other relatives can play [30,31].…”

Section: Social Needs-related Educationmentioning

confidence: 99%

Patient educational needs and challenges in psoriatic arthritis

Adebajo

Akintayo

2021

Current Opinion in Rheumatology

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Purpose of reviewTo provide an overview of the recent research publications on educational needs of patients with psoriatic arthritis (PsA) and the associated challenges. Recent findingsThe rate of good treatment adherence in PsA can be as low as 57.7% and successful patient education can help improve treatment adherence. Also, 78.7% of patients who stopped their disease modifying anti-rheumatic drugs during the first wave of the COVID-19 pandemic did so without the advice of their clinician. In delivering educational needs, the aspects of disease process, treatment, self-help measures, managing pain, movement, psychological and social needs should all be addressed, whilst at the same time, recognising that PsA patients with multidomain disease, are likely to be dealing with more than just pain. Arthritis self-care management education is potentially beneficial, but up to 11% of educational YouTube videos may contain misleading patient opinion and many existing apps do not meet the needs of the patients with PsA.

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Significant others in inflammatory arthritis: roles, influences, and challenges—a scoping review

Hansen,

Nørgaard,

de Thurah

et al. 2024

Rheumatol Int

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Improving self-management in individuals with inflammatory arthritis (IA) is crucial for effective disease management. However, current recommendations primarily focus on interventions for the diagnosed individuals, overlooking the potential impact of their significant others on their self-management abilities. This review aims to fill this gap by identifying and mapping relevant research employing both qualitative and quantitative design to provide a broader understanding of the potential of significant others in relation to IA management. We examined studies published from 2007 to 2024 that explore our research questions using electronic databases and grey literature searches. Two independent reviewers meticulously screened and categorized the studies based on a developed framework employing basic content analysis. Out of 20.925 studies, 43 were included: 22 quantitative studies (including 1 educational trial), 20 qualitative studies, and 1 mixed-methods study. Our analysis of the included studies revealed that significant others predominantly provided practical and emotional support and could positively or negatively influence the person with IAs self-management abilities. Additionally, significant others reported their own feelings of emotional distress and expressed the need for knowledge, skills and social support enabling them to provide better support while taking care of them self. Greater focus on the significant others of those diagnosed with IA in their provision of support to this patient group may both improve the people with IA self-management skills and address significant others’ reported needs. Future studies should explore the impact of such initiatives through randomized controlled trials.

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Patients and spouses coping with inflammatory arthritis: Impact of communication and spousal perceived social support and burden

Cited by 3 publications

References 36 publications

Perceived Spousal Support and Activities of Daily Living in Individuals With COPD

Perceived Spousal Support and Activities of Daily Living in Individuals With COPD

Patient educational needs and challenges in psoriatic arthritis

Significant others in inflammatory arthritis: roles, influences, and challenges—a scoping review

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