Patients are dissatisfied with information provision: perceived information provision and quality of life in prostate cancer patients

Lamers, Romy E.D.; Cuypers, Maarten; Husson, Olga; Vries, Marieke de; Kil, Paul; Bosch, J.L.H. Ruud; Poll‐Franse, Lonneke V. van de

doi:10.1002/pon.3981

Cited by 49 publications

(47 citation statements)

References 31 publications

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“…In previous studies, a majority of patients with various cancer types have reported not being satisfied with the amount of information they received (eg, breast [36%], urological [34%], endometrial cancer [41%], melanoma [61%], and lymphoma and multiple myeloma [33%]), similar to our study (45%) . Patients not satisfied with the information provision reported lower scores on all subscales of provided information compared with satisfied patients.…”

Section: Discussionsupporting

confidence: 83%

Association between information provision and supportive care needs among ovarian cancer survivors: A cross‐sectional study from the PROFILES registry

Rietveld¹,

Husson

Vos

et al. 2018

Psycho-Oncology

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Section: Discussionsupporting

confidence: 83%

Association between information provision and supportive care needs among ovarian cancer survivors: A cross‐sectional study from the PROFILES registry

Rietveld¹,

Husson

Vos

et al. 2018

Psycho-Oncology

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“…Furthermore, an indifferent attitude towards OACA, including rather low concerns and low necessity beliefs (vs. an accepting attitude) was associated with information dissatisfaction. In other studies, it was also observed that the beliefs of cancer patients influence information satisfaction [18,31,32]. Information on Oral Anticancer Agent Use C. C. L. M. Boons et al…”

mentioning

confidence: 91%

Patient satisfaction with information on oral anticancer agent use

et al. 2017

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Adequate information on oral anticancer agent (OACA) use is an essential element of optimal cancer care. The present study aimed to get insight into the experiences of patients with information on OACA treatment and their characteristics regarding information dissatisfaction. Patients of four Dutch university hospitals using OACA participated in this observational study and completed the Satisfaction with Information about Medicines Scale (SIMS), EORTC Quality of Life Questionnaire‐C30, Brief Illness Perception Questionnaire, and Beliefs about Medicines Questionnaire‐Specific. Logistic regression analyses were used to determine factors associated with dissatisfaction with information. Patients (n = 208) using capecitabine (35%), lenalidomide (15%), imatinib (14%), temozolomide (12%), sunitinib (11%), thalidomide (5%), dasatinib (4%), erlotinib (2%), and nilotinib (2%) participated. Information on the following SIMS‐items was inadequate: how OACA elicit their effect, how long it takes before treatment works, how to conclude that treatment is effective, the risk of side effects and its management, interference with sex life, drowsiness, interference with other medication and alcohol and what to do in case of a missed dose. Younger age, hematological malignancy, dyspnoea, positive perception of consequences of the cancer, low perception of treatment control, and indifferent attitude towards OACA were associated with dissatisfaction with information. In conclusion, a considerable number of patients would have appreciated receiving more information on specific issues relating to the consequences of OACA treatment such as the effects and side effects of OACA and the interference of treatment with various aspects of their daily life. Oncologists, hematologists, lung‐oncologists and pharmacists may reconsider the provision of information on OACA treatment.

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“…Interestingly, very satisfied patients had received more information than those less satisfied, but reasons for this discrepancy were not determined. A cross‐sectional study involving 697 men with PC by Lamers et al () reported on data collected in the Netherlands in 2011, with the study focussing on cancer survivors, rather than patients undergoing active treatment. 34% of participants reported dissatisfaction with information provision, but the nature of information was found to be helpful by 72%.…”

Section: Resultsmentioning

confidence: 99%

“…Studies by Majumder et al () and Lamers et al () are similar in that they used the same data collection instruments (EORTC QLQ‐C30 and EORTC‐INFO25 questionnaires designed to elicit information on quality of life and information preferences) and surveyed a similar number of men with PC ( n = 656 vs. n = 688). Majumder et al () focussed on men with PC treated with radiotherapy and Lamers et al () on men with PC who had received any treatment type. There was broad agreement in the study findings with the mean scores for overall satisfaction being 69% and 66%, respectively, which also compares well with the 74% reported by Adler et al ().…”

Section: Resultsmentioning

confidence: 99%

Information in radiotherapy for men with localised prostate cancer: An integrative review

2019

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Introduction Men with prostate cancer may receive radiotherapy as part of their management. They encounter a range of information related to radiotherapy, and a crucial role for therapeutic radiographers and other healthcare practitioners is ensuring patients receive appropriate information related to their treatment. This integrative review aims to identify, synthesise and analyse literature reporting experiences of men with localised prostate cancer related to information in radiotherapy. Methods A systematic literature search encompassing database and hand searches was carried out between February and March 2017 with date limits of 2000–2017 applied. Initially, 4,954 articles were identified. Systematic screening and detailed examination identified that 33 met the inclusion criteria. Data were synthesised and analysed thematically. Results Few studies explicitly addressed the issue of information in radiotherapy for men with localised prostate cancer. Themes that emerged and were explored are information needs, information regarding adverse effects, information and time, information preferences, satisfaction with information related to radiotherapy and patient experience related to radiotherapy information. Conclusion This review suggests that although several aspects related to information for men with localised prostate cancer have been documented, few were explored in detail with respect to radiotherapy indicating that further research in this area is warranted.

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Patients are dissatisfied with information provision: perceived information provision and quality of life in prostate cancer patients

Cited by 49 publications

References 31 publications

Association between information provision and supportive care needs among ovarian cancer survivors: A cross‐sectional study from the PROFILES registry

Association between information provision and supportive care needs among ovarian cancer survivors: A cross‐sectional study from the PROFILES registry

Patient satisfaction with information on oral anticancer agent use

Information in radiotherapy for men with localised prostate cancer: An integrative review

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