Patients’ needs and expectations with regard to rheumatology nursing care: results of multicentre focus group interviews

Abstract

Patients with CIA mentioned that many problems have to be addressed when one is faced with having a rheumatic disease. The focus group interviews yielded valuable information about the care these patients need and expect. This information will direct future research with regard to rheumatology nursing care.

Self‐management support from the perspective of patients with a chronic condition: a thematic synthesis of qualitative studies

“…Patients needed information from an expert about diagnosis, symptoms, treatment options, side‐effects and possible interaction effects and instruction on alleviating symptoms themselves . Support should be available shortly after symptoms arise or when there are problems with medication . In some studies, patients appreciated information about spiritual matters and complementary therapy .…”

“…Professionals also helped evaluate internet information, a role attributed to relatives in another study . Information about health‐care facilities was needed from professionals . Some studies pointed out that providing information to relatives is important as well .…”

The outcome and cost-effectiveness of nurse-led care in people with rheumatoid arthritis: a multicentre randomised controlled trial

“…In The Netherlands and the Scandinavian countries NLC is well established,14–16 18 19 while in other countries it is in its infancy 20–22. The European League Against Rheumatism (EULAR) has recently published recommendations for the role of the nurse in the management of inflammatory arthritis, in order to enable a homogenisation of rheumatology nursing care across Europe 23.…”

Patient preferences for psychological support in inflammatory arthritis: a multicentre survey

“…For example, recent research found that patients wanted emotional support from a professional, regarding it as beneficial to share problems with someone outside of their social environment 23. There is some evidence that different psychological factors affect coping and adaptation at different stages, making disease duration and disease trajectory (e.g.…”