Patients’ opinions on outcomes following critical illness

Nedergaard, Helene Korvenius; Haberlandt, Trine Nørskov; Reichmann, P D; Toft, Palle; Jensen, Hanne Irene

doi:10.1111/aas.13058

Cited by 22 publications

(24 citation statements)

References 24 publications

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“…Themes from the interviews largely focused on health issues and specific impairments, consistent with well-documented post-ICU morbidities reported in existing empirical studies [ 5 , 6 , 8 – 10 , 12 – 14 , 33 ▪ ]. Consistent results were also reported in a recent Danish qualitative study evaluating patient-important outcomes through interviews with 10 ICU survivors [ 34 ▪ ].…”

Section: Patient and Family Perspectives On Patient Outcomes After Hosupporting

confidence: 88%

“…In a Danish study of ICU survivors (see above), 36 outcomes from qualitative interviews with ICU survivors were distilled to 20 outcomes using semistructured interviews of a different group of ICU survivors [ 34 ▪ ]. Thirty-two patients were asked to rank these 20 outcomes by importance [ 34 ▪ ]. Because of different methodology for composing the list of potential outcomes and for ranking outcomes, these results are not directly comparable with our survey findings.…”

Section: Patient and Family Perspectives On Patient Outcomes After Homentioning

confidence: 99%

“…The previously-discussed Danish study also asked ICU nurses ( n = 54) and anesthesiologists ( n = 17) to rank 20 patient outcomes with respect to the greatest challenges facing ICU survivors [ 34 ▪ ]. The nurses’ five highest ranked outcomes fell under physical (fatigue), cognitive (concentration and memory), and mental health (depression and anxiety) categories.…”

Section: Researcher and Clinician Perspectives On Patient Outcomes Afmentioning

confidence: 99%

See 2 more Smart Citations

Understanding patient-important outcomes after critical illness: a synthesis of recent qualitative, empirical, and consensus-related studies

Dinglas¹,

Faraone²,

Needham

2018

Current Opinion in Critical Care

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Purpose of reviewPatients surviving critical illness frequently experience long-lasting morbidities. Consequently, researchers and clinicians are increasingly focused on evaluating and improving survivors’ outcomes after hospital discharge. This review synthesizes recent research aimed at understanding the postdischarge outcomes that patients consider important (i.e., patient-important outcomes) for the purpose of advancing future clinical research in the field.Recent findingsAcross multiple types of studies, patients, family members, researchers, and clinicians have consistently endorsed physical function, cognition, and mental health as important outcomes to evaluate in future research. Aspects of social health, such as return to work and changes in interpersonal relationships, also were noted in some research publications. Informed by these recent studies, an international Delphi consensus process (including patient and caregiver representatives) recommended the following core set of outcomes for use in all studies evaluating acute respiratory failure survivors after hospital discharge: survival, physical function (including muscle/nerve function and pulmonary function), cognition, mental health, health-related quality of life, and pain. The Delphi panel also reached consensus on recommended measurement instruments for some of these core outcomes.SummaryRecent studies have made major advances in understanding patient-important outcomes to help guide future clinical research aimed at improving ICU survivors’ recovery.

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Section: Patient and Family Perspectives On Patient Outcomes After Hosupporting

confidence: 88%

Section: Patient and Family Perspectives On Patient Outcomes After Homentioning

confidence: 99%

Section: Researcher and Clinician Perspectives On Patient Outcomes Afmentioning

confidence: 99%

See 1 more Smart Citation

Understanding patient-important outcomes after critical illness: a synthesis of recent qualitative, empirical, and consensus-related studies

Dinglas¹,

Faraone²,

Needham

2018

Current Opinion in Critical Care

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“…1 Survivors of critical illness have identified their main health challenges after ICU discharge as weakness, fatigue and decreased walking capacity. 44 These reports emphasize the need for core physical outcomes consistent with patients' priorities and preferences. Our findings may help build a core set of physical recovery outcomes to be collected in the ICU, so that physiotherapists and other ICU health care providers can identify patients who are at risk of poor physical recovery, in turn provide targeted mobilization and exercise interventions for patients during and after the ICU stay, as part of the care continuum from the ICU to home and the community.…”

Section: Discussionmentioning

confidence: 99%

Predictive variables for poor long‐term physical recovery after intensive care unit stay: An exploratory study

Amundadottir

Jónasdóttir

Sigvaldason

et al. 2020

Acta Anaesthesiol Scand

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In recent years, ICU research has increasingly focused on understanding factors that influence patients' recovery and how long-term outcomes can be maximized. 9,10 ICU patients are heterogeneous, thus their trajectory of physical recovery is diverse. 1,11 Gender, 1,11,12 older age, 1,2,11,13,14 comorbidity, 2,15 duration of continuous sedation, 11 duration of bed rest, 6,16 and ICU length of stay (LOS), 11,13,16 have all been reported to impact the physical recovery of ICU survivors. Men have been reported to experience better physical recovery after critical illness than women. 1,12 Younger women with a shorter duration of sedation and

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“…22 23 In 2018, Nedergaard et al interviewed 18 ICU survivors and extracted the most important issues. 24 Although symptoms from the PICS domains were well represented, additional symptoms were also considered important, for example incontinence, short temper and the feeling of being isolated. Furthermore, large differences between patients and clinicians when ranking the importance of symptoms have been found in areas as diverse as bariatric surgery 25 , diabetes 26 and aphasia.…”

Section: Discussionmentioning

confidence: 99%

Long-term Health-related Quality of Life and Burden of Disease After Intensive Care: Development of a Patient-reported Outcome Measure.

Malmgren

Waldenström

Rylander

et al. 2020

Preprint

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BackgroundICU survivorship includes a diverse burden of disease. To understand the extent of the problems, the right issues must be identified, and the right questions need to be asked to the patients. Current follow-up instruments lack detailed questions in several areas relevant to survivors. Our aim was to identify health-related problems relevant and unique to ICU survivors, and to construct a comprehensive questionnaire able to address these issues.Methods Thirty-three ICU survivors were interviewed at least six months after ICU discharge. All types of everyday dysfunctions and disabilities were extracted and compiled into a questionnaire. The questionnaire was tested on ICU survivors and non-ICU treated subjects. Inclusion criteria for the ICU survivors were an ICU stay of at least 72 hours with the ICU discharge six months to three years prior to the study. The non-ICU treated subjects were obtained from the Swedish Population Register, matched for age and sex. Eligible participants received an invitation letter and were contacted by phone. If willing to participate, they were sent the questionnaire. ResultsAnalysis of the interviews yielded 238 questions in 13 domains: cognition, fatigue, physical health, pain, psychological health, activities of daily life, sleep, appetite and alcohol, sexual health, sensory functions, gastrointestinal, urinary tract and work life.In total, 395 of 518 ICU survivors and 197 of 231 non-ICU treated subjects returned a completed questionnaire, the response rate being 76.2% and 85.3% respectively. The two groups differed significantly in 16 of 25 comorbidities. ICU survivors differed in a majority of questions (p ≤ 0.05) compared to non-ICU treated subjects, distributed over all 13 domains. ConclusionsThis study describes the first step in developing a designated questionnaire for identification of health-related quality of life issues and long-term burden of disease after intensive care. A first version of the questionnaire was answered by 395 ICU survivors. The questionnaire could identify that they experience severe difficulties in a wide range of domains compared to non-ICU treated subjects.Trial registrationClinicalTrials.gov Ref# NCT 02767180

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Patients’ opinions on outcomes following critical illness

Abstract: Patients chose lack of physical strength, fatigue, and decreased walking distance as the three most important outcomes following critical illness. Physicians had a higher focus on these physical impairments than ICU-nurses.

Cited by 22 publications

References 24 publications

Understanding patient-important outcomes after critical illness: a synthesis of recent qualitative, empirical, and consensus-related studies

Understanding patient-important outcomes after critical illness: a synthesis of recent qualitative, empirical, and consensus-related studies

Predictive variables for poor long‐term physical recovery after intensive care unit stay: An exploratory study

Long-term Health-related Quality of Life and Burden of Disease After Intensive Care: Development of a Patient-reported Outcome Measure.

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