Patients' perception and actual practice of informed consent, privacy and confidentiality in general medical outpatient departments of two tertiary care hospitals of Lahore

Humayun, Ayesha; Fatima, Noor; Naqqash, Shahid; Hussain, Salwa; Rasheed, Almas; Imtiaz, Huma; Imam, Sardar Zakariya

doi:10.1186/1472-6939-9-14

Cited by 75 publications

(76 citation statements)

References 26 publications

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“…The same study reported that psychosocial privacy was observed in 31.9% of cases and that informational privacy was observed in 30.6% of cases, which was lower than that (41.58%) found in the present study. In a study conducted in Lahore, only 10.8% of public hospitals maintained patient data confidentiality (22), which was lower than that in the present study. The poor level of confidentiality was attributed to the large number of patients in the hospitals making it difficult for physicians to observe all confidentiality protocols, in addition to large numbers of beds in rooms, examinations without curtains, and physicians observing and examining patients in the presence of others.…”

Section: Discussioncontrasting

confidence: 51%

Children’s Privacy in Pediatric Wards in Teaching Hospitals Affiliated to Shahid Beheshti University of Medical Sciences: 2014 - 2015

Foroozadeh

Kiani

Afshar

et al. 2016

Arch Pediatr Infect Dis

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Background: Patients' privacy is an important ethical responsibility in medicine and an inseparable part of treatment. Children's privacy is no exception. Children's rights to privacy are recognized under the Children's Rights Convention as part of good medical practice. Objectives: Few studies have examined children's privacy in Iran or in other countries. Thus, the present study was designed to investigate views expressed by relatives who accompanied sick children to the hospital about various aspects of the children's privacy. Methods: In this descriptive cross-sectional study, data on two dimensions of privacy (informational privacy and physical privacy) of children in pediatric wards were collected using a researcher-made questionnaire from 90 individuals who accompanied children (90 children, 57.8% boys and 38.9% girls) to hospitals (Imam Hossein and Mofid) affiliated to Shahid Beheshti University of Medical Sciences. The data were analyzed using SPSS-18 software. Pearson's correlation coefficients were calculated, and t-tests and ANOVAs were performed. Results: With regard to the two dimensions of privacy, informational privacy was respected more than physical privacy. No significant relationship was observed between the observance of privacy and duration of the hospital stay or admission ward, but there was significant linear correlation between the number of beds in a room and informational and physical privacy. The mean score for respecting privacy increased in accordance with the child's age, with the overall mean score significantly higher in the 11 -14-y age group than the other age groups. Information disclosure occurred mainly through conversations with parents (52.2%) and during rounds (30%). Very little information disclosure (1.1%) occurred via discussions between personnel and discussions with parents. Hospital authorities investigated 40% of complaints about privacy violations or disclosure of a sick child's information. Conclusions: The results showed that the level of respect for informational privacy was relatively acceptable. However, the level of respect for physical privacy was poor. Therefore, it is essential to provide appropriate training on the issue of children's privacy, especially physical privacy (e.g., using separate rooms and ensuring that medical staff knock before entering a room), and to ensure that rules governing children's privacy are followed.

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Section: Discussioncontrasting

confidence: 51%

Children’s Privacy in Pediatric Wards in Teaching Hospitals Affiliated to Shahid Beheshti University of Medical Sciences: 2014 - 2015

Foroozadeh

Kiani

Afshar

et al. 2016

Arch Pediatr Infect Dis

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“…Failure to observe this may cause embarrassment to both patients and providers. Other studies have also reported the importance of privacy and confidentiality (Humayun et al, 2008).…”

Section: Discussionmentioning

confidence: 99%

Users’ perceptions of outpatient quality of care in Kilosa District Hospital in Central Tanzania

Juma¹,

Manongi²

2010

Tanzania J Hlth Res

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“…In some developing countries, the value patients place on informed consent is often not paralleled by physicians, and medical paternalism is especially prevalent among those working with illiterate populations. [13][14][15] A review article by Bastia attempted to clarify common misconceptions among Indian physicians regarding what constitutes appropriate informed consent. 16 In our study, a detailed, comprehensive, and patientappropriate informed consent with or without a visual aid resulted in significantly higher scores from preinformed consent to post-informed consent.…”

Section: Discussionmentioning

confidence: 99%

The effect of a visual aid on the comprehension of cataract surgery in a rural, indigent South Indian population

Karan¹,

Campbell²,

Mayer³

2011

Digit J Ophthalmol

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Purpose-To determine whether a visual aid improves the understanding and retention of information presented during informed consent for rural, indigent patients presenting for cataract surgery.Materials and Methods-This was a randomized, unmasked, interventional study. We recruited patients who presented to the Hande Surgical Hospital in Chennai, India, for cataract surgery. Patients were randomized into two groups: verbal consent alone (group A) and verbal consent plus a poster (group B). Both groups completed an 11-question true/false quiz immediately before and after informed consent and one day after surgery.Results-A total of 60 patients were recruited for the study, with 30 randomly assigned to each group; 23 patients from group A and 17 from group B completed the study. Informed consent improved patient scores in both groups; however, group B had significantly higher mean scores on postoperative day 1 (7.4 vs 8.7, P = 0.005) and significantly greater improvement in mean scores from pre-informed consent to postoperative day 1 (1.3 vs 3.6, P = 0.002).Conclusions-Informed consent improves patient understanding of cataract surgery. Using a visual aid during informed consent for cataract surgery improves understanding and retention of information more than verbal consent alone in a rural South Indian population.Multiple barriers to high-quality care exist for millions of indigent patients with pressing medical conditions. [1][2][3][4] Ineffective communication between health care providers and patients is a major factor in reduced care. [5][6][7] Roadblocks to effective communication can include limited formal education, illiteracy, and misinformation or misunderstanding among the population being served regarding medical interventions. 5,7 Informed consent is a critical component of invasive medical procedures, helping to establish a healthy doctor-patient relationship by educating patients about the methods, risks, and benefits of procedures. 8 Moseley et al 9 examined the use of a poster and video presentation combined with a verbal informed consent in a highly educated population and demonstrated a significant increase in patient understanding of cataract surgery. In another study, the use of written pamphlets in addition to verbal discussion prior to cataract surgery showed an increase in information retention among patients. 10 Methods used to communicate with patients in developed countries such as graphic tools and electronic multimedia-based programs may not be applicable to indigent populations in the developing world. 11,12 In addition, written pamphlets and electronic programs can be prohibitively expensive in financially limited clinics. We aimed to determine whether a poster presentation combined with a verbal informed

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Patients' perception and actual practice of informed consent, privacy and confidentiality in general medical outpatient departments of two tertiary care hospitals of Lahore

Abstract: Background: The principles of informed consent, confidentiality and privacy are often neglected during patient care in developing countries. We assessed the degree to which doctors in Lahore adhere to these principles during outpatient consultations.

Cited by 75 publications

References 26 publications

Children’s Privacy in Pediatric Wards in Teaching Hospitals Affiliated to Shahid Beheshti University of Medical Sciences: 2014 - 2015

Children’s Privacy in Pediatric Wards in Teaching Hospitals Affiliated to Shahid Beheshti University of Medical Sciences: 2014 - 2015

Users’ perceptions of outpatient quality of care in Kilosa District Hospital in Central Tanzania

The effect of a visual aid on the comprehension of cataract surgery in a rural, indigent South Indian population

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