Patients’ perception of communication with clinicians during screening and discussion of cancer supportive care needs

Jones, Rebecca; Regan, Melanie; Ristevski, Eli; Breen, Sibilah

doi:10.1016/j.pec.2010.12.006

Cited by 24 publications

(22 citation statements)

References 34 publications

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“…Linked to the provision of information is patient-clinician communication, which was identified as an area for future action and improvement [61]. As with previous research [62], perceived lack of support and/or continuity of care can dramatically impact on women's experience, especially at the time of diagnosis.…”

Section: Summary and Critique Of Evidencementioning

confidence: 91%

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A systematic review of the supportive care needs of women living with and beyond cervical cancer

Maguire

Kotronoulas

Simpson

et al. 2015

Gynecologic Oncology

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Section: Summary and Critique Of Evidencementioning

confidence: 91%

“…Investing time to sensitively inquire about and assess any SCNs is a key message to all health professionals involved in the care of women with cervical cancer [61]. Engaging in an active process of evaluating and re-shaping clinical interactions based on women's priorities and needs is paramount.…”

Section: Implications For Clinical Practicementioning

confidence: 99%

A systematic review of the supportive care needs of women living with and beyond cervical cancer

Maguire

Kotronoulas

Simpson

et al. 2015

Gynecologic Oncology

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“…Although the patient-clinician conversation is an important element in the screening and referral process [25, 26], we do not know how patients and physicians perceive communication after distress, or how their perceptions influence the referral process. Few studies investigate the subjective reasons people accept or reject psycho-oncological support services, and even fewer include qualitative components.…”

Section: Introductionmentioning

confidence: 99%

Understanding why cancer patients accept or turn down psycho-oncological support: a prospective observational study including patients’ and clinicians’ perspectives on communication about distress

et al. 2017

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BackgroundInternational standards prioritize introducing routine emotional distress screening in cancer care to accurately identify patients who most need psycho-oncological treatment, and ensure that patients can access appropriate supportive care. However, only a moderate proportion of distressed patients accepts referrals to or uses psycho-oncological support services. Predictors and barriers to psycho-oncological support service utilization are under-studied. We know little about how patients and oncologists perceive the discussions when oncologists assess psychosocial distress with a screening instrument.We aim to 1) assess the barriers and predictors of uptake of in-house psycho-oncological support along the distress screening pathway in cancer patients treated at a University Oncology Outpatient Clinic and, 2) determine how patients and clinicians perceive communication about psychosocial distress after screening with the Distress Thermometer.MethodsThis is a quantitative prospective observational study with qualitative aspects. We will examine medical and demographic variables, cancer patient self-reports of various psychological measures, and aspects of the patient-clinician communication as variables that potentially predict uptake of psycho-oncological support service. We will also assess the patients’ reasons for accepting or refusing psycho-oncological support services. We assess at three points in time, based on paper-and-pencil questionnaires and two patient interviews during the study period. We will monitor outcomes (psycho-oncology service uptake) four months after study entry.DiscussionThe study will improve our understanding of characteristics of patients who accept or refuse psycho-oncological support, and help us understand how patients’ and oncologists perceive communication about psychosocial distress, and referral to a psycho-oncologist. We believe this is the first study to focus on factors that affect uptake or rejection of psycho-oncological support services along the screening and referral pathway. The study 1) combines standard assessment with qualitative data collection, 2) embraces patient and oncologist perspectives, and, 3) focuses on patient-clinician communication about psychosocial issues raised by a standard screening instrument.Our results may improve routine practices and eliminate barriers to adequate health care, and make it easier to recognize patients with high distress levels who underuse the service.

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“…A study by Kettis-Lindblad et al [45], exploring patients' and oncologists' perceptions of using a quality-of-life assessment instrument to support an oncological consultation, found that completing the questionnaires before consultation stimulated patients' ability to reflect and encouraged them to voice their concerns. Likewise, Jones et al [29] found that completing a screening tool prior to a discussion with a clinician in a hospital ward encouraged the majority of patients to reflect on their needs and assisted them in initiating a discussion with the clinicians.…”

Section: Discussionmentioning

confidence: 99%

“…Patients' perspectives and experience of using questionnaires have been addressed in different ways. Some papers have used patients' perspectives in order to assess and validate specific questionnaires in different hospital settings and amongst different cancer populations [27,28], while other studies have examined the effect of using questionnaires and assessment systems on cancer patients' well-being and experiences of communicating with clinicians [29][30][31][32].…”

Section: Introductionmentioning

confidence: 99%

Completing a Questionnaire at Home Prior to Needs Assessment in General Practice: A Qualitative Study of Cancer Patients’ Experience

Thayssen

Hansen

Søndergaard

et al. 2015

Patient

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The results demonstrate that completing a questionnaire seems to stimulate patients' ability to reflect on their situation, clarify the importance of different problems to their everyday lives, and articulate these considerations to their GPs. Furthermore, we have shown that a questionnaire has the ability to interact with the patient and instigate a process of awareness. It is important to acknowledge this process of interaction between patient and questionnaire as an important part of understanding how and why questionnaires may support the patient when completing a questionnaire prior to a clinical encounter.

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Patients’ perception of communication with clinicians during screening and discussion of cancer supportive care needs

Cited by 24 publications

References 34 publications

A systematic review of the supportive care needs of women living with and beyond cervical cancer

A systematic review of the supportive care needs of women living with and beyond cervical cancer

Understanding why cancer patients accept or turn down psycho-oncological support: a prospective observational study including patients’ and clinicians’ perspectives on communication about distress

Completing a Questionnaire at Home Prior to Needs Assessment in General Practice: A Qualitative Study of Cancer Patients’ Experience

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